15 year NED stage 4

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radnyc
Posts: 448
Joined: Tue Apr 06, 2010 6:32 pm

15 year NED stage 4

Postby radnyc » Tue Jan 14, 2025 8:34 am

Hi folks, haven’t been on here for quite some time. Just reached 15 years of cancer free survival from stage 4, mets to liver. Quite a ride, thankful for the care I received at Memorial Sloan, the support from friends and family and a good amount of luck. It’s not an easy journey, but things are getting better with people being cured and remaining free of recurrence more and more. Stay positive, hopeful and don’t give up friends!

Peace
Al
DX Jan 2010, at age 47
Feb - colon resection - 2/17 nodes positive
April - liver mets - Stage 4
3 months Folfox chemotherapy
August '10 liver resection and HAI pump
7 months chemo FUDR HAI and Folfiri systemic
NED since August 2010
Last treatment April 2011
HAI Pump removed Dec 2015

User avatar
beach sunrise
Posts: 1178
Joined: Thu Mar 05, 2020 7:14 pm

Re: 15 year NED stage 4

Postby beach sunrise » Thu Jan 16, 2025 2:24 am

Always makes me smile to read updates like yours! Congrats, I know it's gotta feel good.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test

tater
Posts: 134
Joined: Wed Jul 19, 2017 5:53 pm

Re: 15 year NED stage 4

Postby tater » Tue Jan 21, 2025 9:05 pm

thank you this makes me happy today. Great news
DH to 38 wife w/kids
Stage 3C DX 3/3/17 CEA 29
5-fu and radiation ended May 17, 2017
Stage 4 External iliac node July 17, 2017
FOLFOX + Avistan July 18 2017 CEA 2.3
Nov 9, 2017 Coloanal Anastomosis, Hysterectomy & External Nodes Removed W/ileostomy
Clear Margins NED
CEA 1.5 12/17, 2.1 2/18, 2.3 6/18, 1.1 9/18, 1.3 12/18, 1.8 3/19, 2.5 6/19
Clear CT and MRI on 2/5/2018, 9/18 Clear Scans
Reversal Surgery 6/26/18
Small Spot on right ureter surgery 10/30/19 adhered to artery
Dec. 2 start 12 rounds FOLFIRI

utahgal7
Posts: 270
Joined: Fri Sep 11, 2020 12:04 pm

Re: 15 year NED stage 4

Postby utahgal7 » Wed Jan 22, 2025 8:11 am

This is awesome news! Congratulations!
02/20 Rectal Cancer dx - 4 cm mass; located 9 cm from AV
CEA 2.7; 0.9; 1.4; 0.9; 0.9; 1.2; 1.0; 0.8; 1.1; 1.0; 1.1; 1.7; 1.8; 1.8
1.9; 2.4; 2.3; 2.8; 2.2, 2.8, 3.2; 3.0; 1.6; 2.0; 1.2; 1.4; 1.2; 1.0
04/20 ST Radiation; 04/20 LAR surgery w/ileostomy; ypT3N1bM0; MSS, KRAS G12A
05/20 CAPEOX; 08/20 Ileostomy reversal
12/20 CT scan; lung nodules (watch and wait);
11/22 lung nodule biopsy positive for RC met;
1/23 VATS right lower lobe wedge resection
FOLFIRI 10 cycles
4/24 left brain craniotomy (RC met)

jts
Posts: 84
Joined: Sat Aug 24, 2019 3:07 pm

Re: 15 year NED stage 4

Postby jts » Wed Jan 22, 2025 8:59 am

That is great! What an anniversary. Do you still get scanned every year?
Male 42 — stage IV RC
NRAS mutant - KRAS, BRAF wt
08/2019 DX 6 cm long tumor
09-10/2019 Chemo-radiation
12/2019 TME Surgery, clear margins, 7/16 nodes positive
Pathology: ypT3 ypN2b M0
01-06/2020 - FOLFOX
CEA only goes up during chemo: 2.4 --> 6.2
07/2020 6 mm tumor in lung, was growing fast during chemo
09/2020 VATS
01/2021 new 5mm cyst in liver, CEA continues to increase --> 8
06/2021 CEA down to 6. Cyst not visible anymore.
05/2023 CEA fluctuates between 4 and 6. Scans have been clear.

radnyc
Posts: 448
Joined: Tue Apr 06, 2010 6:32 pm

Re: 15 year NED stage 4

Postby radnyc » Sat Jan 25, 2025 10:20 am

No more scans or CEA test. Only colonoscopy every 3-5 years.
DX Jan 2010, at age 47
Feb - colon resection - 2/17 nodes positive
April - liver mets - Stage 4
3 months Folfox chemotherapy
August '10 liver resection and HAI pump
7 months chemo FUDR HAI and Folfiri systemic
NED since August 2010
Last treatment April 2011
HAI Pump removed Dec 2015

hart2hart
Posts: 803
Joined: Wed Nov 23, 2011 10:46 pm

Re: 15 year NED stage 4

Postby hart2hart » Sat Feb 15, 2025 11:01 pm

Congrats, Ray!

Just came to the site after being off for a long time.
Pete is also doing very well.
Still at Sloan. Sees Sandy and Trish since Dr. Kemeny retired.
Scans and bloodwork now every two years! We feel very thankful, grateful and blessed. I can remember how scared we were when first diagnosed. To all newbies here and everyone fighting like heck, keep the fight and I think the biggest recommendation we received was to get more than one opinion and ask LOTS of questions!

Best wishes Ray,

Julie and Pete
Pete (hubby) Stage 3 VLRC - 11/11
Chemo/Rad/Ace Surgeon - 11/11 - 4/12
Oxi/Xeloda (Severe Toxicity to OXI) - 5/12 - 6/12
5Fu Only - 8/12 - 2/13
Liver Resection/Hai Pump/Folfiri/FUDR - 10/13 - 5/14
Lung Ablation (MSKCC) - 12/31/2014
Xeloda through 4/2015
NED - 1/2015 - 2/2025
Hai Pump/Port Removed - 1/2020


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