Cracks in the system

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beach sunrise
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Joined: Thu Mar 05, 2020 7:14 pm

Cracks in the system

Postby beach sunrise » Wed Mar 08, 2023 10:23 am

What good is a specialty surgeon when at the end of the day after all the other factors indicate mets they do nothing but wait on a definitive scan? Its like they are saying we know and you know its mets based on combined factors except a definitive scan so we have to wait until scan proves it, so in other words we are going to let you get stuck in this crack then try to rescue you." I have hunted all surgeons I know of in the USA and that is what I feel is the underlying message.
Emailed oncologist to see if he knows someone to consult with that doesn't let SOC rule over experience.
Ya, my rant for the day.
Germany has had my missing scan for 8 days now and no word yet.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 APR -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8s
12/20 CEA 8s-9s
ADAPT++++ chrono 1/23 TM drug
CEA
10/23 26.x
12/23 22.x
1/5/23 17.1
1/20/23 15.9
3/30/23 14.9
Nodule RML SUV 1.3 5mm
POLD1 KRAS Q61H
Chem-sens test NCI "Test failed Not enough ca cells to test

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