Hey guys,
So i saw my oncologist for my 3 month blood test and my cancer markers CEA, etc were fine
I asked about the spots on my lungs on my scan 3 months ago and the oncologist was very dismissive of it saying it's "nothing" and would be "very unusual" for it to be anything for the cancer i had.
I'm not so much worried about it now, but i have read online how people were also told their lung spots were nothing and then it ended up being mets.
Should I bother getting a 2nd opinion? Both my surgeon and oncologist said they were nothing/shouldn't be concerned.... but still... i don't know
Should I seek another opinion?
Should I seek another opinion?
29m Male.
DX: CC, Right Hepatic Flexure, 4cm, T3, G2, M0
Stage III3B , Positive lymph nodes: (2/20)
Baseline CEA value: 1.98
LVI and PNI: absent
Surgical margins: clear
No lynch Syndrome or MSI
Primary surgery type: Laparascopic
DX: CC, Right Hepatic Flexure, 4cm, T3, G2, M0
Stage III3B , Positive lymph nodes: (2/20)
Baseline CEA value: 1.98
LVI and PNI: absent
Surgical margins: clear
No lynch Syndrome or MSI
Primary surgery type: Laparascopic
Re: Should I seek another opinion?
In March 2024, Pagola44 wrote:...
I'm seeing the oncologist in June, I think i will ask more questions then and also ask for another scan in September as that would be 6 months, so maybe that would show if there is growth? ....
So ... when you met with your oncologist in June did you ask him for another scan in September???
Re: Should I seek another opinion?
Green Tea wrote:In March 2024, Pagola44 wrote:...
I'm seeing the oncologist in June, I think i will ask more questions then and also ask for another scan in September as that would be 6 months, so maybe that would show if there is growth? ....
So ... when you met with your oncologist in June did you ask him for another scan in September???
He was ready dismissive of it so I didn't do you think I should of?
29m Male.
DX: CC, Right Hepatic Flexure, 4cm, T3, G2, M0
Stage III3B , Positive lymph nodes: (2/20)
Baseline CEA value: 1.98
LVI and PNI: absent
Surgical margins: clear
No lynch Syndrome or MSI
Primary surgery type: Laparascopic
DX: CC, Right Hepatic Flexure, 4cm, T3, G2, M0
Stage III3B , Positive lymph nodes: (2/20)
Baseline CEA value: 1.98
LVI and PNI: absent
Surgical margins: clear
No lynch Syndrome or MSI
Primary surgery type: Laparascopic
Re: Should I seek another opinion?
No. I don't think you need to do anything right now. You have a very low-risk profile and your doctors agree that nothing out of the ordinary is needed right now.
Re: Should I seek another opinion?
Green Tea wrote:No. I don't think you need to do anything right now. You have a very low-risk profile and your doctors agree that nothing out of the ordinary is needed right now.
Thank you
29m Male.
DX: CC, Right Hepatic Flexure, 4cm, T3, G2, M0
Stage III3B , Positive lymph nodes: (2/20)
Baseline CEA value: 1.98
LVI and PNI: absent
Surgical margins: clear
No lynch Syndrome or MSI
Primary surgery type: Laparascopic
DX: CC, Right Hepatic Flexure, 4cm, T3, G2, M0
Stage III3B , Positive lymph nodes: (2/20)
Baseline CEA value: 1.98
LVI and PNI: absent
Surgical margins: clear
No lynch Syndrome or MSI
Primary surgery type: Laparascopic
Re: Should I seek another opinion?
I read online lung nodules are rare for people under 35
Is that true? That wiuld be very concerning
Is that true? That wiuld be very concerning
29m Male.
DX: CC, Right Hepatic Flexure, 4cm, T3, G2, M0
Stage III3B , Positive lymph nodes: (2/20)
Baseline CEA value: 1.98
LVI and PNI: absent
Surgical margins: clear
No lynch Syndrome or MSI
Primary surgery type: Laparascopic
DX: CC, Right Hepatic Flexure, 4cm, T3, G2, M0
Stage III3B , Positive lymph nodes: (2/20)
Baseline CEA value: 1.98
LVI and PNI: absent
Surgical margins: clear
No lynch Syndrome or MSI
Primary surgery type: Laparascopic
Re: Should I seek another opinion?
