Survey on bad habits

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Joined: Tue May 17, 2016 2:01 pm

Re: Survey on bad habits

Postby CFrancis73 » Thu May 19, 2016 11:06 am

I totally get what you saying and how pissed off you feel. My Mom has always been a healthy person, yet her sister and brother are lifelong extremely heavy smokers and heavy drinkers who ask to die, yet they are healthy as can be. I would never ever wish what my Mom is going through on anyone, but sometimes through this journey it does upset me.

I wish you and everyone all the best!
Daughter to a 56 yr old Mother
Stage IV signet ring cell rectal cancer
Poorly differentiated
at this time not a candidate for surgery or HIPEC
mets to peritoneum
no CEA numbers ever run on her
KRAS wild type
11/2015 Modified FOLFOX 6
5/2016 completed 12 rounds of FOLFOX 6
CT scan after 4th round, improvement
PET scan 5/2016 showed non activity in all cancer areas but two nodules (1/lung)
but oncologist believe its chemo induced, not concerned at this time
Laparoscopy scheduled 6/28/16

Posts: 6
Joined: Fri May 27, 2016 2:48 pm

Re: Survey on bad habits

Postby Conny » Sun May 29, 2016 4:00 pm

It is really refreshing to see "I am in the same boat" with so many of you, having lived a fairly healthy lifestyle and STILL got this UNIVITED "guest"! Excellent "survey".

THAT was MY very FIRST thought when I go the diagnosis: WTH, ME, who DOESN't LIKE junk food, who drinks water (and yes, LOVE my red wine), likes clean and healthy food, doesn;t do well with red meat, so I don;t eat usually, excersises and has a very healthy spiritual outlook...So, WHAT happened?

I reflected, of course, a lot and I came up with this (for me and my life): the past 2 years I worked in an office in a new building, with new paint, new carpet, new everything. Since I work in the car business (nope, NOT, we even have signs that say this environment may cause cancer......yep... I also was using a Teflon pan with a little scratch that should have been discarded. Then I had 14 months of EXTREME stress at work AND hostile boss (he was hired and fired 14 months later) that made a lot of our lives challenging. So, just between those "causes", I am pretty sure it is environmental. My grandma did die from colon cancer, but when she was diagnosed, she was Stage VI and since she lived in former east germany, she never really had any screening done.
I have a holistic background and worked with Dr. James D'Adamo and followed his Blood Type nutrition 20 years ago and felt REALLY good. Of course, live happens and I slipped little by little and yes, I ate stuff that was not the most beneficial for my blood type. I still believe very much in the fact what we eat and how we can digest things has a lot to do with our type. (NO, I am not promoting ANYTHING here, jsut sharing my own experience. Everybody is different and everybody needs to find their own).

I will use this approach during my upcoming Chemo as I feel this will help me and support my body in healing. And YES, if I fricking feel like a big ol' bowl of Ice Cream, I WILL have it... dairy for me or not! - I know there is a balance in life and if you listen to your body, with that little TINY voice, you will eat what is a better choice.

So, no, I am not beating myself up for "where did I go wrong", rather, I am looking at HOW can I BEST get through this and support my body so I can be of help to others and life my purpose and continue to enjoy life.

Thanks for the great post! 8)
53/F - mother of a 9 year old
3/21/16 Colonoscopy
3/23/16 got diagnosed 3cm growth
4/9/ CatScan - clean (other than growth)
5/11/16 resection of transfer colon- found enlarged lymph on branch of Aorta-could not remove 1cm
1/15 lymph nodes affected
Chemo treatment scheduled for 6/16/16
Stage IIIB

HHappiness is not a destination, it's a way of life

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Location: North Carolina

Re: Survey on bad habits

Postby BeansMama » Mon May 30, 2016 1:10 pm

Former smoker, I now vape. Hmm high school was full of "experimentation" with various substances :D

Never have been much of a drinker, I have gotten pretty plastered a time or two.

Food is my vice big time. I weigh more than I should, even if I did lose a lot when I first got sick I find the pounds are creeping on again with my reduced activity and it is driving me nuts.
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

Dori W
Posts: 34
Joined: Mon Aug 25, 2014 2:30 pm
Facebook Username: Dori Woodhouse

Re: Survey on bad habits

Postby Dori W » Mon May 30, 2016 1:31 pm

I smoked a pack a day for eleven years, and I quit twenty two years ago. I seldom eat meat now and I've never been a big meat eater. My biggest current risks are that I am somewhat sedentary (but I've been working on taking the dogs on longer walks), and I am very overweight (70 pounds or so). My oncologist recently reminded me that one of the meds I take for depression is notorious for causing weight gain, but I can't see how I can stop taking it. I've been working on my weight recently, but I've made very little progress.

My cancer seemed to come out of nowhere when I was diagnosed. There was no history of colon cancer in my family and I was only 42. I had quit my bad habits so many years prior to diagnosis, and although I was overweight, I was not nearly as heavy as I am now. It doesn't really feel like it came out of nowhere any more. I've learned over the last eight years how very many people get cancer at younger ages and I have a little more clarity on all the risk I accumulated when I was young. I've also since learned that there was more cancer in my family than I realized, just not colon cancer.
Diagnosed stage 3C signet ring colon cancer in May, 2008
14 out of 18 positive lymph nodes
Final treatment in November, 2008
NED ever since
I used to have an account under "Dori," but I've lost access to it.
You can view my old posts here: search.php?author_id=1446&sr=posts

Posts: 258
Joined: Sat May 21, 2016 10:16 am

Re: Survey on bad habits

Postby AussieAssCancer » Wed Jun 01, 2016 4:32 am

I enjoy a few ice cold beers (when the Oxaliplatin allows) :( and am partial to a single malt scotch. My ither main vice is cigars, which id have once every 3-6months.

In terms of food, I love my meat, particularly bacon, salami and other smoked/cured meats etc.

I was super fit at school/uni and then 'relaxed' after I got married and became 'cuddly'. Not really fat but carrying a few extra kgs. That said, I've lost about 12kgs with my ileostomy and I hope to keep it off so I may have to lay off some of the good stuff.

The way I look at it is we've been dealt a shitty hand, and we don't know how much time we have left, so we may as well have some simple pleasures, in moderation of course :wink:

Hope to one day share a beer/scotch/cigar with some of you kind folks

Dx Oct '15 w/ Stage 3c RC/ CEA 8
Nov '15 - Jan '16: 3x FOLFOX and 5wks Chemoradiation w/ Xeloda
March '16: ULAR w/ temp ileostomy
Complete pathological response incl 0/12 nodes
May - Aug '16: 9x FOLFOX (dropped Oxaliplatin for final Rd due to neuropathy)
Clear CT scans in April ‘16 (NED), Dec ‘16, Aug ‘17, Feb ‘18, March ‘19, Feb ‘20
Feb '17: Ileostomy reversed
CEA Post Surgery: ALWAYS 2

Blog: kickingrectalcancerintheassblog

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