16 Years
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Surroundedbylove
- Posts: 3130
- Joined: Tue Dec 16, 2008 6:43 am
- Location: Seattle
16 Years
Just a message of hope today as I celebrate 16 years of survival. This board meant the world to me as I navigated my year of aggressive treatment and the years of follow-up.
Surroundedbylove
Rectal Cancer @ 43, '08
Clinical: T3,N2a,MX (IIIB)
6 wks XELOX & radiation
LAR, colonic j-pouch, & temp ileo '09
Surgical: ypT3,ypN0,ypMX (0 of 20 nodes)
FOLFOX; XELOX
Ileo Takedown ‘09
LARS for 10 years before learning it is finally being studied
InterStim Sacral Nerve Neuromodulator 2019
Rectal Cancer @ 43, '08
Clinical: T3,N2a,MX (IIIB)
6 wks XELOX & radiation
LAR, colonic j-pouch, & temp ileo '09
Surgical: ypT3,ypN0,ypMX (0 of 20 nodes)
FOLFOX; XELOX
Ileo Takedown ‘09
LARS for 10 years before learning it is finally being studied
InterStim Sacral Nerve Neuromodulator 2019
Re: 16 Years
You are, and always have been, living proof of that Hope which you share again with us all today.
Sincere best wishes and
Mega CHEERS my friend
CRguy on the Journey
Sincere best wishes and
Mega CHEERS my friend
CRguy on the Journey
Caregiver x 5
Stage IV A rectal cancer/lung met
18 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
Stage IV A rectal cancer/lung met
18 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
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Surroundedbylove
- Posts: 3130
- Joined: Tue Dec 16, 2008 6:43 am
- Location: Seattle
Re: 16 Years
Thank you so much and so nice to see a message from you, my long time friend here!
Surroundedbylove
Rectal Cancer @ 43, '08
Clinical: T3,N2a,MX (IIIB)
6 wks XELOX & radiation
LAR, colonic j-pouch, & temp ileo '09
Surgical: ypT3,ypN0,ypMX (0 of 20 nodes)
FOLFOX; XELOX
Ileo Takedown ‘09
LARS for 10 years before learning it is finally being studied
InterStim Sacral Nerve Neuromodulator 2019
Rectal Cancer @ 43, '08
Clinical: T3,N2a,MX (IIIB)
6 wks XELOX & radiation
LAR, colonic j-pouch, & temp ileo '09
Surgical: ypT3,ypN0,ypMX (0 of 20 nodes)
FOLFOX; XELOX
Ileo Takedown ‘09
LARS for 10 years before learning it is finally being studied
InterStim Sacral Nerve Neuromodulator 2019
Re: 16 Years
Yes .... we have been around a while !
BUTT .... still good to see you posting
Cheers and Harmony
CRguy
BUTT .... still good to see you posting
Cheers and Harmony
CRguy
Caregiver x 5
Stage IV A rectal cancer/lung met
18 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
Stage IV A rectal cancer/lung met
18 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
Re: 16 Years
surroundedbylove,
Thank you for sharing your story. You, myself and countless others have found this forum to not only be a source of information but also a place to develop lasting friendships.
Glad that you are still here with all of us ♥
Paige
Thank you for sharing your story. You, myself and countless others have found this forum to not only be a source of information but also a place to develop lasting friendships.
Glad that you are still here with all of us ♥
Paige
02/20 Rectal Cancer dx - 4 cm mass; located 9 cm from AV
CEA 1.4; 0.9; 0.9; 1.2; 1.0; 0.8; 1.1; 1.0; 1.1; 1.7; 1.8; 1.8; 1.9
2.4; 2.3; 2.8; 2.2, 2.8, 3.2; 3.0; 1.6; 2.0; 1.2; 1.4; 1.2; 1.0; 1.2; 1.2
04/20 ST Radiation; 04/20 LAR surgery w/ileostomy; ypT3N1bM0; MSS, KRAS G12A
05/20 CAPEOX; 08/20 Ileostomy reversal
12/20 CT scan; lung nodules (watch and wait);
11/22 lung nodule biopsy positive for RC met;
1/23 VATS right lower lobe wedge resection
FOLFIRI 10 cycles
4/24 left brain craniotomy (RC met)
CEA 1.4; 0.9; 0.9; 1.2; 1.0; 0.8; 1.1; 1.0; 1.1; 1.7; 1.8; 1.8; 1.9
2.4; 2.3; 2.8; 2.2, 2.8, 3.2; 3.0; 1.6; 2.0; 1.2; 1.4; 1.2; 1.0; 1.2; 1.2
04/20 ST Radiation; 04/20 LAR surgery w/ileostomy; ypT3N1bM0; MSS, KRAS G12A
05/20 CAPEOX; 08/20 Ileostomy reversal
12/20 CT scan; lung nodules (watch and wait);
11/22 lung nodule biopsy positive for RC met;
1/23 VATS right lower lobe wedge resection
FOLFIRI 10 cycles
4/24 left brain craniotomy (RC met)
Re: 16 Years
Best wishes and good luck to you,
Taexali
Taexali
Male 78 yrs.
