Update

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beach sunrise
Posts: 1238
Joined: Thu Mar 05, 2020 7:14 pm

Update

Postby beach sunrise » Wed Jun 18, 2025 4:03 pm

Hi all, update on me goes like this; ctDNA was neg., Dr. Kern went over my April CT/with contrast scan and gave an all clear. It has been two years since Dr. Kern performed Rolles Laser surgery on my lung mets. Ya, today is a good milestone. CEA is back down to almost normal from 15.2 to 6.8. I had a bacterial infection and must have affected the tumor marker is all we can figure. I am very sensitive to the CEA marker.
I bought the book Deuterium Depletion, A New Way of Curing Cancer and Preserving Health. I am digging and researching this to fully understand it since I have never heard of deuterium until recently. Not sure what I will find as far as pros/cons.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test

IDF108
Posts: 39
Joined: Wed Nov 16, 2022 4:23 am
Location: Massachusetts

Re: Update

Postby IDF108 » Thu Jun 19, 2025 6:58 pm

Very happy for you, Beach!

utahgal7
Posts: 307
Joined: Fri Sep 11, 2020 12:04 pm

Re: Update

Postby utahgal7 » Fri Jun 20, 2025 12:55 am

It's good to hear that you received an all clear and your ctDNA was negative. Very good news indeed. I am really happy for you!

The book that you are reading sounds interesting. When you get time, please share what you learned from it.
02/20 Rectal Cancer dx - 4 cm mass; located 9 cm from AV
CEA 1.4; 0.9; 0.9; 1.2; 1.0; 0.8; 1.1; 1.0; 1.1; 1.7; 1.8; 1.8; 1.9
2.4; 2.3; 2.8; 2.2, 2.8, 3.2; 3.0; 1.6; 2.0; 1.2; 1.4; 1.2; 1.0; 1.2; 1.2
04/20 ST Radiation; 04/20 LAR surgery w/ileostomy; ypT3N1bM0; MSS, KRAS G12A
05/20 CAPEOX; 08/20 Ileostomy reversal
12/20 CT scan; lung nodules (watch and wait);
11/22 lung nodule biopsy positive for RC met;
1/23 VATS right lower lobe wedge resection
FOLFIRI 10 cycles
4/24 left brain craniotomy (RC met)

User avatar
beach sunrise
Posts: 1238
Joined: Thu Mar 05, 2020 7:14 pm

Re: Update

Postby beach sunrise » Fri Jun 20, 2025 6:59 am

Thanks yall! As we all know the cancer road is so tough mentally and physically so when one gets good news it changes the horizon.
The book has an interesting take on cancer and remission. There are over 100 studies about DDW, who knew! I am on page 38 now.
I also read a book about Light, Radiation and You by John Ott. It was a good read.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test

Manatee
Posts: 5
Joined: Fri Jun 14, 2024 6:07 am

Re: Update

Postby Manatee » Sat Jun 21, 2025 4:41 pm

Beach, congrats on making it to this milestone and glad to hear about the ctDNA. New to the board, glad to meet you.

Manatee

User avatar
beach sunrise
Posts: 1238
Joined: Thu Mar 05, 2020 7:14 pm

Re: Update

Postby beach sunrise » Sun Jun 22, 2025 2:02 pm

Hi Manatee, nice to meet and welcome you here. You will find much support and valuable info on this forum.
When you get a chance you might want to create a signature. It will help tremendously if/when looking for advice or experiences.
Beach
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test

User avatar
beach sunrise
Posts: 1238
Joined: Thu Mar 05, 2020 7:14 pm

Re: Update

Postby beach sunrise » Tue Jun 24, 2025 7:38 pm

ND burst my bubble by pointing out what I missed on bloodwork. Iron is on high side trying to go from Fe+2 to Fe+3. Not good. So, plan is to up 3 supplements to try to bring it down and watch iron in my diet. ferritin was in the upper range of normal.
Always something out of sync needing correction. Sigh
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test


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