Five years since stage IV diagnosis

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Five years since stage IV diagnosis

Postby Atoq » Thu Feb 23, 2023 6:11 am

Hi, I just thought I would check in to share the wonderful news that at the last scan and scope everything was fine :D
The surveillance is ending here and I go back to the same statistics as people who never had a cancer diagnosis.
I hope this positive story will encourage someone! I was diagnosed with stage IV rectal cancer and one metastasis in the lungs and I am now living a pretty much normal life.

You can find my story at this link: viewtopic.php?t=59025

All the best and take care!

1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surg. for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 scope
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED
29.11.20 CAT, NED
2023 NED

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Joined: Sun Feb 10, 2008 6:00 pm

Re: Five years since stage IV diagnosis

Postby CRguy » Thu Feb 23, 2023 1:10 pm

All the best too you too, Claudia, that is great news.
Thanks for sharing it here.
You and I have similar trajectories and it is always good to share with Clubbers !!!

Cheers and Harmony on the Journey
Caregiver x 4
Stage IV A rectal cancer/lung met
16 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Joined: Sun Jan 12, 2020 8:46 pm

Re: Five years since stage IV diagnosis

Postby roadrunner » Thu Feb 23, 2023 1:54 pm

Claudia: Congrats! That is huge. On a personal note, your story really inspired me when I was facing my VATS surgery. I recall you saying that yours didn’t have a significant impact on your lung function, and that you would have noticed, “because [you’re] a runner.” That pulled me through sometimes as I got back into running. Now back to nearly daily running, I can say that you were 100% right (though I still use it as an excuse when I run with my teen son ; )

Now I just hope that I can follow you some more, with luck all the way to five years clear. Thanks to you and others like you who post these milestones.
7/19: RC: Staged IIIA, T2N1M0
approx 4.25 cm, low/mid rectum, mod. well diff.; lung micronodule
8/19-10/19 4 rds.FOLFOX neoadjuvant, 3 w/Oxiplatin (reduced 70-75%)
neoadjuvant chemorad 11/19
4 rounds FOLFOX July-August 2020
ncCR 10/20; biopsies neg
TAE 11/20, tumor cells removed
Chest CT 3/30/21 growth in 2 nodules (3 and 5mm)
VATS 12/8/21 sub-pleural met 7mm.
SBRT nodule 1/22
CT 3/22: Clear
Chest CT 5/19/22 Clear
6/20/22 TAE rectal polyp benign
CT/MRI 9/11 Clear
11/9/22: Rectal exam/scope Clear (2 yrs.)

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beach sunrise
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Re: Five years since stage IV diagnosis

Postby beach sunrise » Thu Feb 23, 2023 4:50 pm

This is the best news!
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8s
12/20 CEA 8s-9s
ADAPT++++ chrono 1/23 TM drug
10/23 26.x
12/23 22.x
1/5/23 17.1
1/20/23 15.9
Nodule RML SUV 1.3 5mm
Chem-sens test NCI "Test failed Not enough ca cells to test

Posts: 497
Joined: Mon Oct 01, 2018 4:29 pm

Re: Five years since stage IV diagnosis

Postby Punky44 » Fri Feb 24, 2023 9:50 pm

Awesome update! Congrats!
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4; 3.0; 3.4; 3.1; 3.4; 3.0; 3.1
Latest update: 1/16/23 Clear CT with CEA 3.1

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

Posts: 3751
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Five years since stage IV diagnosis

Postby DarknessEmbraced » Sat Feb 25, 2023 10:13 am

Congratulations! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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