Who are the longest stage 4 survivor's on here?

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mich
Posts: 76
Joined: Fri Aug 27, 2010 11:07 pm
Location: Los Angeles

Who are the longest stage 4 survivor's on here?

Postby mich » Fri Jan 25, 2013 12:53 pm

My husband celebrated his 6 years survival this month:)
Last edited by mich on Sat Mar 02, 2013 1:44 pm, edited 2 times in total.
Dh DX 1/07 stg 4 age 48
colon & liver resect
1 yr chem
3yrs NED
6 mnts chem no oxy
6/12 node active
7/12 peri node excised
8/12 Rad & chemo
4/13 Lung met
lobe removed
11/2013 chemo
4/17/2014 Nodes
radiation/ not Erbuitux candidate
Cancer spreads ..starting Stirvarga
Lasted 9 weeks on stir varga
Passed away Nov2015

Hapa
Posts: 388
Joined: Thu Jan 03, 2013 2:46 pm

Re: Who are the longest stage 4 survivor's on here?

Postby Hapa » Fri Jan 25, 2013 1:03 pm

That is GREAT! :D


DH-Stage 3 RC
DH Stage 3 RC

shmurciakova
Posts: 782
Joined: Wed Nov 08, 2006 6:25 pm
Location: Sugar Grove, VA

Re: Who are the longest stage 4 survivor's on here?

Postby shmurciakova » Fri Jan 25, 2013 2:43 pm

That is fantastic mich! I know a woman who was diagnosed just a little bit before I was, maybe a year and she is still surviving. She has never been NED that entire time as far as I know but is going strong and it has been at least 13 years. She just wanted to see her kids graduate from college, and certainly has done that and has recently adopted a foster child that she was taking care of.

I guess for me it is going on 11 years now. Technically when I was diagnosed I was Stage III but they didn't realize I had a liver tumor also, so I was restaged. I guess you start measuring from the day of diagnosis, eh? :D

Here's to many more years for your husband! I look forward to seeing who else posts.
Last edited by shmurciakova on Mon Jan 28, 2013 7:18 pm, edited 3 times in total.
diagnosed at 31 in 2002, Stage IV
Sigmoid colectomy - 6 mos 5-FU/Leukovorin
liver resection - 6 rounds XELIRI (xeloda/irinotecan)
lung wedge resection Oct. 2004 - no chemo
NED!!

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betsydoglover
Posts: 978
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Facebook Username: Betsy Lindh Williams
Location: Maryland - outside DC

Re: Who are the longest stage 4 survivor's on here?

Postby betsydoglover » Fri Jan 25, 2013 2:45 pm

Mich - that's great.

I'm coming up on my 8th anniversary (5/23/2013).
Betsy
diag. Stage IV, 5/05, liver met
lap sigmoid colectomy, 6/05
6 cycles Xeloda/oxaliplatin/Avastin (NED after 2)
11/08 9x13mm right lower lobe lung nodule; removed via VATS 4/09
NED
6 cycles Xeloda + Avastin
Avastin only 10/09-5/11
Still NED 06/18

mikew42

Re: Who are the longest stage 4 survivor's on here?

Postby mikew42 » Fri Jan 25, 2013 5:50 pm

I know I am not the longest, but coming up on 9 years (diagnosed Stage 4 January 2004). NED for 6 years, then recurrance and liver resection in January 2011, NED since.

Mike

Asterix
Posts: 333
Joined: Wed Sep 26, 2012 1:51 am
Location: Brisbane, Australia

Re: Who are the longest stage 4 survivor's on here?

Postby Asterix » Fri Jan 25, 2013 9:19 pm

Love hearing these reports. Thanks guys. Hope to be able to post something similar in 10 years.
Stage IVb age 37 Nov11
FOLFOX+Avastin, Xeloda+Avastin
1 year NED
regorafenib Oct13-Feb14
lymph node, lung, spine, rib and liver mets
GNAQ Q209P mutation > Mekinist Jul14
Radiation bone mets Aug14
Pain>hospital Oct14
FOLFIRI Nov14 >
Home Xmas 14

missjv
Posts: 1416
Joined: Tue Sep 12, 2006 10:38 am
Location: FLORIDA

Re: Who are the longest stage 4 survivor's on here?

Postby missjv » Fri Jan 25, 2013 9:53 pm

diagnosed stage 4 -7 1/2 years ago and ned.

missjv
Last edited by missjv on Tue Feb 04, 2014 12:05 pm, edited 1 time in total.

scottg
Posts: 140
Joined: Wed May 31, 2006 8:27 am

Re: Who are the longest stage 4 survivor's on here?