Pagola44 wrote:I read online lung nodules are rare for people under 35
Is that true? That wiuld be very concerning
anyone?
29m Male.
DX: CC, Right Hepatic Flexure, 4cm, T3, G2, M0
Stage III3B , Positive lymph nodes: (2/20)
Baseline CEA value: 1.98
LVI and PNI: absent
Surgical margins: clear
No lynch Syndrome or MSI
Primary surgery type: Laparascopic
DX: CC, Right Hepatic Flexure, 4cm, T3, G2, M0
Stage III3B , Positive lymph nodes: (2/20)
Baseline CEA value: 1.98
LVI and PNI: absent
Surgical margins: clear
No lynch Syndrome or MSI
Primary surgery type: Laparascopic
Re: Should I seek another opinion?
I'm not any kind of medical professional so please file this under You Get What You Pay For and This Is Free: I think you only have a piece of the calculation. I've also read that lung nodules are uncommon in people under 35 but they're talking about lung cancer nodules.
I know you're anxious about the lung nodule(s). I've been in your shoes, it's scary. That being said, many lung nodules are benign and caused by infection, inflammation, scar tissue from prior infections, and other causes. Those are fairly common. Yes, it could be cancer but at this point in time, the data doesn't support that conclusion. It may help calm your anxiety to do something proactive even when there's nothing medically to do. Maybe approach this from another angle: plan out your strategy and write it down so you have a roadmap you can pick up and review if needed. By writing it down, you have a clear plan - no wondering 3 months from now what you were thinking today. That may help you get it out of your head - or at least take the edge off. For example, you're going to ask for a CT scan in September. If the nodules are stable or disappear, then no further action is needed (that would be my approach but you may feel differently). IF the nodules are larger by more than 1mm-2mm (because truly that could easily be a measuring error), then what? Maybe it depends on how much growth. It will have been about 6 months since your last CT so if the growth is say less than 2mm, maybe you wait and watch. If it's more, maybe you ask about chemo or SBRT. If circumstances change, then change the plan. I hope this strategy helps you feel you've done all you could reasonably do, and then let go of some of the fear... but if you feel your anxiety increasing just reading this post, then please accept my deepest apologies for even mentioning it.
I know you're anxious about the lung nodule(s). I've been in your shoes, it's scary. That being said, many lung nodules are benign and caused by infection, inflammation, scar tissue from prior infections, and other causes. Those are fairly common. Yes, it could be cancer but at this point in time, the data doesn't support that conclusion. It may help calm your anxiety to do something proactive even when there's nothing medically to do. Maybe approach this from another angle: plan out your strategy and write it down so you have a roadmap you can pick up and review if needed. By writing it down, you have a clear plan - no wondering 3 months from now what you were thinking today. That may help you get it out of your head - or at least take the edge off. For example, you're going to ask for a CT scan in September. If the nodules are stable or disappear, then no further action is needed (that would be my approach but you may feel differently). IF the nodules are larger by more than 1mm-2mm (because truly that could easily be a measuring error), then what? Maybe it depends on how much growth. It will have been about 6 months since your last CT so if the growth is say less than 2mm, maybe you wait and watch. If it's more, maybe you ask about chemo or SBRT. If circumstances change, then change the plan. I hope this strategy helps you feel you've done all you could reasonably do, and then let go of some of the fear... but if you feel your anxiety increasing just reading this post, then please accept my deepest apologies for even mentioning it.
Nov-2009 Early stage CRC, routine colonoscopy
2010-2014 F/U colonoscopies, all clear
Jun-2016 CRC during F/U colonoscopy, surgery, Stage 4, KRAS, MSS
Aug-2016-May-2018 Folfox, 5FU, Folfiri & Avastin
Aug/Sep-2018 YAG laser surgeries (Germany), 11 nodules removed
Nov-2018 clean CT scan
Mar-2019 New lung nodules
Apr-2019 Dec-2020 Xeloda/Avastin, SBRT, cont. Xeloda/Avastin
Mar-2021 Forfiri/Avastin
Mar-2022 Ablation & Thoracotomy
Feb-2023 Folfiri & Avastin
Nov-2023 Xeloda & Avastin
2010-2014 F/U colonoscopies, all clear
Jun-2016 CRC during F/U colonoscopy, surgery, Stage 4, KRAS, MSS
Aug-2016-May-2018 Folfox, 5FU, Folfiri & Avastin
Aug/Sep-2018 YAG laser surgeries (Germany), 11 nodules removed
Nov-2018 clean CT scan
Mar-2019 New lung nodules
Apr-2019 Dec-2020 Xeloda/Avastin, SBRT, cont. Xeloda/Avastin
Mar-2021 Forfiri/Avastin
Mar-2022 Ablation & Thoracotomy
Feb-2023 Folfiri & Avastin
Nov-2023 Xeloda & Avastin
Re: Should I seek another opinion?
