Shieldmaiden wrote:Not really sure what I want with this post, just clearing my mind a little I guess. Got my 4th infusion of Oxaliplatin on Friday, still completely knocked out by nausea, and sooo, soo tired. Capecitabine 2000 mg x 2 for the next two weeks. Looking forward to be done with chemo, and at the same time so scared. Been experiencing a slight surge in CEA during chemo, onc thinks it's chemo induced. Hopefully she's right, but it scares me.. Bloodwork in five weeks, really not looking foreward to it
Green Tea wrote:Välkommen -
Velkommen -
Yes, it's certainly scary, but there's a lot of hope ...
What I would suggest is for you to look at past posts of some Stage III patients who managed to get through the whole 5 year surveillance period and reach total remission. I think that this would make your journey less scary
lpas:
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testing765
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Lycka till,
roadrunner wrote:Yeah, it’s scary, and it’s ok to feel that way at first. But you will learn to learn to surf these new waves. The best news in your case is that from a quick look at your profile, your prognosis is very good. I can’t recall the exact %, but a very substantial majority of those in your position go on to be cured. No current metastasis, negative margins, and normal CEA all bode well. If it helps, even a recurrence would not be unmanageable—there are many Stage 4 long-term survivors on here and out there, and you’re Stage 3, a far better situation. My advice is to try to treat this as a challenge you will overcome. That’s not always easy, especially during chemo. Not quite sure how the CAPOX regime works, but you’ve made it through a lot already, and that should give confidence that you’ll do fine with the rest. At the beginning of anyone’s cancer journey, there’s a sense of shock and loss of control. That’s totally natural. The reality is very different. You will find your feet, and with any luck this will soon be something to look back on as a challenge met, a hurdle cleared, at worst.
This is, by the way, a good place to ask questions and get info. There are lots of experienced, helpful folks who post here. Good luck, Shieldmaiden!
waw4 wrote:For encouragement, I will say was diagnosed stage 3b 14 years ago and have not had a recurrence so there is certainly hope for you too, even though the routine follow-up checks can be high-stress days.
A significant part of all this can be managing fear & apprehension, which I understand can be a frequent challenge against which you have to help defend your psyche. One way is not to accept your fears or the belief you will get bad news before you actually receive it—e.g. don’t capitulate to your fears if as of yet no actual evidence of them. Something like "don't count your scary chickens before they hatch"! -Bill
Pagola44 wrote:BTW I am 1 year post diagnosis and i'm all good for now
except i do have a 'feeling' in my chest which is making me paranoid
let's keep each other updated on our progress
Shieldmaiden wrote:Pagola44 wrote:BTW I am 1 year post diagnosis and i'm all good for now
except i do have a 'feeling' in my chest which is making me paranoid
let's keep each other updated on our progress
I'm hoping you will continue to stay good with no recurrence! You were diagnosed last summer?
Pagola44 wrote:
Yes, last June/July last year , we have a similar diagnosis
Did my chemo and been all clear since but
I have really bad anxiety so every little ache and pain I freak out
Right now I'm freaking out over chest pain but hopefully it's nothing
Hope your chemo treatment goes well!
taexali wrote:Best of luck to you.
Taexali
(17 years since DX)
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