5 years post stage 4 diagnosis and all clear!

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Gravelyguy
Posts: 382
Joined: Thu Jul 05, 2018 6:03 pm

5 years post stage 4 diagnosis and all clear!

Postby Gravelyguy » Tue Jan 10, 2023 11:11 am

Hi Everyone,

I don't post much anymore but do check in from time to time. In late December I was at Mayo Rochester for my annual review. All is clear and I was released to my primary Dr. A little mixed feelings about it all. I love being considered cured but will miss the care that I got at Mayo.

On a side note, My LARS that had been pretty will under control had really taken a turn the last 4 months or so. I mentioned this to my Oncologist and after asking some more questions, he recommended taking Metamucil once a day. I have to say it has been a life changer. I fell about 90% back to my pre-surgery self. What a blessing!

Hang in there all who are in the midst of this thing!

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 CEA .9 still NED!
6/11/19 CEA 1.0
12/19/19 CEA 1.0 still NED!
6/17/20 CEA 1.1 still NED!
12/15/20 CEA 1.1still NED!
12/16/21 CEA 1.2 still NED!

roadrunner
Posts: 347
Joined: Sun Jan 12, 2020 8:46 pm

Re: 5 years post stage 4 diagnosis and all clear!

Postby roadrunner » Tue Jan 10, 2023 1:29 pm

Congratulations! That’s huge. Great to hear stories like yours, so thanks for checking in.
7/19: RC: Staged IIIA, T2N1M0
approx 4.25 cm, low/mid rectum, mod. well diff.; lung micronodule
8/19-10/19 4 rds.FOLFOX neoadjuvant, 3 w/Oxiplatin (reduced 70-75%)
neoadjuvant chemorad 11/19
4 rounds FOLFOX July-August 2020
ncCR 10/20; biopsies neg
TAE 11/20, tumor cells removed
Chest CT 3/30/21 growth in 2 nodules (3 and 5mm)
VATS 12/8/21 sub-pleural met 7mm.
SBRT nodule 1/22
CT 3/22: Clear
Chest CT 5/19/22 Clear
6/20/22 TAE rectal polyp benign
CT/MRI 9/11 Clear
11/9/22: Rectal exam/scope Clear (2 yrs.)

Suelee20
Posts: 10
Joined: Sat Dec 31, 2022 1:44 pm

Re: 5 years post stage 4 diagnosis and all clear!

Postby Suelee20 » Tue Jan 10, 2023 4:05 pm

Congratulations!! I hope to also be able to look back and feel the sense of fondness that you have for your medical team cheering you on. Again congrats!
Wife of DH (52); DX 9/27/18; CEA 22.9
10/31/18 LAR; Rectosig;6.2x4.5x1.1cm; Inv adenocarc; LowGr; pT4bN2b;tumor inv through muscularis propria into pericolorectal soft tissue;tumor inv peritoneal memb, ext to the serosal surf,inv the pelv sidewall;LN - 8/27;neg margins;WT-KRAS,NRAS,BRAF; MSS
Surg2/21(liv)
Ablat3/19(liv)
AdjChemoRT+Cap8/19(pelv)
Cykniferad1/20(liv)
SBRT12/21(lungs)
Stent6/22(rect)
CAPOX+Bev(4x);Folfiri+Bev(5x);Cap+Cetux(5x);Capiri+Cetux(14x);Oxali+Cetux(7x)
1/23Capiri+cetux totrytoslowprog

utahgal7
Posts: 115
Joined: Fri Sep 11, 2020 12:04 pm

Re: 5 years post stage 4 diagnosis and all clear!

Postby utahgal7 » Tue Jan 10, 2023 4:20 pm

Dave,

That is great news! I am so happy for you. Go celebrate your freedom from scans/bloodwork, etc.


Happy New Year,

Paige
02/20 Rectal Cancer dx - 4 cm mass; located 9 cm from AV
03/20 CEA 2.7; 0.9; 1.4; 0.9; 0.9; 1.2; 1.0; 0.8; 1.1; 1.0; 1.1; 1.7; 1.8; 1.8
04/20 ST Radiation; 04/20 LAR surgery w/ileostomy
04/20 ypT3N1bM0; MSS;
05/20 CAPEOX; 08/20 Ileostomy reversal
12/20 CT scan; lung nodules (watch and wait);
07/22 - 08/22 CT scan; (1) lung nodule (right lower lobe 9mm X 7mm) numerous micro nodules left lung
11/22 lung nodule biopsy positive for RC met;
1/23 VATS right lower lobe wedge resection

nmorgen
Posts: 54
Joined: Sat Nov 05, 2022 10:31 am

Re: 5 years post stage 4 diagnosis and all clear!

Postby nmorgen » Wed Jan 11, 2023 2:30 am

Congratulations!
DH age 47
DX 10/22 stage 4
2 tumors in sigmoid colon 2 Mets liver
adenocarcinoma
MSI-H, TMB-H 38, KRAS G13V, ERBB2 neg, BRCA2, POLE
Grade 1 well differentiated
12/1/22 Yervoy and Opdivo CEA 5.4
12/19/22 Yervoy & Opdivo CEA 4.6
01/12/22 Yervoy & Opdivo CEA 3.9

DarknessEmbraced
Posts: 3746
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 5 years post stage 4 diagnosis and all clear!

