The 2nd/3rd opinion process

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beach sunrise
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Joined: Thu Mar 05, 2020 7:14 pm

The 2nd/3rd opinion process

Postby beach sunrise » Tue Mar 21, 2023 3:33 pm

Finally got to the bottom of why its been so hard to get an opinion from 2 specialists I contacted. Seems you have to call say like every other day to advocate for yourself and ask the hard questions of exactly why its taking so long. Boiled down to same thing with Germany, missing scans! Now I know my hospital puts up a hard line to keep patients there just to offer what have in their wheelhouse. SMH
2 more consults are in the works. Still silence from Germany after several calls and emails. Who knows what are dealing with over there I guess, ya know.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test

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