zephyr wrote:I'm not any kind of medical professional so please file this under You Get What You Pay For and This Is Free: I think you only have a piece of the calculation. I've also read that lung nodules are uncommon in people under 35 but they're talking about lung cancer nodules.
I know you're anxious about the lung nodule(s). I've been in your shoes, it's scary. That being said, many lung nodules are benign and caused by infection, inflammation, scar tissue from prior infections, and other causes. Those are fairly common. Yes, it could be cancer but at this point in time, the data doesn't support that conclusion. It may help calm your anxiety to do something proactive even when there's nothing medically to do. Maybe approach this from another angle: plan out your strategy and write it down so you have a roadmap you can pick up and review if needed. By writing it down, you have a clear plan - no wondering 3 months from now what you were thinking today. That may help you get it out of your head - or at least take the edge off. For example, you're going to ask for a CT scan in September. If the nodules are stable or disappear, then no further action is needed (that would be my approach but you may feel differently). IF the nodules are larger by more than 1mm-2mm (because truly that could easily be a measuring error), then what? Maybe it depends on how much growth. It will have been about 6 months since your last CT so if the growth is say less than 2mm, maybe you wait and watch. If it's more, maybe you ask about chemo or SBRT. If circumstances change, then change the plan. I hope this strategy helps you feel you've done all you could reasonably do, and then let go of some of the fear... but if you feel your anxiety increasing just reading this post, then please accept my deepest apologies for even mentioning it.
Great advice thanks
29m Male.
DX: CC, Right Hepatic Flexure, 4cm, T3, G2, M0
Stage III3B , Positive lymph nodes: (2/20)
Baseline CEA value: 1.98
LVI and PNI: absent
Surgical margins: clear
No lynch Syndrome or MSI
Primary surgery type: Laparascopic
DX: CC, Right Hepatic Flexure, 4cm, T3, G2, M0
Stage III3B , Positive lymph nodes: (2/20)
Baseline CEA value: 1.98
LVI and PNI: absent
Surgical margins: clear
No lynch Syndrome or MSI
Primary surgery type: Laparascopic
Re: Should I seek another opinion?
zephyr wrote:I'm not any kind of medical professional so please file this under You Get What You Pay For and This Is Free: I think you only have a piece of the calculation. I've also read that lung nodules are uncommon in people under 35 but they're talking about lung cancer nodules.
I know you're anxious about the lung nodule(s). I've been in your shoes, it's scary. That being said, many lung nodules are benign and caused by infection, inflammation, scar tissue from prior infections, and other causes. Those are fairly common. Yes, it could be cancer but at this point in time, the data doesn't support that conclusion. It may help calm your anxiety to do something proactive even when there's nothing medically to do. Maybe approach this from another angle: plan out your strategy and write it down so you have a roadmap you can pick up and review if needed. By writing it down, you have a clear plan - no wondering 3 months from now what you were thinking today. That may help you get it out of your head - or at least take the edge off. For example, you're going to ask for a CT scan in September. If the nodules are stable or disappear, then no further action is needed (that would be my approach but you may feel differently). IF the nodules are larger by more than 1mm-2mm (because truly that could easily be a measuring error), then what? Maybe it depends on how much growth. It will have been about 6 months since your last CT so if the growth is say less than 2mm, maybe you wait and watch. If it's more, maybe you ask about chemo or SBRT. If circumstances change, then change the plan. I hope this strategy helps you feel you've done all you could reasonably do, and then let go of some of the fear... but if you feel your anxiety increasing just reading this post, then please accept my deepest apologies for even mentioning it.
Also I've had a constant chest cough / tickle for the last 3 months that make me paranoid
But I've read most people who have lung mets don't get symptoms like that
29m Male.
