Cured it is then !

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stu
Posts: 1472
Joined: Sat Aug 17, 2013 5:46 pm

Cured it is then !

Postby stu » Wed Feb 03, 2021 4:13 am

Just realised my mum crossed the medical finish line ! Five years since her last surgery !

It has taken her a long time to get here .
But she has arrived !

Not that she has even realised I will enlighten her later .

Just a little encouragement for all in treatment !
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Jess83
Posts: 36
Joined: Sun Dec 02, 2012 7:06 am

Re: Cured it is then !

Postby Jess83 » Wed Feb 03, 2021 5:02 am

That’s awesome news!!! Congratulations to your mum!!!! :D
2012 - Stage 1 - 29 yo in Australia
Diagnosed whilst pregnant
18mm Polyp - T1 NX M0
May 13 - TEMS procedure - Clear margins!!!
Feb 14 - Had a baby!
June 14 - clean colonoscopy & PET
June 15 - clean sigmoidoscopy & PET
July 17 - clean colonoscopy
August 19 - clean colonoscopy
Dec 2020 - It's back :( 35mm tumor next to original resection
Confirmed Stage 4 with met to adrenal gland
Jan 2021 - Adrenal gland removed
3 rounds of FOLFOX - ✔️
March 2021 - started 6 weeks of chemo/radiation

Gravelyguy
Posts: 359
Joined: Thu Jul 05, 2018 6:03 pm

Re: Cured it is then !

Postby Gravelyguy » Wed Feb 03, 2021 10:37 am

That is awesome news Stu! Congrats to your mom!

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 CEA .9 still NED!
6/11/19 CEA 1.0
12/19/19 CEA 1.0 still NED!
6/17/20 CEA 1.1 still NED!
12/15/20 CEA 1.1still NED!

Claudine
Posts: 498
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Cured it is then !

Postby Claudine » Wed Feb 03, 2021 11:18 am

So happy for both of you (and family and friends) :D :D :D
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
CEA since 03/19: high 58, low 3.2, now 75.5
Scan 03/19: Multiple small lung nodules, now gone
PET 04/20 uptake by L4
L3-L4-L5 fusion surgery and partial corpectomy 05/20
Scan 03/21: stable

boxhill
Posts: 707
Joined: Fri Apr 06, 2018 11:40 am

Re: Cured it is then !

Postby boxhill » Wed Feb 03, 2021 11:34 am

Wonderful!
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/19 MRI stable/NED
Stop Key
8/20 MRI NED

Nor Cal
Posts: 13
Joined: Sun Dec 06, 2020 8:18 pm

Re: Cured it is then !

Postby Nor Cal » Wed Feb 03, 2021 9:50 pm

Congratulations! Great news
Dx June 2020, stage IV, w liver mets in both lobes. M, age 50. Right-sided colon tumor. BRAF mutation. CEA 120
7-12/20 9 cycles FOLFOXIRI (plus Avastin cycles 2-6)
CEA 2.9
12/20 radioembolization (right lobe) cea 2.0
1/21 chemoembolization (left lobe)
2/21 chemoembolization (left lobe)
1-5/21 5 cycles FOLFIRI + Avastin

User avatar
mobrouser
Posts: 158
Joined: Wed Apr 11, 2018 1:44 pm
Location: Ontario

Re: Cured it is then !

Postby mobrouser » Wed Feb 03, 2021 10:25 pm

Fabulous news to read. Have a great celebration!
CC Dx 102017 age 58
Lap. right hemi-colectomy Dec 2017
Adenocarcinoma ascending colon – 6cm x 6cm x 2cm, Low Grade, penetrates to peritoneum
T4a N2a M0, Stage IIIC
lymph nodes 6 positive out of 18
FOLFOX start Jan/18 end Aug/8 (felt like a year)
CEA - 01/15/18-2.8; 07/29/18-5.3; 09/19-2.4; 03/20-2.7; 09/20-2.9
CT scan 08/18 - Clear; 10/19 - Clear; * 10/20 - 8mm & 6mm nodules in liver
PET scan 09/18 (thought about bringing the cat :wink: ) - Clear
Colonoscopy Dec 7 2018 - Clear - Next in 3 years?

Punky44
Posts: 476
Joined: Mon Oct 01, 2018 4:29 pm

Re: Cured it is then !

