She’s gone...

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Lovenothate
Posts: 38
Joined: Tue Aug 16, 2016 3:13 am
Facebook Username: Emily.guzman

She’s gone...

Postby Lovenothate » Wed May 02, 2018 11:25 pm

I guess I’m just numb. But she’s gone... after a two year fight... thank you guys for being here.
daughter to DM dx Stage IV CRC @47 July 2016
total hysterectomy b/c ovarian mets abscites 6/16
Colostomy
Folfox 7/16
Lung spots 2mm each 9/16
Xeloda & Avastin 1/17
Shrinkage to lungs spots! 4/17
Break from Avastin/ Xeloda continued 7/17
Omentum mets/ lungs mets stable(possibly not malignant)
Folfiri 8/17
1 lung spot all along-clear abdomen scans chemo break until 4/4/17

stu
Posts: 1614
Joined: Sat Aug 17, 2013 5:46 pm

Re: She’s gone...

Postby stu » Thu May 03, 2018 1:40 am

Really sorry to hear that . She endured so much .
Peace be her journey .
Take special care of yourself .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

dauofcamom
Posts: 34
Joined: Sun Apr 22, 2018 7:11 pm

Re: She’s gone...

Postby dauofcamom » Thu May 03, 2018 6:06 am

I am so very sorry for the loss of your mother. Can only imagine how you are feeling. I’ve just begun this horrible journey with my mom. Hugs to you and peace to your mom.

A friend of mine told me a couple weeks ago that this is a season in all our lives. It’s painful but to find the love and acceptance and cherish the memories. Her words hit me hard and comforted me immensely.

I’ll be praying for your healing.
Long Distance Caregiver to 75 year old Mom
3/2018 - colonoscopy, DX malignant cecum mass
4/2018 - right hemi
Stage IIIC - T4bN1aM0
MSI High
5/2018 - Xelox Regime
10/2018 - peri Mets discovered
10/2018 - Start Keytruda every 3 weeks
12/2018 - scan all clear

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Robino1
Posts: 463
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: She’s gone...

Postby Robino1 » Thu May 03, 2018 7:26 am

I am so very sorry for your loss. :(
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

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susie0915
Posts: 945
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: She’s gone...

Postby susie0915 » Thu May 03, 2018 8:04 am

So sorry for your loss.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 PET scan NED
9/15 LAR
0/24 nodes
10/15 blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 C 4mm lung nod
10/17 pel/abd CT NED
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, CT pel/abd/lung NED
11/18 CEA .6
5/19 CT NED, CEA <.5
10/19 Clear colonscopy
11/19 CEA <.5

SoConfused
Posts: 1027
Joined: Mon Jan 30, 2012 2:40 pm

Re: She’s gone...

Postby SoConfused » Thu May 03, 2018 12:40 pm

I am verry saddened and sorry for your loss - not sure what to say, simply praying for your peace during this difficult time.
Stage IV CC

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henry123
Posts: 218
Joined: Sun Oct 08, 2017 3:25 am

Re: She’s gone...

Postby henry123 » Thu May 03, 2018 12:54 pm

So sorry to hear about your loss.
46yo M msi-high Lynch +ve
5/16 lap AR 14/21 L nodes +ve
T4N2M1
7/16 Capox 9 cyc
9/16 cea 2
1/17 550
PET CT mets in lung & peri
iri+ avast fail
3/17 10577
4/17 regro fail
5/17 cea 28800
5/17 CT inc in size of mes nodes ,onset of multi nodules in liver
6/17 Opdivo start
7/17 26754
8/17 5623
9/17 497
10/17 52
CT all clear exc a nodule in Lung. liver norm
1/18 3.6
Aspirin start
6/18 1.5 CT clear
12/18 1.1 NED
1/20 NED Opdivo stop
8/23 1.0 All ok

Capri
Posts: 80
Joined: Thu Apr 19, 2018 5:59 pm

Re: She’s gone...