DX: CC, Right Hepatic Flexure, 4cm, T3, G2, M0
Stage III3B , Positive lymph nodes: (2/20)
Baseline CEA value: 1.98
LVI and PNI: absent
Surgical margins: clear
No lynch Syndrome or MSI
Primary surgery type: Laparascopic
DX: CC, Right Hepatic Flexure, 4cm, T3, G2, M0
Stage III3B , Positive lymph nodes: (2/20)
Baseline CEA value: 1.98
LVI and PNI: absent
Surgical margins: clear
No lynch Syndrome or MSI
Primary surgery type: Laparascopic
Re: Should I seek another opinion?
Green Tea wrote:No. I don't think you need to do anything right now. You have a very low-risk profile and your doctors agree that nothing out of the ordinary is needed right now.
I agree with this. However, there's not much downside to getting a 2nd opinion, so if you feel it would help then go for it. They get paid really well to do their jobs so I never hesitate to make requests.
Dx June 2020, stage IV, w liver mets in both lobes. M, age 50. Right-sided colon tumor. CEA 120.
BRAF+ TMB 5% MSS TDL1-1%
July 2020 - Present: 72 cycles chemo (All the various 5-FU regimens)
December 2020 - February 2021 Y90 Radioembolization, Chemoembolization x2
BRAF+ TMB 5% MSS TDL1-1%
July 2020 - Present: 72 cycles chemo (All the various 5-FU regimens)
December 2020 - February 2021 Y90 Radioembolization, Chemoembolization x2
Re: Should I seek another opinion?
Nor Cal wrote:Green Tea wrote:No. I don't think you need to do anything right now. You have a very low-risk profile and your doctors agree that nothing out of the ordinary is needed right now.
I agree with this. However, there's not much downside to getting a 2nd opinion, so if you feel it would help then go for it. They get paid really well to do their jobs so I never hesitate to make requests.
I've had a chest tickle for a few months now /cough
could it be related?
29m Male.
DX: CC, Right Hepatic Flexure, 4cm, T3, G2, M0
Stage III3B , Positive lymph nodes: (2/20)
Baseline CEA value: 1.98
LVI and PNI: absent
Surgical margins: clear
No lynch Syndrome or MSI
Primary surgery type: Laparascopic
DX: CC, Right Hepatic Flexure, 4cm, T3, G2, M0
Stage III3B , Positive lymph nodes: (2/20)
Baseline CEA value: 1.98
LVI and PNI: absent
Surgical margins: clear
No lynch Syndrome or MSI
Primary surgery type: Laparascopic
Re: Should I seek another opinion?
Pagola44 wrote:Nor Cal wrote:Green Tea wrote:No. I don't think you need to do anything right now. You have a very low-risk profile and your doctors agree that nothing out of the ordinary is needed right now.
I agree with this. However, there's not much downside to getting a 2nd opinion, so if you feel it would help then go for it. They get paid really well to do their jobs so I never hesitate to make requests.
I've had a chest tickle for a few months now /cough
could it be related?
My chest constantly feels irritated
It has been very cold where I live though
Or could it be mets?
29m Male.
DX: CC, Right Hepatic Flexure, 4cm, T3, G2, M0
Stage III3B , Positive lymph nodes: (2/20)
Baseline CEA value: 1.98
LVI and PNI: absent
Surgical margins: clear
No lynch Syndrome or MSI
Primary surgery type: Laparascopic
DX: CC, Right Hepatic Flexure, 4cm, T3, G2, M0
Stage III3B , Positive lymph nodes: (2/20)
Baseline CEA value: 1.98
LVI and PNI: absent
Surgical margins: clear
No lynch Syndrome or MSI
Primary surgery type: Laparascopic
Re: Severe weather warning !
Could this cause chest irritation?
29m Male.
DX: CC, Right Hepatic Flexure, 4cm, T3, G2, M0
Stage III3B , Positive lymph nodes: (2/20)
Baseline CEA value: 1.98
LVI and PNI: absent
Surgical margins: clear
No lynch Syndrome or MSI
Primary surgery type: Laparascopic
DX: CC, Right Hepatic Flexure, 4cm, T3, G2, M0
Stage III3B , Positive lymph nodes: (2/20)
Baseline CEA value: 1.98
LVI and PNI: absent
Surgical margins: clear
No lynch Syndrome or MSI
Primary surgery type: Laparascopic
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