Rock Robster

Please feel free to read, share your thoughts, your stories and connect with others!
kiwiinoz
Posts: 1174
Joined: Thu Jan 03, 2013 11:44 pm

Re: Rock Robster

Postby kiwiinoz » Tue Aug 13, 2024 2:24 am

No, too sad. Logged in for the 1st time in a while and so completely sad to read this.
Best wishes to his family and friends
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - August 2020
Port Out 26 March 2015

AmyG
Posts: 372
Joined: Tue Dec 25, 2018 8:08 pm

Re: Rock Robster

Postby AmyG » Wed Aug 21, 2024 7:58 pm

I gasped audibly when I read this...man.
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...
CEA 1.5 that's a new low!

mozart13
Posts: 170
Joined: Fri Dec 09, 2016 7:38 pm
Location: Toronto

Re: Rock Robster

Postby mozart13 » Thu Aug 22, 2024 3:54 pm

Bianca10 wrote:Hi all,
I’ve wondered whether to post for a few weeks and have now decided that I want to.

I sadly found out a few weeks ago via Facebook that Rob passed away.

He was one of the first people I spoke to when I joined this forum. He was so kind, patient, considerate and knowledgable. He always took the time for others and had such grace.

Some of you may already know this sad news, but for the ones that don’t I wanted to share as this forum is certainly a lot quieter without him, and nowhere near as bright.
Will miss him, and remember him fondly.


So sorry to hear about Rob's passing. He was a kind and knowledgeable presence in our community, always willing to help others. I'll miss him and remember him fondly.
55 year at the time of diagnosis, male
Diagnosed with T1,T2 N0 M0 rectal cancer
Total neoadjuvant therapy or TNT (chemoradiation followed by systemic chemotherapy)
Negative since Feb. '17
No surgery
Watch&Wait approach 8)
I don’t come much to the forum , so if this is not updated it means I remain negative!
Wish good luck to all!

jsbsf
Posts: 108
Joined: Sat Aug 24, 2019 6:01 am
Location: San Francisco

Re: Rock Robster

Postby jsbsf » Mon Oct 14, 2024 1:07 am

This news hurts. Wonderful person. He helped me through my darkest days, and I will miss him.
DH 61
2019 4A t3 n2 m1a
8/23 C-scopy, 5+cm mass. CEA:4.1
9/16 MSS. MRI: 2 lvr mets: 2.7 & 7mm
9/30 Start FOLFOX 1-6
10/4 Lg lvr met ~3.7cm, pri tmr stable.
CEA: 10/13,12.5;10/27-12/8 btw 4.7 & 3.1
11/5 both lvr mets ~ 2/3 smaller.
12/17 PET: significant improv.
2020
MWA 2/5, Lap resection 2/11
CEA: 3/1-5/31 btw 2.1&2.9
3/2 start FOLFOX 7-12
7/23-29 EBRT
10/2/2020 NED/W&W
4/2022 EUS-FNA,MRI: recur.;
5/2022:CT scan no mets. APR.
7-12/2023 Xeloda
4/2023 CT/MRI NED


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