If you want prayer stop in here!

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Trying
Posts: 250
Joined: Sun May 13, 2018 10:11 pm

Re: If you want prayer stop in here!

Postby Trying » Sat Jun 15, 2019 2:58 pm

Thank you
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy
Oxy failed- irinotecan as of of Sept 2020

radnyc
Posts: 446
Joined: Tue Apr 06, 2010 6:32 pm

Re: If you want prayer stop in here!

Postby radnyc » Sun Jun 16, 2019 11:58 am

Bumping up
DX Jan 2010, at age 47
Feb - colon resection - 2/17 nodes positive
April - liver mets - Stage 4
3 months Folfox chemotherapy
August '10 liver resection and HAI pump
7 months chemo FUDR HAI and Folfiri systemic
NED since August 2010
Last treatment April 2011
HAI Pump removed Dec 2015

AmyG
Posts: 371
Joined: Tue Dec 25, 2018 8:08 pm

Re: If you want prayer stop in here!

Postby AmyG » Sun Jun 16, 2019 1:39 pm

So, I myself am not religious but I welcome all thoughts, prayers and those swinging chickens I read about.

I'll take anything positive coming my way.
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...
CEA 1.5 that's a new low!

fumaros
Posts: 273
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: If you want prayer stop in here!

Postby fumaros » Sun Jun 16, 2019 6:02 pm

I would love some prayer. Every once helps. And I will continue to pray for everyone of you.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
Stage IV, Peri mets 5/2019
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9, 3/19 -5.8, 4/19 -10
FOLFOX began 6/24/16 - 11/25/16, FOLFIRI - 5/10/19
10 round FOLFOX, 2 round 5-FU & Leucovorin, 1 round FOLFIRI
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

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Maggie Nell
Posts: 1151
Joined: Wed May 27, 2015 1:57 am
Location: Central Highlands, Victoria, Oz

Re: If you want prayer stop in here!

Postby Maggie Nell » Sun Jun 16, 2019 7:14 pm

This is another day, O Lord. I know not what it will bring forth, but make me ready, Lord, for whatever it may be. If I am to stand up, help me to stand bravely. If I am to sit still, help me to sit quietly. If I am to lie low, help me to do it patiently. And if I am to do nothing, let me do it gallantly. Make these words more than words, and give me the Spirit of Jesus. Amen.
--The Book of Common Prayer


The above is from an earlier thread called Favourite Prayers circa 2011
viewtopic.php?f=1&t=31522

...which contains an embedded link to another thread Inspirational Sayings circa 2008
viewtopic.php?f=1&t=4182


About the swinging chicken thang....

....and this particular way of reciting the prayer for the sick — with the chicken — was their custom.
Be’ezrat hashem (with God’s help), his father would make a full recovery.[...] In her book “The Spirit Catches You
and You Fall Down,” Anne Fadiman describes the collision between two radically different belief systems,
shamanism and biomedicine,


https://well.blogs.nytimes.com/2014/09/ ... ?referrer=
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency R. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
Stage II CRC, no adjuvant chemo required.

User avatar
HopeForJesse
Posts: 249
Joined: Wed Feb 24, 2016 9:39 am
Location: Philadelphia

Re: If you want prayer stop in here!

Postby HopeForJesse » Mon Jun 17, 2019 7:10 pm

fumaros wrote:I would love some prayer. Every once helps. And I will continue to pray for everyone of you.


Got you all added to my prayer list!

‘I wait for the Lord
my soul waits
And in His Word I put my Hope’

Psalm 130:5
DH DX 01/16 49 YO inop RC stage IV liver mets
MSS TP53 APC,BRCA2
12/15 CEA 241, FOLFOX to 11/16
LAR/ileo 5/16 Clear margins 1/29 nodes
HAI, reversal, liver resections7/16
FUDR 8/16 -NED 3 mos
Rising CEA 3/17 Xeloda, 5/17 -12/17 Erbitux & Iri stable but lung/lymph mets CEA 2.7
5/18 5 days SBRT radiation to sternum 10/22/18 surgery to remove zyphoid process met
6/11/19 5FU added to cetuximab and irinotecan CEA 16
Ephesians 3:20 Our God is able to do immeasurably more than we can ask or imagine!

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: If you want prayer stop in here!

Postby Lee » Mon Jun 17, 2019 7:56 pm

fumaros wrote:I would love some prayer. Every once helps. And I will continue to pray for everyone of you.


