highly suspicious mets to lung

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beach sunrise
Posts: 1080
Joined: Thu Mar 05, 2020 7:14 pm

highly suspicious mets to lung

Postby beach sunrise » Thu Apr 20, 2023 6:09 pm

All bloodwork is in
CEA 14.5
ca19-9 is 31 (its tipping over the high point)
PGE2 is 27.86, up from 15.6. Range is under 10
LDH 1 is high normal as is LDH 2
IL-6 is high at 33.6, up from 10.7 in Jan. Normal is under 13
CTL's are good
RBC's still under normal

ND rx'd chrolofresh for RBC's at 1 TBSP after breakfast, 1 TBSP after supper

Tea concoction for PGE2 and IL-6 recipe
Boil 1 cup burdock root to 3 cups water.
Simmer until reduced by half.
Add 3 TBSP Moringa leaf powder.
Cover and let sit for 5 min.
Drink 1/2 cup three times per day. Take 4 caps of horny goat weed with tea.

Having baseline inflammatory markers and growth factors done before Germany then compare after surgery.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test

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beach sunrise
Posts: 1080
Joined: Thu Mar 05, 2020 7:14 pm

Re: highly suspicious mets to lung

Postby beach sunrise » Sun Apr 23, 2023 2:27 am

Starting back crossfit/bootcamp gym on Monday. I will go every day until Rolles surgery.
No sugar, no carbs. Ketone meter ordered is on the way. I know it takes about 2 weeks to see improvement in ketones, so maybe I can get glucose and glutamine down enough and ketones up comfortably.
Ramped up fruit powder drinks also.
IVC still 2x per week. Will take IVC after surgery. Haven't nailed down dose and timing yet but its a GO along with vitamin D3, turmeric, E and some others. I amunsure if airport officais will confiscate IVM, Itraconazole and mendendazole. I need to find out whats on the hit list for Germany. I have a cousin who is DEA so he might can find out for me. We will see.
I am unsure about the use of cimetidine for lung mets? Anyone know if it helps for the anti-spread?
So much to prepare for on top of everyday things. We are swamped at work also and having to work 12-14hrs a day right now.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test

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beach sunrise
Posts: 1080
Joined: Thu Mar 05, 2020 7:14 pm

Re: highly suspicious mets to lung

Postby beach sunrise » Fri Apr 28, 2023 2:39 pm

Thanks for the tips, pccr!

Rolles surgery for right lung scheduled May 24th. Left lung will be 4 weeks after right lung.
I will be happy to have this done and see under the microscope if mets or not. Bet they are!
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test

IM64
Posts: 90
Joined: Wed Nov 02, 2022 5:51 pm

Re: highly suspicious mets to lung

Postby IM64 » Sat Apr 29, 2023 7:07 am

I believe and hope that surgery will put the final point in your long journey. Will you stay 4 weeks in Germany between surgeries?
Husband of DX 10/2022 (50 yo), Stage IV, MSS, KRAS G12A, PIK3CA, G545L
Multiple bilateral Lung mets/Extensive bilobar Liver mets, CEA 4163
10/2022 Colostomy, Biliary drain, FOLFOX (+Avastin 4 rounds)
1/2023 Biliary drain removed, CEA 498
3/2023 FOLFOX failed after 9 rounds total, CEA raised to 651, started FOLFIRI w/o Avastin

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beach sunrise
Posts: 1080
Joined: Thu Mar 05, 2020 7:14 pm

Re: highly suspicious mets to lung

Postby beach sunrise » Sat Apr 29, 2023 2:59 pm

If there are no complications with right lung surgery I will come home after 10 days to recover for 4 weeks then go back for second surgery. The second surgery will be the easy of the two.
I have to be in the hospital on the 22nd for breathing tests and things. Then surgery the 24th.
I think I'm going to tell them I'm allergic to the ergometer lol.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test

rp1954
Posts: 1867
Joined: Mon Jun 13, 2011 1:13 am

Re: highly suspicious mets to lung

Postby rp1954 » Tue May 02, 2023 11:04 am

Congratulations on getting sharper eyes and tools for your lungs.
I hadn't realized that Coswig was an "only lungs" specialty hospital until reading a blurb on Rolle.

Some of the basic Life Extension surgery recommendations:
This combination regimen of 14g of modified citrus pectin and 800mg of cimetidine, taken at least five days before surgery, may be followed for a year or longer to reduce metastatic risk.
For your original lower CA199 values, I might focus on cimetidine 5 days before and after surgery.

That German favorite, IV mistletoe.

Tramadol vs morphine
Those requiring medication for pain control after surgery can consider asking their doctor for tramadol instead of morphine. Unlike morphine, tramadol does not suppress immune function (Liu 2006). On the contrary, tramadol has been shown to stimulate NK cell activity. In one experiment, tramadol prevented the suppression of NK cell activity and blocked the formation of surgery-induced lung metastasis in rats (Gaspani 2002).

