Hello gang! I met with the surgeon last week. He is presenting my case to the tumor board this week with the intention of surgery to install HAI pump and possibly removing some of my liver mets. Says he can’t get them all as they are spread between both lobes of liver and “making Swiss cheese of the liver” would require too long of recovery preventing chemo for too long. He says my liver is what will determine my survival not my lung mets as they are cavitary and have had no growth so we will deal with them later, most likely with srbt.
My question is if anyone has had the HAI pump and how much it impacted/limited your activities. I’m not planning on skydiving or deep sea diving by any means but will it limit me to being a couch potato? I mean I guess it could be worth it if it is temporary? Has anyone here made it to NED by use of one? I’d love to hear any advice any of you may have.
I do feel so extremely grateful for even having another option besides chemo for life! I guess with my KRAS mutation (exon 3 p.Q61R) and the fact that I have both liver and lung mets they normally wouldn’t do much but are willing to since I have had such a good response to the FOLFOX+Avastin and am otherwise healthy.
Thank you all so very much for the wealth of information you give! And for the words of encouragement and advice. Truly an amazing group of people here
Blessings to you all in your journey
~Sara~