Anyone else struggling to live life normally?

Please feel free to read, share your thoughts, your stories and connect with others!
roadrunner
Posts: 516
Joined: Sun Jan 12, 2020 8:46 pm

Re: Anyone else struggling to live life normally?

Postby roadrunner » Mon Oct 14, 2024 1:06 pm

claudejgreengrass—

I believe there is variation between countries, health systems, and practices. Keep in mind that radiation treatments, particularly if you’re receiving targeted radiation as opposed to old-fashioned wide-field radiation, require some time to develop and check (these are now software-driven). Additionally, while weeks may seem interminably long to us cancer patients when we’re waiting for treatment, the time tables are based on likely growth rates, and CRC is in most cases quite slow-growing. Thus, what you experienced is not wildly out-of-line based on my experience. Additionally, your combination of prostate and rectal cancer may well have complicated things, particularly with respect to your radiation treatments, and particularly if your rad oncs are trying to minimize damage to healthy tissue, as they usually do.

A couple of additional questions, though. Your signature discloses only a CT of the abdomen and pelvis. Given that you have rectal cancer, I think a thoracic CT, at least, is also in order. A full body PET-CT would be ideal at this early stage to rule out distant metastases. Perhaps you had those tests but didn’t mention them, but if not, I’d ask, particularly about the thoracic CT. Good luck!

[Edited to add: It looks like they may be going after the prostrate first with radiation, letting the chemo do the work on the rectal tumor for now. That might, or might not, be consistent with the TNT (Total
Neoadjuvant Therapy) approach to rectal cancer. Your post suggests some level of disconnect between you and your team. Particularly because you have two types of pelvic cancer (rectal and prostate), I think it’s very important to have a clear understanding of your treatment plan and very good communication with your doctors. If you don’t have those things, and can’t get them, you may wish to consider getting new doctors if possible. If that’s not possible, all reasonable efforts with these doctors should be made.]
7/19: RC: Staged IIIA, T2N1M0
approx 4.25 cm, low/mid rectum, mod. well diff.; lung micronodule
8/19-10/19 4 rds.FOLFOX neoadjuvant, 3 w/Oxiplatin (reduced 70-75%)
neoadjuvant chemorad 11/19
4 rounds FOLFOX July-August 2020
ncCR 10/20; biopsies neg
TAE 11/20
Chest CT 3/30/21 growth 2 nodules (3 and 5mm)
VATS 12/8/21 sub-pleural met 7mm.
SBRT nodule 1/22
6/20/22 TAE rectal polyp)
NED from 3/22 - 3/23
4 cycles FOLFIRI
LUL VATS lobectomy 7/7/23
5 cycles FOLFOX
APR 6/24. NED for now

claudejgreengrass
Posts: 2
Joined: Sun Oct 13, 2024 3:15 pm
Location: Detroit, Mi
Contact:

Re: Anyone else struggling to live life normally?

Postby claudejgreengrass » Fri Oct 18, 2024 3:45 pm

roadrunner

Thanks you for your long and thoughtful reply. Since my original post, I have finished my first week of radiation and capecitabine and finished with a visit from my oncologists/radiation MD. The/my cancer team are lining up a urologists oncologists visit to supervise the radiation and drug treatment for the prostate. I also have a PET scan next week with a PSA binding radioactive tracer to guide that treatment. I've been told that most likely they will treat me with a hormonal injection after the PET scan which will stop any testosterone production thereby stopping and further growth in the prostate.

All in all I think my medical team has it together. I just didn't understand all the aspects of my treatment plan. Perhaps there will be some more developments but I'm in a better state of mind compared to when I first posted.

I did have a CT of the chest I didn't mention before as it was clear.
Colonoscopy Cancer of colon with rectum (CMS/HCC) 8/26/24
CT 8/27/24
Circumferential wall thickening of the high rectum/rectosigmoid colon
(14.3 cm from the anal verge)
No evidence of metastatic disease in the abdomen or pelvis
MRI 9/5/24
There is an 8 cm high rectal tumor, T3cN+
Prostate Biopsy 10/2/24
Prostatic adenocarcinoma. Intraductal carcinoma of the prostate (IDC-P)
Baseline CEA value: 5 ng/mL 10/3/24
Start radiation 1500mg capecitabine x 25days 10/14/24


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: No registered users and 34 guests