Postby Punky44 » Thu Feb 04, 2021 2:03 am

Yay!!! Congrats mom and Stu!
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4; 3.0; 3.4
Latest update: 3/22/21: CEA 3.4

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

User avatar
ginabeewell
Posts: 489
Joined: Wed Oct 24, 2018 10:30 am

Re: Cured it is then !

Postby ginabeewell » Fri Feb 05, 2021 12:03 am

Always so happy to see proof of what’s possible! And your mom is one of the people I like to cheer on the most. : )

Congrats to both of you!!
45 YO mom of twins (9) and lucky stepmom of 14/17 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets CEA 931
10/18 FOLFOX + Vectibix
12/18 typhlitis (7 days in hospital) but largest met down to 5 cm.
12/18 CEA 4.6
1/18 Resume chemo (#6-8)
3/19 HAI pump placement / colon resection
4/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/19 CEA 1.3
7/19 liver resection
10/19 liver resection
1/20 NED! CEA 0.6
3/20 two new liver mets; FOLFIRI (5) and then add Vectibix (5)
8/20 CEA 0.7
Resection next?

utahgal7
Posts: 45
Joined: Fri Sep 11, 2020 12:04 pm

Re: Cured it is then !

Postby utahgal7 » Fri Feb 05, 2021 8:55 am

That's fantastic news! So happy for your mum and your family. This news gives hope to me and to others! If your mum can do it, all of us here on this forum can too! Thank you for sharing.

Paige
02/20 Rectal Cancer dx - 2 cm mass; located 9 cm from AV
03/20 CEA 2.7; 0.9; 1.4; 0.9
04/20 ST Radiation
04/20 LAR surgery w/ileostomy
04/20 ypT3N1bM0; MSS; moderately differentiated adenocarcinoma
05/20 CAPEOX
08/20 Ileostomy reversal
09/20 CT scan; suspicious areas in liver;
10/20 MRI liver; dx hemangioma
12/20 CT scan; lung nodules (watch and wait)

DarknessEmbraced
Posts: 3584
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Cured it is then !

Postby DarknessEmbraced » Fri Feb 05, 2021 1:39 pm

Congratulations to your Mom!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Siti
Posts: 209
Joined: Thu Aug 01, 2019 10:58 am

Re: Cured it is then !

Postby Siti » Fri Feb 05, 2021 2:47 pm

Your mom is amazing and so are you! Thank you for being the light on our darkest days.
Wife of DH (54) DX on 5/7/19
Sigmoid | Adenocarcinoma | Grade: G3 | LNs: 30/31
Wild Type for KRAS, NRAS and BRAF
19/7/19 PET-CT Scan: Distant lymph nodes (para-aorta, neck & hip), est. size 0.5-1.5cm.
22/7/19 Surgery: Laparoscopic Colon Resection
26/8/19 Chemo: CAPEOX + Avastin x 7
6/11/19 CT Scan after 3rd cycle, all nodes have shrunk! Yay!! 20/12/19 Last round of Ox (NED)
1/2020 Maintenance: Cap + Avastin
4/2020 Maintenance: switch to Teysuno (S-1) + Avastin due to bad HFS side effects.

stu
Posts: 1472
Joined: Sat Aug 17, 2013 5:46 pm

Re: Cured it is then !

Postby stu » Sun Feb 07, 2021 4:18 am

Thank you so much . She sends each and everyone of you her very best wishes . She remains committed to pushing those stage 4 stats further down the road and delighted others are able to do the same .
The pipeline has been delivering new treatment options over the last five years and collectively it gives such hope !

Best foot forward !
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

shaina
Posts: 12
Joined: Mon Oct 12, 2020 11:11 am
Facebook Username: shaina.leskin

Re: Cured it is then !

Postby shaina » Sun Feb 07, 2021 4:27 am

Great news! There is definitely hope for us Stage IV b-ers! Good luck with everything in the future, and enjoy life as it comes. I posted before, if you Mum is up to it, there's a marvellous workout program for 50 plus age group, called "Fabulous 50s" which keeps me strong and relatively healthy and fit. Your Mum may enjoy it!

stu
Posts: 1472
Joined: Sat Aug 17, 2013 5:46 pm

Re: Cured it is then !

Postby stu » Sun Feb 07, 2021 5:39 am

Thank you Shaina , I will look it up right now and pass it onto her . She has always been very active and I do credit that to the fact she has been well for all the treatment and surgery she has been able to do . I think that would really work for her .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .


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