2.5 years test results

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I_will_fight
Posts: 111
Joined: Mon Jun 29, 2020 3:38 pm

2.5 years test results

Postby I_will_fight » Thu Jan 12, 2023 12:13 pm

Hi all,

My 2.5 years test results are just back.
My tumor markers were normal
CEA: 1.4
CA19-9: 2
CA125: 7 (I have recently started asking for this)
Signatera negative
CT Scan with no pathological findes.

I am obviously very happy, just one thing was a bit strange, the CT operator asked me "how many CT scans have you already had" I said "four already, why?" and he replied "we use different "cutting" settiings for the first two CT scans" has anybody ever heard of this?

It bothers me a little bit because I have a small lesion in the liver which this time did not show up in the scan, so I am wondering if they used a lower resolution setting. Am I just being paranoid?

Thank you all!
46 yo male Spain
06/2020 - 6cm T3N0M0 CC splenic flex
3 and 4 mm lung ground glass
lymp 0/37
dMMR MSH6
KRAS mt G13D
V/LNI absent
PNI present
07/20 - hemicol surg, optimistic surgeon.
11/20 - 4 x CAPOX completed.
12/20 - Clear colonoscopy
02/21 - MRI liver lesion unchanged.
11/21 - Clear CT
02/22- Colonoscopy: Sessil polyp 3mm
05/22- Clear CT
06/22- Negative Signatera
12/22- Negative Signatera
01/23- Clear CT

Claudine
Posts: 757
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: 2.5 years test results

Postby Claudine » Thu Jan 12, 2023 6:23 pm

I'm sorry I can't provide any answer to your question, but I just wanted to say that I'm thrilled by the good results! I hope they stay that way forever and you can leave this all behind!
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary

Tumors: L4 vertebrae 04/18; left adrenal gland & small lung nodules 03/19;
rectum 02/22 (pT3 pN0 stage 2A); L3 vertebrae 09/22

Surgeries: intestinal resection 05/18 (no cancer - Crohn's); adrenalectomy 02/20;
L3-L4-L5 fusion and corpectomy 05/20; LAR 04/22; ileo reversal 09/22;
L2-L3 fusion and corpectomy 09/22

Treatments: EBRT 04/18; SBRT 02/19; Failed adjuvant Xelox ; Folfiri/Avastin 03/19 - 01/20;
adjuvant chemorad (Xeloda) 06/22; SBRT 11/22

pantufla
Posts: 143
Joined: Thu Dec 03, 2015 12:44 pm
Facebook Username: kelleykulina

Re: 2.5 years test results

Postby pantufla » Fri Jan 13, 2023 12:15 am

I bet it went away. Congrats on good results.
DH T2 N1b M0. 3/15 positive nodes.
Stage IIIA moderately differentiated adenocarcinoma.
Tumor size 6 cm.
Left hemicolectomy 10/26/15.
FOLFOX 11/30/15 to 5/2/16, full 12 cycles.
10/3/16 CT scan clear.
11/10/17 CT: "Focal opacity along the left lower lung, 7 mm. Two small peripheral opacities along the right lower lobe, 2 to 3 mm. A few small to mildly prominent left-sided central mesenteric nodes, up to 13 mm.
June 2019: NED.
2020: NED 5 years.

roadrunner
Posts: 347
Joined: Sun Jan 12, 2020 8:46 pm

Re: 2.5 years test results

Postby roadrunner » Fri Jan 13, 2023 11:50 am

Many variables are relevant to evaluation of issues like this, e.g., the number of “slices” taken in the scans, the interval between scans, the size of the “lesion”/finding, any changes in the lesion, and any radiologic diagnostic evaluations of the lesion. (For example hepatic hemangiomas often have a very distinctive, reliable radiological profile.) The approach to scans taken by your team may be relevant as well, but if you’re looking for reassurance, the best course is likely to ask your doctors about it. The types of scans used may be irrelevant in the big picture once all of this information is considered. They likely are doing that, and can advise you. If not, your inquiry should prompt the right review of your scans.
7/19: RC: Staged IIIA, T2N1M0
approx 4.25 cm, low/mid rectum, mod. well diff.; lung micronodule
8/19-10/19 4 rds.FOLFOX neoadjuvant, 3 w/Oxiplatin (reduced 70-75%)
neoadjuvant chemorad 11/19
4 rounds FOLFOX July-August 2020
ncCR 10/20; biopsies neg
TAE 11/20, tumor cells removed
Chest CT 3/30/21 growth in 2 nodules (3 and 5mm)
VATS 12/8/21 sub-pleural met 7mm.
SBRT nodule 1/22
CT 3/22: Clear
Chest CT 5/19/22 Clear
6/20/22 TAE rectal polyp benign
CT/MRI 9/11 Clear
11/9/22: Rectal exam/scope Clear (2 yrs.)

I_will_fight
Posts: 111
Joined: Mon Jun 29, 2020 3:38 pm

Re: 2.5 years test results

Postby I_will_fight » Sat Jan 14, 2023 3:01 am

roadrunner wrote:Many variables are relevant to evaluation of issues like this, e.g., the number of “slices” taken in the scans, the interval between scans, the size of the “lesion”/finding, any changes in the lesion, and any radiologic diagnostic evaluations of the lesion. (For example hepatic hemangiomas often have a very distinctive, reliable radiological profile.) The approach to scans taken by your team may be relevant as well, but if you’re looking for reassurance, the best course is likely to ask your doctors about it. The types of scans used may be irrelevant in the big picture once all of this information is considered. They likely are doing that, and can advise you. If not, your inquiry should prompt the right review of your scans.


