Have not seen things this quiet in years
Sending best wishes to all CTalk members,
wherever present, on their Journeys.
In Harmony
CRguy
WOW is it ever quiet in here !!!
WOW is it ever quiet in here !!!
Have not seen things this quiet in years
Sending best wishes to all CTalk members,
wherever present, on their Journeys.
In Harmony
CRguy
Caregiver x 5
Stage IV A rectal cancer/lung met
18 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
Stage IV A rectal cancer/lung met
18 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
-
beach sunrise
- Posts: 1220
- Joined: Thu Mar 05, 2020 7:14 pm
Re: WOW is it ever quiet in here !!!
It sure has! I am hoping it means people are doing good.
We've been working and gardening. So busy busy this time of year.
We've been working and gardening. So busy busy this time of year.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test
Re: WOW is it ever quiet in here !!!
And we are at Brigham and Women's Hospital for cryoablation - so, also busy. Stay well and keep fighting the good fight, everyone.
-
O Stoma Mia
- Posts: 1736
- Joined: Sat Jun 22, 2013 6:29 am
- Location: On vacation.
Re: WOW is it ever quiet in here !!!
CRguy,
Just a note to say "Thank You" for your support of Colon Talk over all these years and for making this a safe and secure place for us to visit whenever we are in need of support.
There is a whole generation of CRC folks who view you with great admiration and gratitude for all of the contributions that you have made to this message board over the years.
Just a note to say "Thank You" for your support of Colon Talk over all these years and for making this a safe and secure place for us to visit whenever we are in need of support.
There is a whole generation of CRC folks who view you with great admiration and gratitude for all of the contributions that you have made to this message board over the years.
Re: WOW is it ever quiet in here !!!
My dear friend OSM
Thank you so much.
I am so grateful, and humbled, by your comments and support, always.
So many CTalkers have endured more than I
... BUTT we are ALL here to support each other
and you are a perfect example of that sharing and caring.
Mega Cheers to all on the Journey
...and especially O Stoma Mia
Peace Love and Harmony
CRguy
Thank you so much.
I am so grateful, and humbled, by your comments and support, always.
So many CTalkers have endured more than I
... BUTT we are ALL here to support each other
and you are a perfect example of that sharing and caring.
Mega Cheers to all on the Journey
...and especially O Stoma Mia
Peace Love and Harmony
CRguy
Caregiver x 5
Stage IV A rectal cancer/lung met
18 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
Stage IV A rectal cancer/lung met
18 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
Re: WOW is it ever quiet in here !!!
After 7 years of so many ups and downs, I find it better for my mental health to stay away from all things cancer-related, including this forum. I've accepted that we're in this for the (hopefully??) long term; stable periods split by intense crises... We're in a stable phase right now, so I try to enjoy it and not worry too much about the next catastrophe!
But I often think of all the forum's members and occasionally drop by to see what's going on
But I often think of all the forum's members and occasionally drop by to see what's going on
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary
Tumors: L4 04/18; left adrenal gland & small lung nodules 03/19
rectum 02/22 (pT3 pN0 stage 2A); L3 09/22
Surgeries: intestinal resect. 05/18 (no cancer - Crohn's); adrenalectomy 02/20
L3-L4-L5 fusion and corpectomy 05/20; LAR 04/22; ileo reversal 09/22
L2-L3 fusion and corpectomy 09/22
Treatments: EBRT 04/18; SBRT 02/19; Failed adjuvant Xelox ; Folfiri/Avastin 03/19 - 01/20
adjuvant chemorad (Xeloda) 06/22; SBRT 11/22; Xeloda/Avastin since 01/24
Tumors: L4 04/18; left adrenal gland & small lung nodules 03/19
rectum 02/22 (pT3 pN0 stage 2A); L3 09/22
Surgeries: intestinal resect. 05/18 (no cancer - Crohn's); adrenalectomy 02/20
L3-L4-L5 fusion and corpectomy 05/20; LAR 04/22; ileo reversal 09/22
L2-L3 fusion and corpectomy 09/22
Treatments: EBRT 04/18; SBRT 02/19; Failed adjuvant Xelox ; Folfiri/Avastin 03/19 - 01/20
adjuvant chemorad (Xeloda) 06/22; SBRT 11/22; Xeloda/Avastin since 01/24
Re: WOW is it ever quiet in here !!!
I drop by from time-to-time, and I like to read what informative CTalkers say about onging medical developments.
Male 78 yrs.
DX 7/11/2007 at age 61 with Stage IVa Rectal with mets to lung
8/2007 to 9/2007 Chemo (Fufa?) & Radiation
12/2007 LAR + Colonic J-Pouch + Ileo
1/2008 to 9/2008 Chemo (Oxaliplatin) 15 Sessions!
11/2008 Ileo reversal
5/2009 Left lower lobectomy, with two(?) lymph nodes removed.
11/2024 Still NED
01/21 to present: Skin Cancer- ugh!
