Postby Rock_Robster » Wed Mar 15, 2023 1:13 am
To be blunt, unless you’ve also done a 10+ year degree and residency plus specialisation training, it’s very unlikely you’re “more knowledgeable” than his doctors. Unfortunately it’s easy to fall victim to the Dunning-Kruger effect when it comes to medicine.
However, what you likely do have is a lot more time and resources available to track and investigate the minutiae and unique details of your husband’s case, including “mesearch” (ie secondary research tailored around one specific patient’s unique set of presentations and history), and to tap into a broad community of experienced patient advocates. His doctors in most systems simply have no time to do this, and are also usually bound by treatment protocols either of the hospital, the insurer, or the government (depending on the location).
This is a powerful combination however. Your oncologists‘ skills, training and access to resources - combined with your motivation, time, capacity and energy - if you can find a way to work collaboratively can be very powerful. Some doctors really enjoy working like this, others don’t - I’d suggest taking the time to find one of the former.
2018 Dx RC 12cm high
G2 EMVI LVI, 4 liver mets
pT3N1aM1a Stage IVa MSS NRAS G13R
CEA: Nov-18: 14 > 2
Dec - Feb-23: 17-19
3/19 Liver resect
5/19 Pelvic IMRT
8/19 Liver met
8/19 FOLFOX, FOLFOXIRI, FOLFIRI
12/19 Liver resect
11/21 Liver met, PALN, sub-cm lung mets
3-4/22 PVE, lymphadenectomy, liver SBRT
9/22 Liver met, PALN
10/22 PALN SBRT
11/22 Liver mets, nodes, peri nodules. Xeloda+Avastin
1/23 Liver/lungs stable. Lymph/peri undetectable