Still NED 7 years after lung laser surgery

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Sophy
Posts: 261
Joined: Fri May 27, 2011 2:46 am
Location: New Zealand

Still NED 7 years after lung laser surgery

Postby Sophy » Sat Aug 14, 2021 9:03 pm

Hi all, just wanted to share that PET scan last week shows I am still NED after surgery for multiple lung mets in Germany and UK in 2014.

A huge thank you to the people on this forum who provided information and support when I needed it, especially Maia and CB75.

Thanks
Sophy
dx T3N1M0 Feb 2011 when children age 11, 7 and 2
Xeloda/rad March 11, LAR June 11 temp ileo
Xelox 6 rounds, NED
Lung mets Oct 13
Laser surgery Germany Jan 14. 3 mets left lung.
Laser surgery UK Jun and Aug 14 one met each lung, NED
Aug 14 Started Xeloda and Celebrex (ADAPT)
June 20 CT shows nodule, bronchoscopy confirms is scar tissue, still NED
Dec 20 stopping Xeloda continue celebrex, cimetedine
Aug 21,March 23 scans show still NED
March 2023 CURED - discharged from Oncology, no more scans or follow up

stu
Posts: 1613
Joined: Sat Aug 17, 2013 5:46 pm

Re: Still NED 7 years after lung laser surgery

Postby stu » Mon Aug 16, 2021 3:28 am

Great news , I remember you and Stevie going through that !
Delighted to see you thriving !
Mum’s still going strong too! Seems the microdisease eventually settled !
Such an encouragement to everyone !
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

rp1954
Posts: 1853
Joined: Mon Jun 13, 2011 1:13 am

Re: Still NED 7 years after lung laser surgery

Postby rp1954 » Tue Aug 17, 2021 4:34 pm

That's a fantastic result Sophy. Congratulations and Thank You for continuing to share your story.
Your surgery is the premier lung resection tech, albeit little known outside this board. Since my wife had 3 lung nodules in 2010, I've been following Rolle's laser story here since seeing his paper. Just in case.

Sophy's story is an important lung met story worth following folks, for anyone facing one or 100 lung mets.
ADAPT and Rolle's laser lung treatment.
watchful, active researcher and caregiver for stage IVb/c CC. surgeries 4/10 sigmoid etc & 5/11 para-aortic LN cluster; 8 yrs immuno-Chemo for mCRC; now no chemo
most of 2010 Life Extension recommendations and possibilities + more, some (much) higher, peaking ~2011-12, taper chemo to almost nothing mid 2018, IV C-->2021. Now supplements

zephyr
Posts: 363
Joined: Thu Aug 18, 2016 7:31 am

Re: Still NED 7 years after lung laser surgery

Postby zephyr » Tue Aug 17, 2021 5:31 pm

That is awesome, Sophy! I'm so happy for you! And as long as you're giving a thanks to people who provided information and support to you ... thank you, my friend, for all the help you gave me.
Nov-2009 Early stage CRC, routine colonoscopy
2010-2014 F/U colonoscopies, all clear
Jun-2016 CRC during F/U colonoscopy, surgery, Stage 4, KRAS, MSS
Aug-2016-May-2018 Folfox, 5FU, Folfiri & Avastin
Aug/Sep-2018 YAG laser surgeries (Germany), 11 nodules removed
Nov-2018 clean CT scan
Mar-2019 New lung nodules
Apr-2019 Dec-2020 Xeloda/Avastin, SBRT, cont. Xeloda/Avastin
Mar-2021 Forfiri/Avastin
Mar-2022 Ablation & Thoracotomy
Feb-2023 Folfiri & Avastin
Nov-2023 Xeloda & Avastin

Siti
Posts: 269
Joined: Thu Aug 01, 2019 10:58 am

Re: Still NED 7 years after lung laser surgery

Postby Siti » Fri Sep 10, 2021 3:54 am

Thank you for sharing your story! Such great news
DH (54) DX on 5/7/19
Sigmoid|G3|LN:30/31|MSS|WT KRAS, NRAS, BRAF
7/19 PET distant LN para-aorta neck hip (0.5-1.5cm)
7/19 Lap resection
26/8 to 20/12/19 CAPEOX+Bev 7x
6/11/19 CT 3 cycle LN shrunk
1/20 Cap+Bev
4/20 TS-1+Bev due to bad HFS
NED 4 years
8/23 PET recurrence chest LN growing since Feb. CEA May(4.5>5.1>5.9)
9/23 Stopped Bev, CEA Sept(8.7) Radio 17x
11/23 PET 1+ supraclavicular LN, CEA (3.4>2.5)
12/23 Lymphadenectomy
1/24 Narrow margins, 1/5 +LN, 1.4cm +tissue, TMB (19)


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