Postby DarknessEmbraced » Sat Jan 14, 2023 6:08 pm

Congratulations! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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CRguy
Posts: 10422
Joined: Sun Feb 10, 2008 6:00 pm

Re: 5 years post stage 4 diagnosis and all clear!

Postby CRguy » Sun Jan 15, 2023 1:42 am

Gravelyguy wrote:Hang in there all who are in the midst of this thing!
Dave

Stay STRONG and carry ON !

Glad you are doing well
Cheers and best wishes
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
15 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Punky44
Posts: 495
Joined: Mon Oct 01, 2018 4:29 pm

Re: 5 years post stage 4 diagnosis and all clear!

Postby Punky44 » Tue Jan 17, 2023 10:54 pm

So happy to see! Your posts have been helping me since I joined! My mom just got her 6 month check on Monday and all stable. Almost at the 4 year mark now for us! Take care!
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4; 3.0; 3.4; 3.1; 3.4; 3.0; 3.1
Latest update: 1/16/23 Clear CT with CEA 3.1

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

Claudine
Posts: 761
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: 5 years post stage 4 diagnosis and all clear!

Postby Claudine » Thu Jan 19, 2023 6:29 pm

Five years, that's major!! May it continues that way forever!
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary

Tumors: L4 vertebrae 04/18; left adrenal gland & small lung nodules 03/19;
rectum 02/22 (pT3 pN0 stage 2A); L3 vertebrae 09/22

Surgeries: intestinal resection 05/18 (no cancer - Crohn's); adrenalectomy 02/20;
L3-L4-L5 fusion and corpectomy 05/20; LAR 04/22; ileo reversal 09/22;
L2-L3 fusion and corpectomy 09/22

Treatments: EBRT 04/18; SBRT 02/19; Failed adjuvant Xelox ; Folfiri/Avastin 03/19 - 01/20;
adjuvant chemorad (Xeloda) 06/22; SBRT 11/22

stu
Posts: 1603
Joined: Sat Aug 17, 2013 5:46 pm

Re: 5 years post stage 4 diagnosis and all clear!

Postby stu » Mon Jan 23, 2023 4:42 pm

Brilliant news . Delighted for you .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

User avatar
horizon
Posts: 1661
Joined: Tue Apr 12, 2011 10:10 pm

Re: 5 years post stage 4 diagnosis and all clear!

Postby horizon » Wed Jan 25, 2023 3:08 pm

Huge milestone. Congrats!!!
I'm just a dude who still can't believe he had a resection and went through chemo (currently 12 years NED). Is this real life?

User avatar
ginabeewell
Posts: 565
Joined: Wed Oct 24, 2018 10:30 am

Re: 5 years post stage 4 diagnosis and all clear!

Postby ginabeewell » Thu Jan 26, 2023 11:18 pm

Five years YES!! Congratulations - this is exciting and I hope you are celebrating appropriately!!
49 YO mom of twins (11) lucky stepmom of 16/19 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets CEA 931
Currently NED!

Join me on a lookback of my journey via my Strive for Five on Substack here:
https://ginajacobson.substack.com

All treatment details here:
https://www.weareallmadeofstars.net/col ... nt-journey

My favorite posts here:
https://weareallmadeofstars.net/favorite-posts

Koreysue
Posts: 258
Joined: Mon Apr 30, 2018 2:36 pm

Re: 5 years post stage 4 diagnosis and all clear!

Postby Koreysue » Tue Jan 31, 2023 2:32 pm

Woo hoo!
Congrats and thanks for posting this good and hopeful news. I am waiting on my 5 year scan results today.
I too have mixed feelings about being discharged. Are you going to still do yearly CEA/CBC ?
Ksue
Dx: 6/2017 stage 3 CC
Sigmoid, 2 nodes
CEA at dx: 6.1
Sigmoid Colectomy/folfox (last chemo (1/31/18)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/18 clean
PET scan 8/20/18 NED
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT NED 6/18/19 / CEA : 3.4
CEA 10/21/19: 3.2
CEA 3/9/20: 3.8
CT NED /CEA 6/17/20: 3.8
CEA 11/4/20 4.6 <——— whyyyy? (will retest in a few weeks)
CT NED 12/1/20 CEA: 3.5
CEA 5/21 4.2
CEA 10/21 3.4
colonoscopy 10/21 10mm polyp
CEA 4/22 3.7
CEA 7/22 3.8
CEA 12/22 4
CEA 1/22 3.2 and NED 5yr scan

plastikos
Posts: 348
Joined: Wed Jan 14, 2015 6:09 am

Re: 5 years post stage 4 diagnosis and all clear!

Postby plastikos » Thu Feb 02, 2023 6:33 am

This is great news Dave. Congrats. Be well.
St. IV Colon CA @ 37, male, Kras wild, MSI-high (2014)
11/2014 Right Hemicolectomy + Liver Resection
12/2014 - 6/2015 FOLFOX + Cetuximab
10/2015 - Recurrence liver
Liver resection 10/2015
FOLFIRI 11/2015 - 5/2016
Recurrence liver, nodes 11/2016
Pembrolizumab started 12/2016 -> pseudoprogression(?) -> biliary obstruction -> biliary stenting
Chemo 4x: most mets inactive and smaller on PET-CT
March 2017 - Back on Pembrolizumab again
Sept 2017 - SIRT - > NED
2019 NED


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