Having trouble keeping my bag from leaking

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sigourneyanderson
Posts: 1
Joined: Tue Sep 17, 2024 2:35 am

Having trouble keeping my bag from leaking

Postby sigourneyanderson » Tue Sep 17, 2024 2:40 am

I am having trouble keeping my bag from leaking. I used hollioster adhesive spray and it made all the difference.
But now they have discontinued the product. I need recommendations of what brand of adhesive I should use. If anyone else uses an adhesive to keep the bag on please let me know what kind you use that works. Thank you.

roadrunner
Posts: 516
Joined: Sun Jan 12, 2020 8:46 pm

Re: Having trouble keeping my bag from leaking

Postby roadrunner » Tue Sep 17, 2024 1:01 pm

Sorry, I don’t use adhesive spray, though I’ve had great success with very careful use of barrier rings and very careful wafer application. You may well have done all that, of course!

Since this is a cancer forum, you may not get a ton of response to this kind of request here (though I hope you get something more helpful than mine!) You might well do better at an ostomy forum such as the one below. Good luck from a fellow ostomate!

https://www.meetanostomate.org/discussi ... /index.php
7/19: RC: Staged IIIA, T2N1M0
approx 4.25 cm, low/mid rectum, mod. well diff.; lung micronodule
8/19-10/19 4 rds.FOLFOX neoadjuvant, 3 w/Oxiplatin (reduced 70-75%)
neoadjuvant chemorad 11/19
4 rounds FOLFOX July-August 2020
ncCR 10/20; biopsies neg
TAE 11/20
Chest CT 3/30/21 growth 2 nodules (3 and 5mm)
VATS 12/8/21 sub-pleural met 7mm.
SBRT nodule 1/22
6/20/22 TAE rectal polyp)
NED from 3/22 - 3/23
4 cycles FOLFIRI
LUL VATS lobectomy 7/7/23
5 cycles FOLFOX
APR 6/24. NED for now

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CRguy
Posts: 10503
Joined: Sun Feb 10, 2008 6:00 pm

Re: Having trouble keeping my bag from leaking

Postby CRguy » Tue Sep 17, 2024 8:25 pm

I agree, other OSTOMY specific sites have great info ... BUTT :shock:

Have you talked to your own ostomy nurse ???

Best info I had years ago was to be in the care of first class ostomy nurses post-op.

FYI I used Hollister / wafer / supplies as determined by the nurses I dealt with ...
or maybe ... :oops: :mrgreen:
THEY had to deal with me

Best wishes and Cheers
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Jacques
Posts: 686
Joined: Sun Dec 28, 2014 10:38 am
Location: Occitanie

Re: Having trouble keeping my bag from leaking

Postby Jacques » Wed Sep 18, 2024 4:58 am

Warning: Be sure to check with your ostomy nurse before trying any new adhesive !!

MissMolly wrote:"At a minimum, I suggest strongly: A super-flexible wafer, one-piece system (Coloplast Mio or Cymed MicroSkin); An Ekin Seal (by ConvaTech); Turbot® skin adhesive."
https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=55189&p=437661&hilit=turbot+adhesive#p437661

Turbot® skin adhesive
https://torbot.com/product/product-375/



rdavis12
Posts: 12
Joined: Sun Feb 25, 2024 5:30 pm
Facebook Username: Robbie Davis

Re: Having trouble keeping my bag from leaking

Postby rdavis12 » Mon Sep 23, 2024 12:20 pm

I had major issues with my ilestomy leaking until I started using the belt that attaches to the bag.
Staged T3N1MO at diagnosis 4-23
After TME surgery pathology staged T3NOMO 0/14 nodes involved only other thing on report was Perineural Invasion Present.
6 weeks Radiation Duke
4 mos Capox
CEA-4.7 at Diagnosis
1.8 after Chemo
12-5 LAR surgery
5-4 neg CT CEA 0.9.
Currently in surveillance.

JP66
Posts: 48
Joined: Sun Jan 21, 2024 8:42 am
Facebook Username: joseph peck
Location: Westchester, NY

Re: Having trouble keeping my bag from leaking

Postby JP66 » Wed Sep 25, 2024 6:46 am

I was going through the exact same situation. Unfortunately my Ostomy nurse is quite inexperienced and was zero help. The strange part was I had no problem with leaks for the first 3 months and only recently started having trouble.

Obviously each situation is different. For me I use Coloplast Solo Mio Flex and the problems started when I switched to a one piece. I was having issues with Peristomal Skin Irritation and was using the "caking method". What I found stopped the leaks was when I switched to a Protective Seal from Coloplast that I would seriously push down on when I placed it on and then going back to a 2 piece where I cut the barrier slightly wider than my Stoma and again seriously pushed on the edges when applying and going from 3 layers of powder and barrier to one layer. I also started using a light application of Cavalon adhesive spray.

Bottom line what worked for me: Coloplast Protective Seal with one layer of powder underneath combined with a wider opening on the barrier ring and Cavalan spray.

Don't know if you're onto this or not already but this guys videos are amazing: Vegan Ostomy
Male 58 y/o
TIIIbN+M1 - Stage IV (10/23) - 2 left common iliac lymph nodes metastatic
MSI - MSS; KRAS non-mutant
Modified Neo-adjuvant Therapy (FOLFIRINOX instead of FOLFOX)
tumor 7.4 cm from AV, moderately differentiated
12/23 - 27 treatments rad+Xeloda
03/24 6 FOLFIRINOX infusions
4/24 PET Scan and MRI - tumor gone, lymph nodes normal
5/30/24 Total Mesorectal Excision (TME) + lymphadenectomy of 2 left common iliac LN
7/15/24 6 rounds FOLFOX
CEA (10/23-10/24) 1.8,1.3,1.6, 1.8, 1.6,2.1,2.7

souliacoulia
Posts: 1
Joined: Mon Oct 21, 2024 8:40 pm

Re: Having trouble keeping my bag from leaking

Postby souliacoulia » Mon Oct 21, 2024 8:51 pm

Hi, I'm new and actually just joined the forum because I've been diagnosed with rectal cancer.
However, my mom had colon cancer and had an ileostomy and leaking bags were her nemesis.
I ran into so many nurses who didn't know anything about this but I learned a few things.
Adhesive - We used SkinTac. You can find it on Amazon

We had one week where the bag leaked every single night. It was a nightmare for both mom and I but I was determined to solve it. Believe it or not, it was air. We took a small hair dryer and just put a puff of air in the bag. She had the ones with bottom you could reseal.
Problem solved. I think it leaked maybe once or twice in the months afterwards. It was a game changer.

aquarian_asian
Posts: 52
Joined: Wed Jul 07, 2021 7:07 am

Re: Having trouble keeping my bag from leaking

Postby aquarian_asian » Tue Oct 22, 2024 3:38 pm

specific nurse team who is expert in these bags are the best to advise you. Reasons for leakage is different from person to person; Please check with them first.
Feb 2021 - Dx Stage3B - rectal cancer (Age is 48, Male)
April 2021 - Radiation - for a week (5 mins x 5 days)
May 2021 - LAR surgery
Pathology: G2, LN+ PVI+, Lymph Nodes 5 out of 22
Temporary Ileostomy
Jun-Aug 2021 - Chemo 4 cycles 3 months (CAPOX)
Feb 2022 - Ileostomy reversal


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