STAGE IV RC GUYS AND GALS

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stu
Posts: 1618
Joined: Sat Aug 17, 2013 5:46 pm

Re: STAGE IV RC GUYS AND GALS

Postby stu » Mon Sep 09, 2024 1:21 pm

:D Just wrote a big reply and it disappeared!

That’s a very accurate description Roadrunner ! :D
Never worried much about cancer but did about her family and hated osteoporosis !
We should have paid more attention to her bone density .
We only use chemo for visible disease here , so only every had 12 cycles of chemo to get on top of her liver spread way back . Then ten months of a biological agent last year when she recurred in her mediastinal Lymph nodes and one lung met .
She had a great response and the lymph nodes disappeared and the lung node went right down .
A scan two weeks before she died showed an extensive spread , too many to count .

How she contained that level of microdisease is a mystery .
She had a good immune system . Looked after her gut biome . Ate fruit and nuts for breakfast but had a good appetite. Liked to be out and about and continued that right up to the week before she died .
Her tumour sample is being tested as part of a longevity study . There was a lot of questions about her diet , her approach to life . The focus seemed to be on the role of T cells .

A dr told her it would be good to add in pomegranate seeds when on a her biological treatment as it had a role to play with the gut absorption. She did as recommended and the oncologist told her she had great results but wanted to go back and speak with the radiologist as she was not convinced they could be real ! However we had seen this way back when she was on chemo .

What causes the shift in either direction who knows but I do hope some scientists is working on it .
She stayed connected to life and family to the end . I class that as a win !

I wish you all every success going forward !
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

roadrunner
Posts: 507
Joined: Sun Jan 12, 2020 8:46 pm

Re: STAGE IV RC GUYS AND GALS

Postby roadrunner » Mon Sep 09, 2024 1:43 pm

Stu: That is a win of epic proportions! Reasonably regarded, she beat Stage IV CRC, and on her terms. Yes, it may technically have played a role in her death, but I think nearly all of us would’ve taken an 82-yr. run if offered at the start (of life, not cancer), and clearly she enjoyed it nearly to the end, which is far better than most perfectly healthy people do. She was the equivalent of an Olympic champion, really. And in the sport that matters most.
7/19: RC: Staged IIIA, T2N1M0
approx 4.25 cm, low/mid rectum, mod. well diff.; lung micronodule
8/19-10/19 4 rds.FOLFOX neoadjuvant, 3 w/Oxiplatin (reduced 70-75%)
neoadjuvant chemorad 11/19
4 rounds FOLFOX July-August 2020
ncCR 10/20; biopsies neg
TAE 11/20
Chest CT 3/30/21 growth 2 nodules (3 and 5mm)
VATS 12/8/21 sub-pleural met 7mm.
SBRT nodule 1/22
6/20/22 TAE rectal polyp)
NED from 3/22 - 3/23
4 cycles FOLFIRI
LUL VATS lobectomy 7/7/23
5 cycles FOLFOX
APR 6/24. NED for now

claudine
Posts: 820
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: STAGE IV RC GUYS AND GALS

Postby claudine » Mon Sep 09, 2024 3:15 pm

Many thoughts to you and yours, Stu. This is pretty amazing, what your mom did, keeping cancer at bay for so long with minimum treatment! Someone posted somewhere (apologies if it was on this forum and one of you recognizes themselves!) that "unless the proverbial bus hits you, eventually your cancer is likely to get you", but that eventuality took many years for your mom, during which she had a good life.
Losing a parent is hard no matter how you slice it, so you are in my thoughts; thank you for dropping by, and giving us the news.
Much love,
Claudine
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary

Tumors: L4 04/18; left adrenal gland & small lung nodules 03/19
rectum 02/22 (pT3 pN0 stage 2A); L3 09/22

Surgeries: intestinal resect. 05/18 (no cancer - Crohn's); adrenalectomy 02/20
L3-L4-L5 fusion and corpectomy 05/20; LAR 04/22; ileo reversal 09/22
L2-L3 fusion and corpectomy 09/22

Treatments: EBRT 04/18; SBRT 02/19; Failed adjuvant Xelox ; Folfiri/Avastin 03/19 - 01/20
adjuvant chemorad (Xeloda) 06/22; SBRT 11/22; Xeloda/Avastin since 01/24

IDF108
Posts: 26
Joined: Wed Nov 16, 2022 4:23 am
Location: Massachusetts

Re: STAGE IV RC GUYS AND GALS

Postby IDF108 » Wed Sep 11, 2024 11:23 am

Stu,

Please accept my condolences, and may your dearest Mum rest in peace reunited with your Dad.


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