Postby Maelleous » Sat Aug 26, 2017 4:36 am
@ozziej --- thank you and I really appreciate your response on that. I actually wondered, because I didn't really feel like I fit the definition of "clustering". I am tall and thin and have always had a very fast metabolism and long before I had cancer, I have gone frequently my entire life. Never less than 2-3 times a day, with typically 3-5 times a day pre-cancer. It is hard to remember because I likely had cancer for a year or two, maybe longer, where I was going 6 times a day or so.
Where I am at now is a little more frequent than I would like, but it is becoming very tolerable. I have no urgency, I feel like I can get it all out (what is there at the time) and feeling very blessed to be at this stage already.
Day 22 & 23 -- last two days have been fantastic. I have even started venturing into a few vegatables with no ill effects. I lost track of my journal yesterday some, but ate a pickle before bed, and even a few green olives. Also felt confident enough to meet some work people for lunch yesterday, and with my wife for dinner.
8/24/17
4:30am smallish well formed -p
5:28am smallish well formed -p
5:40am took 1/3 immodium
7:15am drank some black cherry juice, two eggs and toast, with a hot earl grey tea post meal (trying this method to try and go a full amount at one sitting) - Metimucil after
8:27am medium sized, well formed -p
10:39am medium sized, well formed -p
3:20pm one small well formed. -p
4:37pm two medium-small well formed -p
5:20pm Dinner was Salmon in teriyaki sauce, white rice, and had to risk some diced cucumbers with a little ginger dressing over it. I also broke and had a piece of my wife's brownie and some milk (lactose free).
5:33pm Medium sized load -p
8:29pm small/medium -p
8:30pm took 1/3 immodium
8/25/17
5:43am - medium/small -p
7:30am - cream of wheat + banana + metimucil
8:30am - medium/small -p
9:20am - hot earl grey tea
12:05pm - Met some people from work for lunch, had a stuffed baked potatoe, fish dip appetizer they ordered, and an unsweet tea
1:30pm - medium well formed -p
2:00pm - small well formed -p
2:28pm - drank some metimucil
2:31pm - medium/small well formed -p
Lost track, I believe I had two or three more bowel movements before bed.
At dinner I had baked BBQ chicken wings and even some celery from a restaurant we went out to. The fact that I feel confident enough to go out for lunch/dinner has me feeling blessed!
M 35 yr
DX Rectal Cancer, 10/16 (symptoms Feb 2016)
Dx stage 2 - Surgery Oct 25 201 Loop ileo w/ j-pouch
Close margins within 1mm
9/38 lymph nodes involved on path / Stg IIIc,pT4, pN2 B, p.M0. MSS, K‐ras, NRAS, no mutation
Started Folfox - 3rd Treament, Dec 30th 2016 Cardiac Arrest - Lucky to be part of the 6% to survive!
S-ICD installed / Port Removed
Vaccine Clinical trial at UPMC - last shot June 2017
Reversal 8/1/17 - Praying this is it!
Still NED