For example, 134 patients with advanced lung cancer were treated with chemotherapy alone or combined with Celebrex® (a COX-2 inhibitor). For those individuals with cancer expressing higher amounts of COX-2, treatment with Celebrex® dramatically prolonged survival (Edelman 2008).
Both of our surgeons prescribed celecoxib after my wife's CRC surgeries, 2010-11, without any prompting at all from me.
watchful, active researcher and caregiver for stage IVb/c CC. surgeries 4/10 sigmoid etc & 5/11 para-aortic LN cluster; 8 yrs immuno-Chemo for mCRC; now no chemo
most of 2010 Life Extension recommendations and possibilities + more, some (much) higher, peaking ~2011-12, taper chemo to almost nothing mid 2018, IV C-->2021. Now supplements

User avatar
beach sunrise
Posts: 1080
Joined: Thu Mar 05, 2020 7:14 pm

Re: highly suspicious mets to lung

Postby beach sunrise » Tue May 02, 2023 12:57 pm

Thanks guys for all the support!
Rp, I will take cimetidine and pectasol C as you suggest.
I will also request Tramadol.
Thinking about getting a vitamin D shot next week for that extra boost.
Back around Thanksgiving when we had whatever*, two weeks before getting sick D levels were in the 80's and 60's for the other one. After getting well, a week later bloodwork showed D levels cut in half. Vitamin D levels are super important.
Dr. Kern approved IVC, celebrex, turmeric, vitamin D, vitamin E and a few others. Xeloda one week after surgery.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test

User avatar
beach sunrise
Posts: 1080
Joined: Thu Mar 05, 2020 7:14 pm

Re: highly suspicious mets to lung

Postby beach sunrise » Fri May 05, 2023 11:14 am

Update: I will be staying in Germany the whole time for both surgeries. I am looking at about a 2 1/2 month stay really.
Ready to get this done honestly.
Still trying to get passport renewal fast tracked. On hold now with passport people. I hope they tell me it will be in the mail in the next few days.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test

IM64
Posts: 90
Joined: Wed Nov 02, 2022 5:51 pm

Re: highly suspicious mets to lung

Postby IM64 » Fri May 05, 2023 5:04 pm

Looks as a good decision - stay under the control all the time.
Husband of DX 10/2022 (50 yo), Stage IV, MSS, KRAS G12A, PIK3CA, G545L
Multiple bilateral Lung mets/Extensive bilobar Liver mets, CEA 4163
10/2022 Colostomy, Biliary drain, FOLFOX (+Avastin 4 rounds)
1/2023 Biliary drain removed, CEA 498
3/2023 FOLFOX failed after 9 rounds total, CEA raised to 651, started FOLFIRI w/o Avastin

DarknessEmbraced
Posts: 3818
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: highly suspicious mets to lung

Postby DarknessEmbraced » Sat May 06, 2023 10:25 am

I hope your surgeries go well. *hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

IDF108
Posts: 17
Joined: Wed Nov 16, 2022 4:23 am
Location: Massachusetts

Re: highly suspicious mets to lung

Postby IDF108 » Wed May 24, 2023 8:22 pm

Hope your first surgery went well today, beach sunrise! We all are praying and rooting for you.

User avatar
beach sunrise
Posts: 1080
Joined: Thu Mar 05, 2020 7:14 pm

Re: highly suspicious mets to lung

Postby beach sunrise » Thu May 25, 2023 10:08 am

Thanks yall! I really need the confidence boost.
I was worried passport wouldn't arrive in time so we pushed surgery back to June 15, 2023. Good Grief Charlie Brown!
Passport arrived 3 days before first surgery date, smh. So, I could have made it happen after all. Anyway, it's now June 15th.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test

User avatar
beach sunrise
Posts: 1080
Joined: Thu Mar 05, 2020 7:14 pm

Re: highly suspicious mets to lung

Postby beach sunrise » Thu May 25, 2023 6:08 pm

3/4ths of pre-op bloodwork is in.
CEA up to 15.5 or 15.1 depending on which dr's bloodwork. I had both orders done at the same time.
ca19-9 down to 21
Both vitamin D levels are very good
Fibrinogen up at 421
IL-6 below 2.5 (the burdock root/Moringa tea worked great)
IL-10 is 3.6 (Low)
IL-2 is 590
vWF is high at 221. This one is so hard to keep down.
Got to redo Immunoknow (error occured somehow) and then one last regular bloodwork panel before I leave that will include GGT, AFP.
Almost forgot to add that I had to have one more CT scan. All clear everywhere besides lungs. No new nodules, the 3 nodules in right lung have not grown nor the 2 in the left lung. What a relief.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test

Mtnrspctwfe
Posts: 8
Joined: Wed Mar 02, 2022 7:14 am
Facebook Username: mtnrspct

Re: highly suspicious mets to lung

Postby Mtnrspctwfe » Sun May 28, 2023 12:12 am

Hi Beach sunrise,

Oh no wonder, I was low-key asking the ICU nurses here if they have another international patient, my husband’s second surgery was last Thursday May 25… they said were the only one’s.

I will post our whole experience here soon. My husband is recovering now hopefully in 5-6 days we’ll be discharged.

User avatar
beach sunrise
Posts: 1080
Joined: Thu Mar 05, 2020 7:14 pm

Re: highly suspicious mets to lung

Postby beach sunrise » Sun May 28, 2023 11:51 am

I am happy to see your post and your husband is now recovering from the second surgery. I look forward to hearing about how everything went.
Do you have a timeline of when you will be coming back? I would be nice to cross paths while there but I won't arrive until June 11th and at the hospital until June 13th.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test


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