highly suspicious mets to lung

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beach sunrise
Posts: 856
Joined: Thu Mar 05, 2020 7:14 pm

Re: highly suspicious mets to lung

Postby beach sunrise » Thu May 25, 2023 6:08 pm

3/4ths of pre-op bloodwork is in.
CEA up to 15.5 or 15.1 depending on which dr's bloodwork. I had both orders done at the same time.
ca19-9 down to 21
Both vitamin D levels are very good
Fibrinogen up at 421
IL-6 below 2.5 (the burdock root/Moringa tea worked great)
IL-10 is 3.6 (Low)
IL-2 is 590
vWF is high at 221. This one is so hard to keep down.
Got to redo Immunoknow (error occured somehow) and then one last regular bloodwork panel before I leave that will include GGT, AFP.
Almost forgot to add that I had to have one more CT scan. All clear everywhere besides lungs. No new nodules, the 3 nodules in right lung have not grown nor the 2 in the left lung. What a relief.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 APR -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8s
12/20 CEA 8s-9s
ADAPT++++ chrono 1/23 TM drug
CEA
10/23 26.x
12/23 22.x
1/5/23 17.1
1/20/23 15.9
3/30/23 14.9
Nodule RML SUV 1.3 5mm
POLD1 KRAS Q61H
Chem-sens test NCI "Test failed Not enough ca cells to test

Mtnrspctwfe
Posts: 8
Joined: Wed Mar 02, 2022 7:14 am
Facebook Username: mtnrspct

Re: highly suspicious mets to lung

Postby Mtnrspctwfe » Sun May 28, 2023 12:12 am

Hi Beach sunrise,

Oh no wonder, I was low-key asking the ICU nurses here if they have another international patient, my husband’s second surgery was last Thursday May 25… they said were the only one’s.

I will post our whole experience here soon. My husband is recovering now hopefully in 5-6 days we’ll be discharged.

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beach sunrise
Posts: 856
Joined: Thu Mar 05, 2020 7:14 pm

Re: highly suspicious mets to lung

Postby beach sunrise » Sun May 28, 2023 11:51 am

I am happy to see your post and your husband is now recovering from the second surgery. I look forward to hearing about how everything went.
Do you have a timeline of when you will be coming back? I would be nice to cross paths while there but I won't arrive until June 11th and at the hospital until June 13th.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 APR -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8s
12/20 CEA 8s-9s
ADAPT++++ chrono 1/23 TM drug
CEA
10/23 26.x
12/23 22.x
1/5/23 17.1
1/20/23 15.9
3/30/23 14.9
Nodule RML SUV 1.3 5mm
POLD1 KRAS Q61H
Chem-sens test NCI "Test failed Not enough ca cells to test

Mtnrspctwfe
Posts: 8
Joined: Wed Mar 02, 2022 7:14 am
Facebook Username: mtnrspct

Re: highly suspicious mets to lung

Postby Mtnrspctwfe » Sun May 28, 2023 1:45 pm

Hi beach sunrise,

Same! thought you will be at the next room if not same room with my husband in the ICU last week lol. June 13th is our booked flight back to Canada but depends if my visa extension will be granted might stay for another week or two and go sightseeing or something just because the doctors wanted him / suggested not to fly for atleast 4-6 weeks. So if they will deny my extension I will have to go back and my husband will stay here in Dresden or maybe Frankfurt for atleast another week. Dr Kern said 2 weeks should be fine but since he had some post op complications..il discuss it when I post our experience here, he would recommend to fly after atleast 4 weeks after the surgery.

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beach sunrise
Posts: 856
Joined: Thu Mar 05, 2020 7:14 pm

Re: highly suspicious mets to lung

Postby beach sunrise » Sun May 28, 2023 2:34 pm

DM sent.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 APR -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8s
12/20 CEA 8s-9s
ADAPT++++ chrono 1/23 TM drug
CEA
10/23 26.x
12/23 22.x
1/5/23 17.1
1/20/23 15.9
3/30/23 14.9
Nodule RML SUV 1.3 5mm
POLD1 KRAS Q61H
Chem-sens test NCI "Test failed Not enough ca cells to test

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Thedruid
Posts: 18
Joined: Tue Aug 21, 2018 1:49 pm
Facebook Username: theDruid

Re: highly suspicious mets to lung

Postby Thedruid » Mon May 29, 2023 4:21 pm

Hello, Beach Sunrise

I am very happy everything worked on your preparation to Rolles surgery... with a little bit of delay on the proccess, but this should not create any impact.

I hope you have a successful surgery and a rapid recovery ! And I also hope those mets are the last ones you will have to fight !


TheDruid
_____________________________________
Diagnosed 07/16/18, age 43
Colon Resection 03/08/18,
Stage 3B, T3N2aMO
Lymph-vascular invasion confirmed
6/16 lymph nodes
Port installed in 08/25/18
FOLFOX 08/18 - 2/2019
Liver met in 01/20. Stage 4. RadioAblation in 02/20
4 PALN + 01 nodule in the left lung found in 09/2021
Lymphadenectomy removed 04 PALN in 11/2021
Folfox (again) 11/21 - 05/22
Removed single lung met in 11/22
2 new "suspicious" nodules of 4mm in both lungs.. no growth until 04/23

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beach sunrise
Posts: 856
Joined: Thu Mar 05, 2020 7:14 pm

Re: highly suspicious mets to lung

Postby beach sunrise » Mon May 29, 2023 9:05 pm

Thank you so much, TheDruid! Your thoughts and support are very much appreciated.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 APR -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8s
12/20 CEA 8s-9s
ADAPT++++ chrono 1/23 TM drug
CEA
10/23 26.x
12/23 22.x
1/5/23 17.1
1/20/23 15.9
3/30/23 14.9
Nodule RML SUV 1.3 5mm
POLD1 KRAS Q61H
Chem-sens test NCI "Test failed Not enough ca cells to test


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