Recurring Sepsis- needs help

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Rgp
Posts: 22
Joined: Thu Nov 15, 2018 3:08 pm

Recurring Sepsis- needs help

Postby Rgp » Sat Mar 25, 2023 3:53 pm

Hi all,
I am having recurrent bacteremia/sepsis for the past two years. I had an HAI pump placed and roux en y hepaticojejunostomy done in 2019. The sepsis incidents started in 2020. At first my doctors thought it was due to intra hepatic bile duct dilation and placed a drain in me. After a few uneventful months , the sepsis happened again. The drain was removed by then. I was on ursodiol after that and looks like that helped with the bile duct dilation. The latest scans shows that the dilation is much better. But I am still getting sepsis and one was as recent as last week. Now they think it could be because of the reflux of small bowel contents into the bilairy tree through roux en y limb as that's the only possibility they can think of. But none of the several CT scans, MRCPs, Small bowel series & HIDA scans show any reflux. So they are hesistant to go in an extend the roux en y limb, which is already 70 cm long without some sort of confirmation that it is causing it. I am completely at sea. On top of that, last two times it was ESBL E.coli which is pretty much resistant to all antibiotics except meropenem and ertapenem.
Anybody else experienced anything like this? Could we be looking at the wrong sources? Can HAI pump cause sepsis?
Thanks in advance for all your help.
40 yr m
3/18 stage 4a, T3, N0, 3 liver Mets
3/18-7/18 6 chemo-folfox and avastin, radiation of colon
6/18 MRI- liver mets disappeared
7/18 rectal resection. No liver resection
10/18 adjuvent chemo, folfox
7/19 2 liver mets
8/19 liver resect, HAI pump, ileostomy reversal
9/19 bile duct surgery, fistula, new colostomy
9/9-12/19 adjuvent chemo FUDR
9/20 2 liver mets
9/20-11/20 FUDR & irenotecan
12/20 ablation of 2 liver mets
9/21 same 2 liver mets back
9/21-11/21 FUDR & irenotecan
12/21 SBRT

User avatar
beach sunrise
Posts: 1033
Joined: Thu Mar 05, 2020 7:14 pm

Re: Recurring Sepsis- needs help

Postby beach sunrise » Sat Mar 25, 2023 4:59 pm

Research IV vitamin C. Also pure aloe.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test

Rgp
Posts: 22
Joined: Thu Nov 15, 2018 3:08 pm

Re: Recurring Sepsis- needs help

Postby Rgp » Sat Mar 25, 2023 5:06 pm

beach sunrise wrote:Research IV vitamin C. Also pure aloe.

Thank you. I was not really looking for treatments for Sepsis; my bacteremia goes away after the first two doses of antibiotics. I was looking for more of an insight into what could be causing it.
40 yr m
3/18 stage 4a, T3, N0, 3 liver Mets
3/18-7/18 6 chemo-folfox and avastin, radiation of colon
6/18 MRI- liver mets disappeared
7/18 rectal resection. No liver resection
10/18 adjuvent chemo, folfox
7/19 2 liver mets
8/19 liver resect, HAI pump, ileostomy reversal
9/19 bile duct surgery, fistula, new colostomy
9/9-12/19 adjuvent chemo FUDR
9/20 2 liver mets
9/20-11/20 FUDR & irenotecan
12/20 ablation of 2 liver mets
9/21 same 2 liver mets back
9/21-11/21 FUDR & irenotecan
12/21 SBRT


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