5 years post stage 4 diagnosis and all clear!

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Gravelyguy
Posts: 382
Joined: Thu Jul 05, 2018 6:03 pm

5 years post stage 4 diagnosis and all clear!

Postby Gravelyguy » Tue Jan 10, 2023 11:11 am

Hi Everyone,

I don't post much anymore but do check in from time to time. In late December I was at Mayo Rochester for my annual review. All is clear and I was released to my primary Dr. A little mixed feelings about it all. I love being considered cured but will miss the care that I got at Mayo.

On a side note, My LARS that had been pretty will under control had really taken a turn the last 4 months or so. I mentioned this to my Oncologist and after asking some more questions, he recommended taking Metamucil once a day. I have to say it has been a life changer. I fell about 90% back to my pre-surgery self. What a blessing!

Hang in there all who are in the midst of this thing!

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 CEA .9 still NED!
6/11/19 CEA 1.0
12/19/19 CEA 1.0 still NED!
6/17/20 CEA 1.1 still NED!
12/15/20 CEA 1.1still NED!
12/16/21 CEA 1.2 still NED!

roadrunner
Posts: 484
Joined: Sun Jan 12, 2020 8:46 pm

Re: 5 years post stage 4 diagnosis and all clear!

Postby roadrunner » Tue Jan 10, 2023 1:29 pm

Congratulations! That’s huge. Great to hear stories like yours, so thanks for checking in.
7/19: RC: Staged IIIA, T2N1M0
approx 4.25 cm, low/mid rectum, mod. well diff.; lung micronodule
8/19-10/19 4 rds.FOLFOX neoadjuvant, 3 w/Oxiplatin (reduced 70-75%)
neoadjuvant chemorad 11/19
4 rounds FOLFOX July-August 2020
ncCR 10/20; biopsies neg
TAE 11/20, tumor cells removed
Chest CT 3/30/21 growth in 2 nodules (3 and 5mm)
VATS 12/8/21 sub-pleural met 7mm.
SBRT nodule 1/22
6/20/22 TAE rectal polyp benign)
NED from 3/22 - 3/23
4 cycles FOLFIRI
LUL VATS lobectomy for radio resistant met 7/7/23

Suelee20
Posts: 11
Joined: Sat Dec 31, 2022 1:44 pm

Re: 5 years post stage 4 diagnosis and all clear!

Postby Suelee20 » Tue Jan 10, 2023 4:05 pm

Congratulations!! I hope to also be able to look back and feel the sense of fondness that you have for your medical team cheering you on. Again congrats!
Wife of DH (52); DX 9/27/18; CEA 22.9
10/31/18 LAR; Rectosig;6.2x4.5x1.1cm; Inv adenocarc; LowGr; pT4bN2b;tumor inv through muscularis propria into pericolorectal soft tissue;tumor inv peritoneal memb, ext to the serosal surf,inv the pelv sidewall;LN - 8/27;neg margins;WT-KRAS,NRAS,BRAF; MSS
Surg2/21(liv)
Ablat3/19(liv)
AdjChemoRT+Cap8/19(pelv)
Cykniferad1/20(liv)
SBRT12/21(lungs)
Stent6/22(rect)
CAPOX+Bev(4x);Folfiri+Bev(5x);Cap+Cetux(5x);Capiri+Cetux(14x);Oxali+Cetux(7x)
1/23Capiri+cetux totrytoslowprog

utahgal7
Posts: 212
Joined: Fri Sep 11, 2020 12:04 pm

Re: 5 years post stage 4 diagnosis and all clear!

Postby utahgal7 » Tue Jan 10, 2023 4:20 pm

Dave,

That is great news! I am so happy for you. Go celebrate your freedom from scans/bloodwork, etc.


Happy New Year,

Paige
02/20 Rectal Cancer dx - 4 cm mass; located 9 cm from AV
03/20 CEA 2.7; 0.9; 1.4; 0.9; 0.9; 1.2; 1.0; 0.8; 1.1; 1.0; 1.1; 1.7; 1.8; 1.8
1.9; 2.4; 2.3; 2.8; 2.2, 2.8, 3.2; 3.0; 1.6; 2.0; 1.2; 1.4
04/20 ST Radiation; 04/20 LAR surgery w/ileostomy; ypT3N1bM0; MSS, KRAS G12A
05/20 CAPEOX; 08/20 Ileostomy reversal
12/20 CT scan; lung nodules (watch and wait);
11/22 lung nodule biopsy positive for RC met;
1/23 VATS right lower lobe wedge resection
FOLFIRI 10 cycles
4/24 left brain craniotomy (RC met)

nmorgen
Posts: 85
Joined: Sat Nov 05, 2022 10:31 am

Re: 5 years post stage 4 diagnosis and all clear!