DX 7/11/2007 at age 61 with Stage IVa Rectal with mets to lung
8/2007 to 9/2007 Chemo (Fufa?) & Radiation
12/2007 LAR + Colonic J-Pouch + Ileo
1/2008 to 9/2008 Chemo (Oxaliplatin) 15 Sessions!
11/2008 Ileo reversal
5/2009 Left lower lobectomy, with two(?) lymph nodes removed.
11/2024 Still NED
01/21 to present: Skin Cancer- ugh!
Re: WOW is it ever quiet in here !!!
claudine wrote:After 7 years of so many ups and downs, I find it better for my mental health to stay away from all things cancer-related, including this forum. I've accepted that we're in this for the (hopefully??) long term; stable periods split by intense crises... We're in a stable phase right now, so I try to enjoy it and not worry too much about the next catastrophe!
But I often think of all the forum's members and occasionally drop by to see what's going on
But do you ever find that a part of you still wants to check in, even if just out of curiosity or habit?
55 year at the time of diagnosis, male
Diagnosed with T1,T2 N0 M0 rectal cancer
Total neoadjuvant therapy or TNT (chemoradiation followed by systemic chemotherapy)
Negative since Feb. '17
No surgery
Watch&Wait approach
I don’t come much to the forum , so if this is not updated it means I remain negative!
Wish good luck to all!
Diagnosed with T1,T2 N0 M0 rectal cancer
Total neoadjuvant therapy or TNT (chemoradiation followed by systemic chemotherapy)
Negative since Feb. '17
No surgery
Watch&Wait approach
I don’t come much to the forum , so if this is not updated it means I remain negative!
Wish good luck to all!
Re: WOW is it ever quiet in here !!!
But do you ever find that a part of you still wants to check in, even if just out of curiosity or habit?
Oh absolutely - if only to make sure the "old timers" are still around and kicking! But at first I was coming here for information, as we all do - the diagnosis is so overwhelming. I still do, when DH faces a new challenge.
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary
Tumors: L4 04/18; left adrenal gland & small lung nodules 03/19
rectum 02/22 (pT3 pN0 stage 2A); L3 09/22
Surgeries: intestinal resect. 05/18 (no cancer - Crohn's); adrenalectomy 02/20
L3-L4-L5 fusion and corpectomy 05/20; LAR 04/22; ileo reversal 09/22
L2-L3 fusion and corpectomy 09/22
Treatments: EBRT 04/18; SBRT 02/19; Failed adjuvant Xelox ; Folfiri/Avastin 03/19 - 01/20
adjuvant chemorad (Xeloda) 06/22; SBRT 11/22; Xeloda/Avastin since 01/24
Tumors: L4 04/18; left adrenal gland & small lung nodules 03/19
rectum 02/22 (pT3 pN0 stage 2A); L3 09/22
Surgeries: intestinal resect. 05/18 (no cancer - Crohn's); adrenalectomy 02/20
L3-L4-L5 fusion and corpectomy 05/20; LAR 04/22; ileo reversal 09/22
L2-L3 fusion and corpectomy 09/22
Treatments: EBRT 04/18; SBRT 02/19; Failed adjuvant Xelox ; Folfiri/Avastin 03/19 - 01/20
adjuvant chemorad (Xeloda) 06/22; SBRT 11/22; Xeloda/Avastin since 01/24
Re: WOW is it ever quiet in here !!!
Yeah, it’s been super quiet lately. Hopefully, that means people are doing well. I still check in sometimes, just to see how everyone’s holding up. Life gets busy, but it’s nice to know the regulars are still around.
Re: WOW is it ever quiet in here !!!
All forums have died.
All people have moved to Facebook, Instagram and TikTok.
Except "Man up to Cancer" community that moved from Facebook to Circle.
All people have moved to Facebook, Instagram and TikTok.
Except "Man up to Cancer" community that moved from Facebook to Circle.
Last edited by Utwo on Mon May 05, 2025 9:36 am, edited 1 time in total.
58 yo male at diagnosis: T1bN0M0, 0/15 nodes, low grade/moderately differentiated adenocarcinoma
03/2016 colonoscopy: 2 small polyps removed in left colon; CEA = 1.3
04/2016 colonoscopy: caecum sessile 3.5 cm polyp piecemeal removed with kind of clear margins
05/2016 "prophylactic" laparoscopic right hemicolectomy - bleeding, leak, infection
06/2017 CT scan, colonoscopy OK; CEA = 1.6
A lot of funny stuff discovered by CT scans in liver, kidney, lungs, arteries, gallbladder, lymph node, pancreas
03/2016 colonoscopy: 2 small polyps removed in left colon; CEA = 1.3
04/2016 colonoscopy: caecum sessile 3.5 cm polyp piecemeal removed with kind of clear margins
05/2016 "prophylactic" laparoscopic right hemicolectomy - bleeding, leak, infection
06/2017 CT scan, colonoscopy OK; CEA = 1.6
A lot of funny stuff discovered by CT scans in liver, kidney, lungs, arteries, gallbladder, lymph node, pancreas
Re: WOW is it ever quiet in here !!!
