Postby Rikimaroo » Tue Jun 14, 2022 8:06 am
Sorry PCCR - You do know there is no cure for cancer right? There is however therapy to increase livelihood and some people with small mets Chemo does destroy it. Why are you so against SOC?
I truly understand its your prerogative and decision not to do SOC, but cancer is not curable, curative intent is not always an option, but increasing ones life for new therapies to come out is and option. Think about that. Are you scared to do Chemo?
Let me fill you in of how hard cancer is. Right now I have pain in my butthole and discharge from it of blood/mucus all day long, I have to wear diapers, even though I have an ostomy, this is because of tumor invasion of the rectal stump that is there. My left kidney ureter is being pressed by the tumor causing Hydroureteronephrosis which is a obstruction to free flow of urine from the kidney. I go to the bathroom to try and pee thinking I need to but nothing happens, it is very frustrating makes it hard to sleep. Cancer pain is not fun, I am on morphine tablets daily, flomax to help with peeing. I am 43 years old. Sitting down is aggravating, I am squirmy, my entire diaper is soiled all the time, so now I put tissue paper in between my butt and the diaper so I don't have to change the diaper. Believe it or not the only thing that is great is my Ostomy, of course I hate having one, but its giving me my life back. Please read this message in full and THINK, don't be so bullheaded with your thought process. Again most of the people on this site has been through alot, your just breaking the ice and your doing all this bullshit natural stuff that has no statistic that it works.
I was really rooting for you on the natural stuff, you gave us all hope, I was really expecting good results because of it, it would make me feel better to jump on your protocol and drop this shit chemo.
So many rich actors have died from cancer who have the disposable finance to go to Mexico and all these other countries that say they can cure cancer and they are still dead. Be more open minded. If I recall you are in Florida, if you ever want to talk man or meet up let me know.
Cancer is being treated as a chronic disease now, with chemo, just like diabetes and other chronic diseases. I know chemo sucks, surgery, ostomy, radiation, but I been through it all and 5.5 years later I am still hear alive.
This is all because I took a almost 5 month break from Chemo, so it progressed.
Riki
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
LAR/Liver Resect 4/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left vesical/pelvic sidewall - 10/7/2019 resect perm bag,
CEA rise Feb/May 3.7, 8.8, 30, Recurrence in Pelvic
CEA 40 right now, but was 57, so folfiri to beat it back down.
Lots of chemo for the past 4 years.