Postby Capri » Thu May 03, 2018 2:35 pm

My sincere condolences on the loss of your dear mother. I'm sorry to hear of this and hope that she is at peace.
Be gentle with yourself too during this difficult time.
Mom to son 46 yo at Dx (2017)
1/18 Robotic resection, sigmoid adenocarcinoma, Stg. IIIA T3 N1 MX, mod. differentiated, margins clear
2/18 - 7/30/18 Port placed; completed 12 cycles of FOLFOX
6/18 Put on Early surveillance CT,PET scan-normal. Neuropathy has started.
11/18 Clean colonoscopy; 11/20 CT normal.
2019 to 7/22 colonoscopies, CTs neck to groin have been normal.

Lovenothate
Posts: 38
Joined: Tue Aug 16, 2016 3:13 am
Facebook Username: Emily.guzman

Re: She’s gone...

Postby Lovenothate » Thu May 03, 2018 3:06 pm

It was just so sudden... heart attack... I’m still shocked
Thank you all for your words
daughter to DM dx Stage IV CRC @47 July 2016
total hysterectomy b/c ovarian mets abscites 6/16
Colostomy
Folfox 7/16
Lung spots 2mm each 9/16
Xeloda & Avastin 1/17
Shrinkage to lungs spots! 4/17
Break from Avastin/ Xeloda continued 7/17
Omentum mets/ lungs mets stable(possibly not malignant)
Folfiri 8/17
1 lung spot all along-clear abdomen scans chemo break until 4/4/17

User avatar
Shana
Posts: 401
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: She’s gone...

Postby Shana » Thu May 03, 2018 5:55 pm

I'm so very sorry, there are no words to convey to anyone when losing their mother.

Peace and prayers to you and your family.
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
Irinotecan and Erbitux ran it's course. CEA rising
Primary tumor invaded tail of pancreas and spleen. Liver mets major concern
Y-90 radioembolization on 9/17/18, liver enzyymes have dropped. 10 Radiation treatments to primary tumor completed too. CT scan Nov to assess overall situation...

Caat55
Posts: 694
Joined: Sat Dec 23, 2017 6:01 pm

Re: She’s gone...

Postby Caat55 » Thu May 03, 2018 10:49 pm

What a terrible shock. Please take care of yourself . I will keep you in my prayers.

Susan
Do at 55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19, 5/20

SteveNZ
Posts: 147
Joined: Tue Apr 24, 2018 4:21 pm
Location: New Zealnd

Re: She’s gone...

Postby SteveNZ » Thu May 03, 2018 11:07 pm

I am so sorry for your loss.
Thinking of you and you are in our prayers...
Aged 56 - I feel really young...
Colo-Rectal Cancer T2 N1 M0
March 2018 - Diagnosis
April-May 2018 Radiation+Chemo then a TIA (Minor Stroke). - Stopped Chemo.
August 27th-November 2018 - Surgery and long, long recovery
*Decided to live to 100 as I will get a telegram from Her Majesty the Queen when 100yrs old. I so, so want one.
Am a Salvation Army chap so I complete 'knee drill' (prayer) to the Commander in Chief often. For myself personally this helps me through.

DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: She’s gone...

Postby DarknessEmbraced » Sun May 06, 2018 2:20 pm

I'm so very sorry for your loss!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Strong
Posts: 7
Joined: Sat May 05, 2018 8:56 am

Re: She’s gone...

Postby Strong » Sun May 06, 2018 9:05 pm

I'm so sorry to hear of your mother's passing. I'm new to the community but I've read some of your story and you did so much to help her. I'm thinking of you and sending good wishes for you and your family.

John
47 year old male, DX at 44
10/15 DX rectal tumor T3N1M0
11/16 6 weeks chemo-radiation
2/16 LAR and ileostomy
3/16 intestinal blockage and abscess
5/16 8 folfox treatments, (3 w/ ox, 5 w/o)
9/16 ostomy reversal
CEA <1.0 and clear scans since

mariane
Posts: 704
Joined: Sun Sep 13, 2015 6:16 pm

Re: She’s gone...

Postby mariane » Sun May 06, 2018 9:52 pm

I am very sorry.
mom of now 14 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!


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