HAI pump?

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skimom
Posts: 76
Joined: Fri Mar 17, 2023 12:24 pm
Location: Oregon USA

HAI pump?

Postby skimom » Tue May 30, 2023 10:08 am

Hello gang! I met with the surgeon last week. He is presenting my case to the tumor board this week with the intention of surgery to install HAI pump and possibly removing some of my liver mets. Says he can’t get them all as they are spread between both lobes of liver and “making Swiss cheese of the liver” would require too long of recovery preventing chemo for too long. He says my liver is what will determine my survival not my lung mets as they are cavitary and have had no growth so we will deal with them later, most likely with srbt.

My question is if anyone has had the HAI pump and how much it impacted/limited your activities. I’m not planning on skydiving or deep sea diving by any means but will it limit me to being a couch potato? I mean I guess it could be worth it if it is temporary? Has anyone here made it to NED by use of one? I’d love to hear any advice any of you may have.

I do feel so extremely grateful for even having another option besides chemo for life! I guess with my KRAS mutation (exon 3 p.Q61R) and the fact that I have both liver and lung mets they normally wouldn’t do much but are willing to since I have had such a good response to the FOLFOX+Avastin and am otherwise healthy.

Thank you all so very much for the wealth of information you give! And for the words of encouragement and advice. Truly an amazing group of people here :)

Blessings to you all in your journey

~Sara~
47yo F at DX
DX 12/11/22 Stage IV (liver & lung mets) KRAS PIK3CA
12/15/22 Primary tumor removed from Transverse Colon (4.3x4.0x0.6cm G2 3/15 lymph nodes. Clear margins)
01/06/23 started Folfox (10 cycles)
Initial CEA 5608
CEA after 4 rounds 1319
CEA after 6 rounds 427
CEA after 9 rounds 95
HAI pump installed 06/20/23
Start FOLFIRI and FUDR 07/05/23
CEA down to 37
31
21
18
9/2023 Switch back to FOLFOX due to new lung nodules
11/23 FOLFOX fail CEA up to 62

nmorgen
Posts: 82
Joined: Sat Nov 05, 2022 10:31 am

Re: HAI pump?

Postby nmorgen » Fri Jun 02, 2023 10:06 pm

Hopefully someone with HAI will respond. If you haven’t already you should join colontown on fb. They have an HAI specific group.
DH age 47
DX 10/22 stage 4
2 tumors in sigmoid colon 2 Mets liver
adenocarcinoma
MSI-H, TMB-H 38, KRAS G13V, ERBB2 neg, BRCA2, Lynch Syndrome
Grade 1 well differentiated
12/1/22 Yervoy and Opdivo CEA 5.4
12/19/22 Yervoy & Opdivo CEA 4.6
01/12/22 Yervoy & Opdivo CEA 3.9
2/13/23 Yervoy& Opdivo CEA 3.4
3/7/23 ct scans no change
3/9/23 Opdivo CEA 3.4
4/4/23 Opdivo CEA 2.3
6/1/23 Opdivo CEA 2.6

User avatar
cptmac
Posts: 1215
Joined: Mon Nov 19, 2007 3:15 pm
Facebook Username: Dorothy McGrath

Re: HAI pump?

Postby cptmac » Sat Jul 22, 2023 2:41 am

Having a HAI pump over 19 years ago did not limit any of my activities. I don’t like hot baths and was told not to take them. Mine was by my appendix. I did, at times, need to readjust my seat belt.

And I always set off the sensor at the airport, but not when I visited the White House, go figure.
cptmac
As long as you're alive, there is hope.
dx 7/04 stage IV
colon resection 8/04
liver resection 9/04 with HAI pump installed
Stage II trial w irinotecan as systemic and FUDR for direct chemo to liver via HAI pump
Cured since 9/04

Rock_Robster
Posts: 1021
Joined: Thu Oct 25, 2018 5:27 am
Location: Brisbane, Australia

Re: HAI pump?

Postby Rock_Robster » Sat Jul 22, 2023 5:15 am

I believe the main restrictions are in extremes of heat (saunas, hot tubs), pressure (scuba diving), and physical contact (boxing, ju-jitsu, drag racing, bungee jumping). Others may have more they can add though.
41M Australia
2018 Dx RC
G2 EMVI LVI, 4 liver mets
pT3N1aM1a Stage IVa MSS NRAS G13R
CEA 14>2>32>16>19>30>140>70
11/18 FOLFOX
3/19 Liver resection
5/19 Pelvic IMRT
7/19 ULAR
8/19 Liver met
8/19 FOLFOX, FOLFOXIRI, FOLFIRI
12/19 Liver resection
NED 2 years
11/21 Liver met, PALN, lung nodules
3/22 PVE, lymphadenectomy, liver SBRT
10/22 PALN SBRT
11/22 Liver mets, peri nodule. Xeloda+Bev
4/23 XELIRI+Bev
9/23 ATRIUM trial
12/23 Modified FOLFIRI+Bev


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