What to do for continuous anal pain

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survivor12
Posts: 6
Joined: Wed Apr 11, 2012 3:19 pm
Facebook Username: Jonelle Ramsey

What to do for continuous anal pain

Postby survivor12 » Tue Jan 16, 2024 2:31 pm

I’m a 20 yr rectal cancer survivor. Had radiation and all the chemo, surgeries, temp illi, but only 5 weeks then reconnected.
Recently:
I had some internal bleeding from taking xeralto starting about 9 months ago. Since then my red blood count went down to 4.9 and I received 3 transfusions in hospital. Dr removed a polyp that was very near rectum, causing bleeding. Since then I have no control over BMs. It just comes out whenever, wherever. Horrible!
And now for weeks I have such anal pain, it is constant.
Does anyone have this pain and what do you do to alleviate the pain?
I am depressed (widowed 3 years ago) and fighting that AND the anal pain is awful.
I am almost 80 and feel like I’m a big baby whiner.
Thank you for your time.

J-man
Posts: 35
Joined: Tue Jan 29, 2013 4:14 am

Re: What to do for continuous anal pain

Postby J-man » Tue Jan 16, 2024 9:08 pm

You most certainly need to talk to your doctors about this problem.

https://www.drugs.com/sfx/xarelto-side-effects.html

mentions specifically, in a very LONG list of side effects :
Back pain
bloody stools
bowel or bladder dysfunction

You may be able to have your doctors adjust / change your meds to help your situation

sending best wishes for you to get help from the Doctors

Rock_Robster
Posts: 1017
Joined: Thu Oct 25, 2018 5:27 am
Location: Brisbane, Australia

Re: What to do for continuous anal pain

Postby Rock_Robster » Wed Jan 17, 2024 5:06 am

I can empathise, and I’m sorry. What you’re experiencing is horrible, and the worst pain I encountered over my 5 years of treatment to date, including 4 major surgeries.

The only thing that really made a difference for me was opioids (oxycodone), and cannabis products (not together, although also not deliberately apart either). In addition to analgesia, the weed seemed to help with just calming and relaxing everything a bit as well, and reducing the tension-related pain.

I also took a LOT of loperamide to try to slow things down (without going too far in the other direction, which is then like descending to another circle of hell).

I agree with J-Man though that I would definitely be getting a colorectal surgery consult again (and probably a flex sig) in case there is something more structural causing your pain (eg a fissure).

Good luck and thoughts with you.

Rob
41M Australia
2018 Dx RC
G2 EMVI LVI, 4 liver mets
pT3N1aM1a Stage IVa MSS NRAS G13R
CEA 14>2>32>16>19>30>140>70
11/18 FOLFOX
3/19 Liver resection
5/19 Pelvic IMRT
7/19 ULAR
8/19 Liver met
8/19 FOLFOX, FOLFOXIRI, FOLFIRI
12/19 Liver resection
NED 2 years
11/21 Liver met, PALN, lung nodules
3/22 PVE, lymphadenectomy, liver SBRT
10/22 PALN SBRT
11/22 Liver mets, peri nodule. Xeloda+Bev
4/23 XELIRI+Bev
9/23 ATRIUM trial
12/23 Modified FOLFIRI+Bev

survivor12
Posts: 6
Joined: Wed Apr 11, 2012 3:19 pm
Facebook Username: Jonelle Ramsey

Re: What to do for continuous anal pain

Postby survivor12 » Thu Jan 18, 2024 3:02 am

Thank you for your advice. I really appreciate this club.
Now if I can figure out how to respond individually to each of you, I’ll take it.
Can you teach an old dog…???

utahgal7
Posts: 195
Joined: Fri Sep 11, 2020 12:04 pm

Re: What to do for continuous anal pain

Postby utahgal7 » Fri Jan 19, 2024 3:29 pm

Oof, this is something that I would definitely discuss with your doctor. All of the previous recommendations on here are good. Have you tried a sitz bath? It may help ease some of the pain. I have found sitz baths that can fit over the toilet bowl are more convenient and easier than climbing in and out of the bathtub. Sitz baths for toilets are available on Amazon. If you are interested, you can search Amazon by typing sitz baths for toilets in the search bar.

Hope you find some relief soon.

Paige
02/20 Rectal Cancer dx - 4 cm mass; located 9 cm from AV
03/20 CEA 2.7; 0.9; 1.4; 0.9; 0.9; 1.2; 1.0; 0.8; 1.1; 1.0; 1.1; 1.7; 1.8; 1.8
1.9; 2.4; 2.3; 2.8; 2.2, 2.8, 3.2; 3.0; 1.6; 2.0; 1.2
04/20 ST Radiation; 04/20 LAR surgery w/ileostomy; ypT3N1bM0; MSS, KRAS G12A
05/20 CAPEOX; 08/20 Ileostomy reversal
12/20 CT scan; lung nodules (watch and wait);
11/22 lung nodule biopsy positive for RC met;
1/23 VATS right lower lobe wedge resection
FOLFIRI 10 cycles


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