Postby JP66 » Wed Sep 25, 2024 6:46 am
I was going through the exact same situation. Unfortunately my Ostomy nurse is quite inexperienced and was zero help. The strange part was I had no problem with leaks for the first 3 months and only recently started having trouble.
Obviously each situation is different. For me I use Coloplast Solo Mio Flex and the problems started when I switched to a one piece. I was having issues with Peristomal Skin Irritation and was using the "caking method". What I found stopped the leaks was when I switched to a Protective Seal from Coloplast that I would seriously push down on when I placed it on and then going back to a 2 piece where I cut the barrier slightly wider than my Stoma and again seriously pushed on the edges when applying and going from 3 layers of powder and barrier to one layer. I also started using a light application of Cavalon adhesive spray.
Bottom line what worked for me: Coloplast Protective Seal with one layer of powder underneath combined with a wider opening on the barrier ring and Cavalan spray.
Don't know if you're onto this or not already but this guys videos are amazing:
Vegan Ostomy
Male 58 y/o
TIIIbN+M1 - Stage IV (10/23) - 2 left common iliac lymph nodes metastatic
MSI - MSS; KRAS non-mutant
Modified Neo-adjuvant Therapy (FOLFIRINOX instead of FOLFOX)
tumor 7.4 cm from AV, moderately differentiated
12/23 - 27 treatments rad+Xeloda
03/24 6 FOLFIRINOX infusions
4/24 PET Scan and MRI - tumor gone, lymph nodes normal
5/30/24 Total Mesorectal Excision (TME) + lymphadenectomy of 2 left common iliac LN
7/15/24 6 rounds FOLFOX
CEA (10/23-10/24) 1.8,1.3,1.6, 1.8, 1.6,2.1,2.7