Feeling pretty anxious already for my next scan

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Pagola44
Posts: 423
Joined: Mon Jul 03, 2023 7:57 pm

Feeling pretty anxious already for my next scan

Postby Pagola44 » Thu Dec 12, 2024 8:38 pm

I know everyone has 'scanxiety' but i'm starting to really suffer from it.

My next CT scan is in March 2025, which will be 1 year post treatment. My blood test has been fine, but it's never been bad, even when I was dragonised. So i don't find my blood tests that reassuring.

Even though it's still 3 months to go, I'm starting to get really really anxious. On my last scan, the oncologist said there were a few small 'dust like' spots on my lungs and not to be worried. But i've read and seen a lot of people who have been told not to worry but things ended up going south.

I just keep freaking out, expecting the worst. It makes me feel super anxious and a lot of dread.
29m Male.
DX: CC, Right Hepatic Flexure, 4cm, T3, G2, M0
Stage III3B , Positive lymph nodes: (2/20)
Baseline CEA value: 1.98
LVI and PNI: absent
Surgical margins: clear
No lynch Syndrome or MSI
Primary surgery type: Laparascopic

User avatar
beach sunrise
Posts: 1166
Joined: Thu Mar 05, 2020 7:14 pm

Re: Feeling pretty anxious already for my next scan

Postby beach sunrise » Fri Dec 13, 2024 12:44 am

Most people have junk showing up on scans but when you have a cancer dx it is worrisome. I feel ya on that!
I have a scan Jan 6th. On last report, no mention of anything going on. When Germany reviewed the scan they noticed a "cloudy spot" in RLL. Suggested scan in 3 months to see if resolved or evolved into anything. So, I'm anxious too.
Just take it a day at a time tell you get the report. Harder said than done, I know. But try.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test

utahgal7
Posts: 265
Joined: Fri Sep 11, 2020 12:04 pm

Re: Feeling pretty anxious already for my next scan

Postby utahgal7 » Fri Dec 13, 2024 8:25 am

Pagola 44,

Beach sunrise is right about taking things one day at a time. It is important to stay present and to not think ahead. I would say to yourself, "Today, I am NED." Tell yourself this everyday. Because unless you are provided with information to the contrary, as far as you know, you are NED.

Another aspect to consider is the fact that we really don't have any control over what may or may not show up on scans. You have to look at the factors you can control. Are you eating healthy food daily (at least 5 servings of fruits/vegetables daily)? Are you exercising (at least 150 minutes of moderate exercise each week)? Are you getting 7-9 hours of sleep each night? Are you refraining from alcohol and tobacco? Are you controlling your stress levels? These are all things all within your control. You can only worry about the things that you can control.

Good luck to you,

Paige
02/20 Rectal Cancer dx - 4 cm mass; located 9 cm from AV
CEA 2.7; 0.9; 1.4; 0.9; 0.9; 1.2; 1.0; 0.8; 1.1; 1.0; 1.1; 1.7; 1.8; 1.8
1.9; 2.4; 2.3; 2.8; 2.2, 2.8, 3.2; 3.0; 1.6; 2.0; 1.2; 1.4; 1.2; 1.0
04/20 ST Radiation; 04/20 LAR surgery w/ileostomy; ypT3N1bM0; MSS, KRAS G12A
05/20 CAPEOX; 08/20 Ileostomy reversal
12/20 CT scan; lung nodules (watch and wait);
11/22 lung nodule biopsy positive for RC met;
1/23 VATS right lower lobe wedge resection
FOLFIRI 10 cycles
4/24 left brain craniotomy (RC met)

zephyr
Posts: 400
Joined: Thu Aug 18, 2016 7:31 am

Re: Feeling pretty anxious already for my next scan

Postby zephyr » Fri Dec 13, 2024 12:17 pm

This probably isn't very healthy, but it's a practical response for me. I tend to go to the worst outcome and work my way back. It goes something like this: ok, this is it, things are going south, and I have 3 months to prepare. What needs to be done before then in case I can't easily get it done after because of chemo schedules or whatever? Car maintenance? Probably don't want the car breaking down when you're least able to handle it. Maybe clean out old paperwork to make room for more later? Kitchen cabinets filled with expired cans and spices? In my case, I head to my guest room and start pulling out things to donate: clothes that haven't been worn in over a year, art supplies that aren't being used, small appliances I was sure I couldn't live without but only used once and then put on a shelf. I don't want my husband to have to deal with them later, or maybe another caregiver to be required to search through the unused to find what's needed. Again, maybe it's not a healthy response but at least I feel like I'm DOING something constructive. Plus it distracts me. It's a kind of I can't fix the cancer so what CAN I fix?
Nov-2009 Early stage CRC, routine colonoscopy
2010-2014 F/U colonoscopies, all clear
Jun-2016 CRC during F/U colonoscopy, surgery, Stage 4, KRAS, MSS
Aug-2016-May-2018 Folfox, 5FU, Folfiri & Avastin
Aug/Sep-2018 YAG laser surgeries (Germany), 11 nodules removed
Nov-2018 clean CT scan
Mar-2019 New lung nodules
Apr-2019 Dec-2020 Xeloda/Avastin, SBRT, cont. Xeloda/Avastin
Mar-2021 Forfiri/Avastin
Mar-2022 Ablation & Thoracotomy
Feb-2023 Folfiri & Avastin
Nov-2023 Xeloda & Avastin



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