Rage against the (American healthcare) machine

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Claudine
Posts: 808
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Rage against the (American healthcare) machine

Postby Claudine » Tue Feb 06, 2024 11:27 am

Back in December, when DH did his first Lonsurf cycle, copay was waived and it cost us nothing.
When the onc sent the prescription for cycle 2 though, it wasn't the same deal. We tried 5 different specialized pharmacies; 4 are asking monthly copays varying from $8000 to $10,000/month; one (Lumicera) said $200/month, but called back to let us know that they do not have access to Lonsurf after all.
ARG! This isn't a headache we're talking about here, it's cancer!
During DH's most recent Avastin infusion (he gets them every two weeks), we talked with his onc about this "no go" financial issue and he agreed that it would be ludicrous to pay this amount for a maintenance chemo; so he's switching DH to Xeloda,1500mg every other week, plus the Avastin infusions. Honestly, when I see how horrendous the Lonsurf side effects were, I'm glad. DH has had Xeloda in the past and tolerated well.

But still. Who can afford treatment in this country?!?
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary

Tumors: L4 04/18; left adrenal gland & small lung nodules 03/19
rectum 02/22 (pT3 pN0 stage 2A); L3 09/22

Surgeries: intestinal resect. 05/18 (no cancer - Crohn's); adrenalectomy 02/20
L3-L4-L5 fusion and corpectomy 05/20; LAR 04/22; ileo reversal 09/22
L2-L3 fusion and corpectomy 09/22

Treatments: EBRT 04/18; SBRT 02/19; Failed adjuvant Xelox ; Folfiri/Avastin 03/19 - 01/20
adjuvant chemorad (Xeloda) 06/22; SBRT 11/22; Lonsurf/Avastin 12/23

Pagola44
Posts: 315
Joined: Mon Jul 03, 2023 7:57 pm

Re: Rage against the (American healthcare) machine

Postby Pagola44 » Tue Feb 06, 2024 6:10 pm

Yep that's an insane cost :shock:
29m Male.
DX: CC, Right Hepatic Flexure, 4cm, T3, G2, M0
Stage III3B , Positive lymph nodes: (2/20)
Baseline CEA value: 1.98
LVI and PNI: absent
Surgical margins: clear
No lynch Syndrome or MSI
Primary surgery type: Laparascopic

User avatar
beach sunrise
Posts: 1023
Joined: Thu Mar 05, 2020 7:14 pm

Re: Rage against the (American healthcare) machine

Postby beach sunrise » Tue Feb 06, 2024 8:45 pm

Geez Louise! Welcome to the new world of mSOC.
My xeloda rx went from $100 to $165 to now at 260.00 all with in a few refills of each other. I've thought about contacting Germany to see if they could offer cheaper and see if it would cross the border or not.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test

User avatar
JJH
Posts: 408
Joined: Mon Apr 24, 2017 7:26 am

Re: Rage against the (American healthcare) machine

Postby JJH » Wed Feb 07, 2024 8:18 am

The title of this topic reminds me of a BBC News article about U.S. healthcare that I saw recently and that had the following header:

"Several companies are entering the American market to disrupt traditional, staid healthcare systems. They see a big opportunity to create change – and make money...

Source: https://www.bbc.com/worklife/article/20240126-tech-start-ups-are-giving-a-slick-makeover-to-us-healthcare-services

This is the kind of thing that happens when the venture capitalists try to get involved in healthcare...

Claudine
Posts: 808
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Rage against the (American healthcare) machine

Postby Claudine » Wed Feb 07, 2024 11:45 am

I've thought about contacting Germany to see if they could offer cheaper and see if it would cross the border or not.


Worth a try; I have a friend who gets her meds from Canada (not cancer though).
I was off with the amount of Xeloda; it will be 3000mg daily (twice 1500), one week on, one week off. How much are you taking, Beach? In our case, it'll only amount to $26/month. Go figure.
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary

Tumors: L4 04/18; left adrenal gland & small lung nodules 03/19
rectum 02/22 (pT3 pN0 stage 2A); L3 09/22

Surgeries: intestinal resect. 05/18 (no cancer - Crohn's); adrenalectomy 02/20
L3-L4-L5 fusion and corpectomy 05/20; LAR 04/22; ileo reversal 09/22
L2-L3 fusion and corpectomy 09/22

Treatments: EBRT 04/18; SBRT 02/19; Failed adjuvant Xelox ; Folfiri/Avastin 03/19 - 01/20
adjuvant chemorad (Xeloda) 06/22; SBRT 11/22; Lonsurf/Avastin 12/23


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