Utwo wrote:All forums have died.
All people have moved to Facebook, Instagram and TikTok.
Except Colontown that moved from Facebook to Circle.
Feels like we're the last ones turning off the lights in the old neighborhood. At least the signal-to-noise ratio’s decent now
Re: WOW is it ever quiet in here !!!
I hope everyone is doing ok. Btw, has anyone on here been in contact with roadrunner? He hasn't posted in awhile. When forum members don't post in awhile, I get worried. Roadrunner, I hope you are ok and doing well.
Paige
Paige
02/20 Rectal Cancer dx - 4 cm mass; located 9 cm from AV
CEA 1.4; 0.9; 0.9; 1.2; 1.0; 0.8; 1.1; 1.0; 1.1; 1.7; 1.8; 1.8; 1.9
2.4; 2.3; 2.8; 2.2, 2.8, 3.2; 3.0; 1.6; 2.0; 1.2; 1.4; 1.2; 1.0; 1.2; 1.2
04/20 ST Radiation; 04/20 LAR surgery w/ileostomy; ypT3N1bM0; MSS, KRAS G12A
05/20 CAPEOX; 08/20 Ileostomy reversal
12/20 CT scan; lung nodules (watch and wait);
11/22 lung nodule biopsy positive for RC met;
1/23 VATS right lower lobe wedge resection
FOLFIRI 10 cycles
4/24 left brain craniotomy (RC met)
CEA 1.4; 0.9; 0.9; 1.2; 1.0; 0.8; 1.1; 1.0; 1.1; 1.7; 1.8; 1.8; 1.9
2.4; 2.3; 2.8; 2.2, 2.8, 3.2; 3.0; 1.6; 2.0; 1.2; 1.4; 1.2; 1.0; 1.2; 1.2
04/20 ST Radiation; 04/20 LAR surgery w/ileostomy; ypT3N1bM0; MSS, KRAS G12A
05/20 CAPEOX; 08/20 Ileostomy reversal
12/20 CT scan; lung nodules (watch and wait);
11/22 lung nodule biopsy positive for RC met;
1/23 VATS right lower lobe wedge resection
FOLFIRI 10 cycles
4/24 left brain craniotomy (RC met)
-
O Stoma Mia
- Posts: 1736
- Joined: Sat Jun 22, 2013 6:29 am
- Location: On vacation.
Re: WOW is it ever quiet in here !!!
utahgal7 wrote:I hope everyone is doing ok. Btw, has anyone on here been in contact with roadrunner? He hasn't posted in awhile. When forum members don't post in awhile, I get worried. Roadrunner, I hope you are ok and doing well.
Paige
No, I have not been in contact with roadrunner. However, over the past few months I have noticed 'roadrunner' logins appearing here on the Forum almost every day, but no recent 'roadrunner' posts to the message board. That's all the information I have.
Re: WOW is it ever quiet in here !!!
O Stoma Mia wrote:utahgal7 wrote:I hope everyone is doing ok. Btw, has anyone on here been in contact with roadrunner? He hasn't posted in awhile. When forum members don't post in awhile, I get worried. Roadrunner, I hope you are ok and doing well.
Paige
No, I have not been in contact with roadrunner. However, over the past few months I have noticed 'roadrunner' logins appearing here on the Forum almost every day, but no recent 'roadrunner' posts to the message board. That's all the information I have.
OSM, thank you for letting me know!
02/20 Rectal Cancer dx - 4 cm mass; located 9 cm from AV
CEA 1.4; 0.9; 0.9; 1.2; 1.0; 0.8; 1.1; 1.0; 1.1; 1.7; 1.8; 1.8; 1.9
2.4; 2.3; 2.8; 2.2, 2.8, 3.2; 3.0; 1.6; 2.0; 1.2; 1.4; 1.2; 1.0; 1.2; 1.2
04/20 ST Radiation; 04/20 LAR surgery w/ileostomy; ypT3N1bM0; MSS, KRAS G12A
05/20 CAPEOX; 08/20 Ileostomy reversal
12/20 CT scan; lung nodules (watch and wait);
11/22 lung nodule biopsy positive for RC met;
1/23 VATS right lower lobe wedge resection
FOLFIRI 10 cycles
4/24 left brain craniotomy (RC met)
CEA 1.4; 0.9; 0.9; 1.2; 1.0; 0.8; 1.1; 1.0; 1.1; 1.7; 1.8; 1.8; 1.9
2.4; 2.3; 2.8; 2.2, 2.8, 3.2; 3.0; 1.6; 2.0; 1.2; 1.4; 1.2; 1.0; 1.2; 1.2
04/20 ST Radiation; 04/20 LAR surgery w/ileostomy; ypT3N1bM0; MSS, KRAS G12A
05/20 CAPEOX; 08/20 Ileostomy reversal
12/20 CT scan; lung nodules (watch and wait);
11/22 lung nodule biopsy positive for RC met;
1/23 VATS right lower lobe wedge resection
FOLFIRI 10 cycles
4/24 left brain craniotomy (RC met)
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