You got it,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

tater
Posts: 133
Joined: Wed Jul 19, 2017 5:53 pm

Re: If you want prayer stop in here!

Postby tater » Mon Jun 17, 2019 10:33 pm

My wife could use one.
DH to 38 wife w/kids
Stage 3C DX 3/3/17 CEA 29
5-fu and radiation ended May 17, 2017
Stage 4 External iliac node July 17, 2017
FOLFOX + Avistan July 18 2017 CEA 2.3
Nov 9, 2017 Coloanal Anastomosis, Hysterectomy & External Nodes Removed W/ileostomy
Clear Margins NED
CEA 1.5 12/17, 2.1 2/18, 2.3 6/18, 1.1 9/18, 1.3 12/18, 1.8 3/19, 2.5 6/19
Clear CT and MRI on 2/5/2018, 9/18 Clear Scans
Reversal Surgery 6/26/18
Small Spot on right ureter surgery 10/30/19 adhered to artery
Dec. 2 start 12 rounds FOLFIRI

User avatar
Maggie Nell
Posts: 1151
Joined: Wed May 27, 2015 1:57 am
Location: Central Highlands, Victoria, Oz

Re: If you want prayer stop in here!

Postby Maggie Nell » Mon Jun 17, 2019 11:29 pm

Reckon the link to this old-timer thread fits in here

God, Statistics, Fear, Hope started by scottg June 4 2008.
viewtopic.php?f=1&t=3646

*Faith is the wind that blows the sail of our ship to the desired destination."
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency R. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
Stage II CRC, no adjuvant chemo required.

Punky44
Posts: 498
Joined: Mon Oct 01, 2018 4:29 pm

Re: If you want prayer stop in here!

Postby Punky44 » Tue Jun 18, 2019 12:21 am

Please add my mom to your prayer list as we approach her reversal surgery in a couple weeks.
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4; 3.0; 3.4; 3.1; 3.4; 3.0; 3.1; 2.6
Latest update: 8/21/23 Clear CT with CEA 2.6!

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

Pyro
Posts: 305
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: If you want prayer stop in here!

Postby Pyro » Thu Jun 20, 2019 3:46 am

I wasn’t around to see what happened but my simple request was deleted. I could use some, thank you.
Aug 2015- Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail
Jun 2019 - FOLFURI
Aug 2019 - No more, quality time!

User avatar
Maggie Nell
Posts: 1151
Joined: Wed May 27, 2015 1:57 am
Location: Central Highlands, Victoria, Oz

Re: If you want prayer stop in here!

Postby Maggie Nell » Thu Jun 20, 2019 4:18 am

Gotcha back.
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency R. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
Stage II CRC, no adjuvant chemo required.

User avatar
juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: If you want prayer stop in here!

Postby juliej » Fri Jun 21, 2019 5:12 pm

Courage is fear that has said its prayers.

JJ
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

User avatar
Maggie Nell
Posts: 1151
Joined: Wed May 27, 2015 1:57 am
Location: Central Highlands, Victoria, Oz

Re: If you want prayer stop in here!

Postby Maggie Nell » Mon Jun 24, 2019 1:55 am

Image

Snow fell on this statue of Mary, it is like she is carrying someone.
Outside the cancer center at Mercy Hospital-Council Bluffs, Iowa.
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency R. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
Stage II CRC, no adjuvant chemo required.

jmn
Posts: 48
Joined: Sat Aug 11, 2018 8:20 pm
Location: New York/Philadelphia

Re: If you want prayer stop in here!

Postby jmn » Sat Jul 20, 2019 11:54 pm

Prayer is powerful. Please add me to your prayer list as I join you in praying for our fellow travelers journeying through cancer.
DX: CC, 7-9-18 @ age 61, male
Severe anemia (4.5 g/dl), 5-11-18; colonoscopy, 6-29-18
Lap-assisted right hemicolectomy, 7-16-18
G2, cecal adenocarcinoma, 4.2 x 3.7 x 0.7 cm
Stage IIB, pT4aN0 (first pathology DX: pT3N0)
0/24 lymph nodes, LVI present, PNI present, surgical margins clear, MSS
CEA: 3.0 (pre-op, 7-10-18); 0.7 (post-op, 8-8-18)
TX: Xeloda (capecitabine), 10-16-18 to 4-21-19
5 years of clear scans and colonoscopies :D
Released from MSK surveillance, 7-20-23 - NED :D


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