DX 7/11/2007 at age 61 with Stage IVa Rectal with mets to lung (17 years ago)
8/2007 to 9/2007 Chemo (Fufa?) & Radiation
12/2007 LAR + Colonic J-Pouch + Ileo
1/2008 to 9/2008 Chemo (Oxaliplatin) 15 Sessions!
11/2008 Ileo reversal
5/2009 Left lower lobectomy, with two(?) lymph nodes removed.
11/2024 Still NED
01/21 to present: Skin Cancer- ugh!
DX 7/11/2007 at age 61 with Stage IVa Rectal with mets to lung (17 years ago)
8/2007 to 9/2007 Chemo (Fufa?) & Radiation
12/2007 LAR + Colonic J-Pouch + Ileo
1/2008 to 9/2008 Chemo (Oxaliplatin) 15 Sessions!
11/2008 Ileo reversal
5/2009 Left lower lobectomy, with two(?) lymph nodes removed.
11/2024 Still NED
01/21 to present: Skin Cancer- ugh!
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JP66
- Posts: 64
- Joined: Sun Jan 21, 2024 8:42 am
- Facebook Username: joseph peck
- Location: Westchester, NY
Re: 16 Years
Sbl -
First congrats on 16 years. So great to hear long term success stories!
But, like most folks I do have a personal reason for posting as well
I'm a relative newbie here. At the moment I have an ileostomy, but I am scheduled for reversal surgery in January. I just read your discussion from 2009-2011 about your experiences with LARS, but my question is this:
Can you summarize your top 3 pieces of advice for a newbie with an upcoming reversal?
First congrats on 16 years. So great to hear long term success stories!
But, like most folks I do have a personal reason for posting as well
I'm a relative newbie here. At the moment I have an ileostomy, but I am scheduled for reversal surgery in January. I just read your discussion from 2009-2011 about your experiences with LARS, but my question is this:
Can you summarize your top 3 pieces of advice for a newbie with an upcoming reversal?
Male born 3/66
10/23 TIIIbN+M1 - Stage IV common iliac lymph nodes metastatic
tumor 7.4 cm from AV, moderately differentiated
MSI-MSS; KRAS non-mutant
MD plan - Modified Neo-adjuvant Therapy
12/23 - 27 treatments rad+Xeloda
03/24 6 rounds FOLFIRINOX
5/24 TME/LAR + lymphadenectomy of common iliacs, temporary ileostomy
7/24 6 rounds FOLFOX
1/25 ileostomy reversal
4/25 PET Scan - NED
5/25 Signatera -neg
CEA (10/23-3/25) 1.8,1.3,1.6, 1.8, 1.6,2.1,2.7,2.4,1.4
10/23 TIIIbN+M1 - Stage IV common iliac lymph nodes metastatic
tumor 7.4 cm from AV, moderately differentiated
MSI-MSS; KRAS non-mutant
MD plan - Modified Neo-adjuvant Therapy
12/23 - 27 treatments rad+Xeloda
03/24 6 rounds FOLFIRINOX
5/24 TME/LAR + lymphadenectomy of common iliacs, temporary ileostomy
7/24 6 rounds FOLFOX
1/25 ileostomy reversal
4/25 PET Scan - NED
5/25 Signatera -neg
CEA (10/23-3/25) 1.8,1.3,1.6, 1.8, 1.6,2.1,2.7,2.4,1.4
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