Any success stories?

[worriedson714]

Hello.so my dad's nephstomy tube keeps coming out and causing infections . So I looked up info if they improve survival how often they help. The info was all bad so i am wondering any success stories out there with these tubes ?

[KimT]

Nephrostomy tubes are problematic and what your dad is going through is quite common unfortunately. They create a highway directly into the kidneys so infections are hard to prevent and they are easily dislodged. The person can’t see them and it’s hard to prevent dislodging them because they are on the back. They lay on them and lean on them all day long. They are not ideal for long term management of bladder and kidney issues. I’m not clear on your signature on whether or not your father has had a urostomy. Urostomies are much easier to manage.

[worriedson714]

Nephrostomy tubes are problematic and what your dad is going through is quite common unfortunately. They create a highway directly into the kidneys so infections are hard to prevent and they are easily dislodged. The person can’t see them and it’s hard to prevent dislodging them because they are on the back. They lay on them and lean on them all day long. They are not ideal for long term management of bladder and kidney issues. I’m not clear on your signature on whether or not your father has had a urostomy. Urostomies are much easier to manage.

He has a urostomy also I just read studies on pubmed that said people with nephrostomy tubes usually don't live more then a year so it's been freaking me out . So was hoping there was success stories out there with people saying they have lived long time with them . Or they had there problem fixed got rid of it and continued healed from the issue but maybe this is the wrong website for it idk thanks for the reply though .

[catstaff]

I doubt it's the nephrostomy tube itself that causes much reduction in survival, though it does seem to require considerably more attention than a urostomy. It would be more related to _why_ such a tube is required. People who require them for non-malignant reasons can live with them for years if necessary (it is preferable not to be necessary, but sometimes it is).

[worriedson714]

I doubt it's the nephrostomy tube itself that causes much reduction in survival, though it does seem to require considerably more attention than a urostomy. It would be more related to _why_ such a tube is required. People who require them for non-malignant reasons can live with them for years if necessary (it is preferable not to be necessary, but sometimes it is).

Your right it said people who have them for malignant reasons i didn't think about it that way it's the cancer more then the tube .