Thanks for your answer roadrunner

I have had a couple of issues with the radiodiagnostic team in the past: Yhey missed the liver spot initially only to say later "oh, ok, it was there all along". Also in a previous report they wrote "spleen unremarkable" when I have no spleen.

When I challenged them through my onc they replied something along the lines of "we have a template from which we copy-and-paste and then we put change whatever is relevant"

After that happened I have, in a few occasions, resorted to "second opinion radiologist" in a clinic in another city (to avoid "personal ties") so I send them a DVD with my images and ask them to confirm the diagnostic (this cost me about 250 euros, so I think it is very reasonable)... I will probably do the same this time, just for peace of mind.

Best regards

Javi
46 yo male Spain
06/2020 - 6cm T3N0M0 CC splenic flex
3 and 4 mm lung ground glass
lymp 0/37
dMMR MSH6
KRAS mt G13D
V/LNI absent
PNI present
07/20 - hemicol surg, optimistic surgeon.
11/20 - 4 x CAPOX completed.
12/20 - Clear colonoscopy
02/21 - MRI liver lesion unchanged.
11/21 - Clear CT
02/22- Colonoscopy: Sessil polyp 3mm
05/22- Clear CT
06/22- Negative Signatera
12/22- Negative Signatera
01/23- Clear CT

I_will_fight
Posts: 111
Joined: Mon Jun 29, 2020 3:38 pm

Re: 2.5 years test results

Postby I_will_fight » Sat Jan 14, 2023 3:13 am

thank you Claudine and Pantufla for your kind words as well.
46 yo male Spain
06/2020 - 6cm T3N0M0 CC splenic flex
3 and 4 mm lung ground glass
lymp 0/37
dMMR MSH6
KRAS mt G13D
V/LNI absent
PNI present
07/20 - hemicol surg, optimistic surgeon.
11/20 - 4 x CAPOX completed.
12/20 - Clear colonoscopy
02/21 - MRI liver lesion unchanged.
11/21 - Clear CT
02/22- Colonoscopy: Sessil polyp 3mm
05/22- Clear CT
06/22- Negative Signatera
12/22- Negative Signatera
01/23- Clear CT

DarknessEmbraced
Posts: 3746
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 2.5 years test results

Postby DarknessEmbraced » Sat Jan 14, 2023 12:34 pm

Congratulations on receiving good results! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

utahgal7
Posts: 115
Joined: Fri Sep 11, 2020 12:04 pm

Re: 2.5 years test results

Postby utahgal7 » Sat Jan 14, 2023 2:17 pm

That's wonderful that you had very positive results. Hoping that you have a "NED" 2023.

Best wishes,

Paige
02/20 Rectal Cancer dx - 4 cm mass; located 9 cm from AV
03/20 CEA 2.7; 0.9; 1.4; 0.9; 0.9; 1.2; 1.0; 0.8; 1.1; 1.0; 1.1; 1.7; 1.8; 1.8
04/20 ST Radiation; 04/20 LAR surgery w/ileostomy
04/20 ypT3N1bM0; MSS;
05/20 CAPEOX; 08/20 Ileostomy reversal
12/20 CT scan; lung nodules (watch and wait);
07/22 - 08/22 CT scan; (1) lung nodule (right lower lobe 9mm X 7mm) numerous micro nodules left lung
11/22 lung nodule biopsy positive for RC met;
1/23 VATS right lower lobe wedge resection

I_will_fight
Posts: 111
Joined: Mon Jun 29, 2020 3:38 pm

Re: 2.5 years test results

Postby I_will_fight » Sun Jan 15, 2023 2:27 am

DarknessEmbraced wrote:Congratulations on receiving good results! :)


Thank you!
46 yo male Spain
06/2020 - 6cm T3N0M0 CC splenic flex
3 and 4 mm lung ground glass
lymp 0/37
dMMR MSH6
KRAS mt G13D
V/LNI absent
PNI present
07/20 - hemicol surg, optimistic surgeon.
11/20 - 4 x CAPOX completed.
12/20 - Clear colonoscopy
02/21 - MRI liver lesion unchanged.
11/21 - Clear CT
02/22- Colonoscopy: Sessil polyp 3mm
05/22- Clear CT
06/22- Negative Signatera
12/22- Negative Signatera
01/23- Clear CT

I_will_fight
Posts: 111
Joined: Mon Jun 29, 2020 3:38 pm

Re: 2.5 years test results

Postby I_will_fight » Sun Jan 15, 2023 2:28 am

utahgal7 wrote:That's wonderful that you had very positive results. Hoping that you have a "NED" 2023.

Best wishes,

Paige


Thanks a lot Paige

Wishing you (and all forum members) the same
46 yo male Spain
06/2020 - 6cm T3N0M0 CC splenic flex
3 and 4 mm lung ground glass
lymp 0/37
dMMR MSH6
KRAS mt G13D
V/LNI absent
PNI present
07/20 - hemicol surg, optimistic surgeon.
11/20 - 4 x CAPOX completed.
12/20 - Clear colonoscopy
02/21 - MRI liver lesion unchanged.
11/21 - Clear CT
02/22- Colonoscopy: Sessil polyp 3mm
05/22- Clear CT
06/22- Negative Signatera
12/22- Negative Signatera
01/23- Clear CT


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