Postby scottg » Fri Jan 25, 2013 10:05 pm

6 1/2 years since diagnosis stage 4 peritoneal/ liver ect

Ron50
Posts: 699
Joined: Fri Feb 10, 2006 7:04 pm

Re: Who are the longest stage 4 survivor's on here?

Postby Ron50 » Fri Jan 25, 2013 10:37 pm

Just yesterday i was talking to an old friend in New Zealand. We keep in touch because she is the only other person I know who had 5fu and levamisole as chemo. She has just stared year 20 cancer free and I at st3c 6 nodes have just started yer 16 ca free.. Virginia had a colon resection and a wedge section to remove a liver met,,Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

Lee
Posts: 6203
Joined: Sun Apr 16, 2006 4:09 pm

Re: Who are the longest stage 4 survivor's on here?

Postby Lee » Fri Jan 25, 2013 11:38 pm

OK, I'm only a stage III C, but this coming April (April/2013), I'm coming up on 9 yrs since diagnoses. In Aug, 2013, 9 yrs since surgery (and some people says that when I became NED 8/04). My first Onc looked at April as my date.

When I was first diagnosed, 9 yrs ago, my stats were 30-60% of being alive in 5 yrs. A lot of progression have been made since then, including chemo and standard protocal. At that time, FOLFOX was only for those with a stage IV cancer diagnoses. It was still considered experimental back in 2004.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

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Jimswife
Posts: 904
Joined: Fri Nov 18, 2011 9:53 am

Re: Who are the longest stage 4 survivor's on here?

Postby Jimswife » Sat Jan 26, 2013 5:13 am

There's cptmac aka Dorothy she's about 8/9 years ned from stage 4 , Anita she's 7 years . And there's many more who don't come here now but I'm friends with them on Facebook , Vanessa about 6 yrs ned , robin 7 yrs , shaye about 8 years ... There's lots but can't blame then all of the top if my head , these are all stage 4 people too x
Victoria , Wife to Jim age 43 dx oct 2011
Stage 3 cc with 2 out of 21 positive lymph nodes
Folfox starts nov 11-may 12
All scans and bloods since surgery confirm no evidence of disease
Hoping to stay ned forever .... Fingers crossed !!!!!!!

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Jimswife
Posts: 904
Joined: Fri Nov 18, 2011 9:53 am

Re: Who are the longest stage 4 survivor's on here?

Postby Jimswife » Sat Jan 26, 2013 5:14 am

Typo error , name them not blame them
Victoria , Wife to Jim age 43 dx oct 2011
Stage 3 cc with 2 out of 21 positive lymph nodes
Folfox starts nov 11-may 12
All scans and bloods since surgery confirm no evidence of disease
Hoping to stay ned forever .... Fingers crossed !!!!!!!

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dianetavegia
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Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia

Re: Who are the longest stage 4 survivor's on here?

Postby dianetavegia » Sat Jan 26, 2013 9:36 am

SamT doesn't post here anymore but was dx'd Stage IV with over 50 liver tumors in 2005 and is still doing well.
You can do a search for his posts or an internet search on all the papers and patents he has produced in that time. He has a Phd in Chemistry.

I was dx'd Stage IIIB in Jan. 2009 and because a Stage IVa in late Jan. last year. NED after a liver resection on April 11th, 2012 so I am 4 years 24 days out from my original dx.
Stage III cc surgery 1/7/09. 12 tx FOLFOX
Stage IV PET = 1.5cm liver met. HR 4/11/12

11 years since dx and 7 3/4 years post liver resection.
Pronounced CURED and discharged by onc

“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2

ams5796
Posts: 2298
Joined: Fri Feb 06, 2009 10:07 am

Re: Who are the longest stage 4 survivor's on here?

Postby ams5796 » Sat Jan 26, 2013 11:15 am

I was diagnosed exactly six years ago at stage 3c. We found two lung mets in February of 2010 which I had removed via VATS. I have been Ned since then. Just had a scan the other day. All is well!
Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

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BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: Who are the longest stage 4 survivor's on here?

Postby BrownBagger » Sat Jan 26, 2013 11:58 am

ams5796 wrote:I was diagnosed exactly six years ago at stage 3c. We found two lung mets in February of 2010 which I had removed via VATS. I have been Ned since then. Just had a scan the other day. All is well!


That's great news on the scan! So good to see you posting. As you know, you're one of my inspirations around here.

I'm only about 4 years out from dx, but am looking forward to sprinting across the 5-year mark.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.


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