rp1954 wrote:So at this point you have a nurse that's listening to you directly?
Is this now DIY insertion, an independent contractor or still ND's employee?
That is a mix - something DIY, something with independent nurse. Within reasonable limits, I can decide things like a dose, infusion rates, when and how often do it. Or I will need ND advice for more complicated questions.
rp1954 wrote:What is her IV vit C timing with relation to Folfox/Folfiri infusions (and 46 hr 5FU)?
Btw, what kind of infusion setup for chemo, central venous and power pump or the older lines affair?
She has standard two weeks Folfox/Folfiri protocol. All infusions started on Monday afternoon and finished on Wednesday afternoon, and once we had one week delay due to bleeding. Actual infusions dates are: Folfox - Oct. 24, Nov. 7, 21, Dec. 5, 19, Jun. 3, 16, Feb. 6, 21. Folfiry - Mar. 6
In hospital she gets IV oxaliplatin/irinotecan plus leucovorin, and 46-hour pump ("baby bottle") connected with 5FU. PICC is line used for all infusions.
rp1954 wrote:For right now, just track what you are doing and write notes, so you can track differences over time.
Sure, I do small notes from the first day with all side effects and all additional treatments.
rp1954 wrote:What is the sequence and separation between Folfox/Folfiri and IV C. Since my wife was oral chemo 3x a day, we overlapped.
Does IV C over lap in the chemo infusion hardware or she uses separate infusion sites?
Both IV-C and chemo use PICC line now. When we did IV-C in the IV clinic, they did it simultaneously in the other hand. At home we do IVC Monday morning before chemo (starts afternoon), break on Tuesday, and continue on Wednesday afternoon after pump is disconnected.
rp1954 wrote:From my point of view, there's trying to get a degree of consistency, simply tracking what's happening, and, longer term, some degrees of optimization for sampling and for treatment.
Yes, I understand. We started IVC from December 15. And it was just 1-2 times per week at the beginning. So time from IVC to bloodwork may be different. Stably 3-4 times per week started from January.