Postby roadrunner » Thu Oct 10, 2024 11:14 pm
I do not have personal knowledge, but one former member of this board, who went by the name of ginabewell, posted a ton of super detailed, well-written stuff about her experiences with the HAI pump. She ended up having great success with it, though there were some bumps along the way. She had one thread that chronicled her whole journey, I believe. I’m not great at searching this site, but you can search her name and her threads come up. You would then just have to do a little poking around to find the HAI pump material. There may be more efficient ways of searching that others can suggest, but this is what I came up with. I hope your mum has success as well!
[Edited to add: ginabewell’s “journey” thread was called “My CRC with liver mets journey.” If you search her name, find one of her posts, then click on her name, that will take you to her page, and this thread is linked at the bottom.]
7/19: RC: Staged IIIA, T2N1M0
approx 4.25 cm, low/mid rectum, mod. well diff.; lung micronodule
8/19-10/19 4 rds.FOLFOX neoadjuvant, 3 w/Oxiplatin (reduced 70-75%)
neoadjuvant chemorad 11/19
4 rounds FOLFOX July-August 2020
ncCR 10/20; biopsies neg
TAE 11/20
Chest CT 3/30/21 growth 2 nodules (3 and 5mm)
VATS 12/8/21 sub-pleural met 7mm.
SBRT nodule 1/22
6/20/22 TAE rectal polyp)
NED from 3/22 - 3/23
4 cycles FOLFIRI
LUL VATS lobectomy 7/7/23
5 cycles FOLFOX
APR 6/24. NED for now