5 yrs since primary surgery

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beach sunrise
Posts: 1178
Joined: Thu Mar 05, 2020 7:14 pm

5 yrs since primary surgery

Postby beach sunrise » Mon Jan 20, 2025 2:35 am

It's been a long ride so far. I remember thinking every thought that could possibly run thru ones head as I was getting ready to go to the hospital for a 10-12 1/2 hr surgery. I had to be there at 4 am. What a rough and emotional day. I watched SAGE video of similar surgery beforehand as I am not one that likes surprises.
5 years later still battling the beast even though I am medically declared NED at this time. I am not one who takes that lightly because I know some can be NED forever and some are blindsided months to years down the road with recurrences. I stay pro-active and will until I feel I am truly out of the woods.
Long Ride!!!
PS thinking I need a Harley or Indian of my own as a 5 yr anniversary :)
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test

utahgal7
Posts: 270
Joined: Fri Sep 11, 2020 12:04 pm

Re: 5 yrs since primary surgery

Postby utahgal7 » Mon Jan 20, 2025 9:17 am

I admire your strength, courage, resilience and perseverance fighting this beast of a disease.

Keep fighting ♥
02/20 Rectal Cancer dx - 4 cm mass; located 9 cm from AV
CEA 2.7; 0.9; 1.4; 0.9; 0.9; 1.2; 1.0; 0.8; 1.1; 1.0; 1.1; 1.7; 1.8; 1.8
1.9; 2.4; 2.3; 2.8; 2.2, 2.8, 3.2; 3.0; 1.6; 2.0; 1.2; 1.4; 1.2; 1.0
04/20 ST Radiation; 04/20 LAR surgery w/ileostomy; ypT3N1bM0; MSS, KRAS G12A
05/20 CAPEOX; 08/20 Ileostomy reversal
12/20 CT scan; lung nodules (watch and wait);
11/22 lung nodule biopsy positive for RC met;
1/23 VATS right lower lobe wedge resection
FOLFIRI 10 cycles
4/24 left brain craniotomy (RC met)

jts
Posts: 84
Joined: Sat Aug 24, 2019 3:07 pm

Re: 5 yrs since primary surgery

Postby jts » Wed Jan 22, 2025 9:03 am

Hi, another Dx. class of 2019 checking in. Congratulations!

That is a big milestone. But I know you would be the last person to get complacent.
Male 42 — stage IV RC
NRAS mutant - KRAS, BRAF wt
08/2019 DX 6 cm long tumor
09-10/2019 Chemo-radiation
12/2019 TME Surgery, clear margins, 7/16 nodes positive
Pathology: ypT3 ypN2b M0
01-06/2020 - FOLFOX
CEA only goes up during chemo: 2.4 --> 6.2
07/2020 6 mm tumor in lung, was growing fast during chemo
09/2020 VATS
01/2021 new 5mm cyst in liver, CEA continues to increase --> 8
06/2021 CEA down to 6. Cyst not visible anymore.
05/2023 CEA fluctuates between 4 and 6. Scans have been clear.

User avatar
beach sunrise
Posts: 1178
Joined: Thu Mar 05, 2020 7:14 pm

Re: 5 yrs since primary surgery

Postby beach sunrise » Thu Jan 23, 2025 2:57 am

Thanks yall! That means alot to me.
Rp is the one who taught me courage to plan my course of treatment not them by straightening my spine and keeping my feet planted turning No's into Yes's...
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test

hart2hart
Posts: 803
Joined: Wed Nov 23, 2011 10:46 pm

Re: 5 yrs since primary surgery

Postby hart2hart » Sat Feb 15, 2025 11:03 pm

Keep fighting hard!
You can do it, we know you can.
Know that Pete and Julie are thinking of you and sending you lots of virtual hugs!
Pete (hubby) Stage 3 VLRC - 11/11
Chemo/Rad/Ace Surgeon - 11/11 - 4/12
Oxi/Xeloda (Severe Toxicity to OXI) - 5/12 - 6/12
5Fu Only - 8/12 - 2/13
Liver Resection/Hai Pump/Folfiri/FUDR - 10/13 - 5/14
Lung Ablation (MSKCC) - 12/31/2014
Xeloda through 4/2015
NED - 1/2015 - 2/2025
Hai Pump/Port Removed - 1/2020

User avatar
beach sunrise
Posts: 1178
Joined: Thu Mar 05, 2020 7:14 pm

Re: 5 yrs since primary surgery

Postby beach sunrise » Sun Feb 16, 2025 6:45 pm

Thank you so much, Pete and Julie! That message means a lot to me.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test


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