Postby nmorgen » Wed Jan 11, 2023 2:30 am

Congratulations!
DH age 47
DX 10/22 stage 4
2 tumors in sigmoid colon 2 Mets liver
adenocarcinoma
MSI-H, TMB-H 38, KRAS G13V, ERBB2 neg, BRCA2, Lynch Syndrome
Grade 1 well differentiated
12/1/22 Yervoy and Opdivo CEA 5.4
12/19/22 Yervoy & Opdivo CEA 4.6
01/12/22 Yervoy & Opdivo CEA 3.9
2/13/23 Yervoy& Opdivo CEA 3.4
3/7/23 ct scans no change
3/9/23 Opdivo CEA 3.4
4/4/23 Opdivo CEA 2.3
6/1/23 Opdivo CEA 2.6

DarknessEmbraced
Posts: 3819
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 5 years post stage 4 diagnosis and all clear!

Postby DarknessEmbraced » Sat Jan 14, 2023 6:08 pm

Congratulations! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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CRguy
Posts: 10489
Joined: Sun Feb 10, 2008 6:00 pm

Re: 5 years post stage 4 diagnosis and all clear!

Postby CRguy » Sun Jan 15, 2023 1:42 am

Gravelyguy wrote:Hang in there all who are in the midst of this thing!
Dave

Stay STRONG and carry ON !

Glad you are doing well
Cheers and best wishes
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Punky44
Posts: 498
Joined: Mon Oct 01, 2018 4:29 pm

Re: 5 years post stage 4 diagnosis and all clear!

Postby Punky44 » Tue Jan 17, 2023 10:54 pm

So happy to see! Your posts have been helping me since I joined! My mom just got her 6 month check on Monday and all stable. Almost at the 4 year mark now for us! Take care!
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4; 3.0; 3.4; 3.1; 3.4; 3.0; 3.1; 2.6
Latest update: 8/21/23 Clear CT with CEA 2.6!

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

claudine
Posts: 813
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: 5 years post stage 4 diagnosis and all clear!

Postby claudine » Thu Jan 19, 2023 6:29 pm

Five years, that's major!! May it continues that way forever!
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary

Tumors: L4 04/18; left adrenal gland & small lung nodules 03/19
rectum 02/22 (pT3 pN0 stage 2A); L3 09/22

Surgeries: intestinal resect. 05/18 (no cancer - Crohn's); adrenalectomy 02/20
L3-L4-L5 fusion and corpectomy 05/20; LAR 04/22; ileo reversal 09/22
L2-L3 fusion and corpectomy 09/22

Treatments: EBRT 04/18; SBRT 02/19; Failed adjuvant Xelox ; Folfiri/Avastin 03/19 - 01/20
adjuvant chemorad (Xeloda) 06/22; SBRT 11/22; Xeloda/Avastin since 01/24

stu
Posts: 1614
Joined: Sat Aug 17, 2013 5:46 pm

Re: 5 years post stage 4 diagnosis and all clear!

Postby stu » Mon Jan 23, 2023 4:42 pm

Brilliant news . Delighted for you .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

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horizon
Posts: 1670
Joined: Tue Apr 12, 2011 10:10 pm

Re: 5 years post stage 4 diagnosis and all clear!

Postby horizon » Wed Jan 25, 2023 3:08 pm

Huge milestone. Congrats!!!
I'm just a dude who still can't believe he had a resection and went through chemo (currently 13 years NED). Is this real life?

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ginabeewell
Posts: 565
Joined: Wed Oct 24, 2018 10:30 am

Re: 5 years post stage 4 diagnosis and all clear!

Postby ginabeewell » Thu Jan 26, 2023 11:18 pm

Five years YES!! Congratulations - this is exciting and I hope you are celebrating appropriately!!
49 YO mom of twins (11) lucky stepmom of 16/19 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets CEA 931
Currently NED!

Join me on a lookback of my journey via my Strive for Five on Substack here:
https://ginajacobson.substack.com

All treatment details here:
https://www.weareallmadeofstars.net/col ... nt-journey

My favorite posts here:
https://weareallmadeofstars.net/favorite-posts

Koreysue
Posts: 258
Joined: Mon Apr 30, 2018 2:36 pm

Re: 5 years post stage 4 diagnosis and all clear!

Postby Koreysue » Tue Jan 31, 2023 2:32 pm

Woo hoo!
Congrats and thanks for posting this good and hopeful news. I am waiting on my 5 year scan results today.
I too have mixed feelings about being discharged. Are you going to still do yearly CEA/CBC ?
Ksue
Dx: 6/2017 stage 3 CC
Sigmoid, 2 nodes
CEA at dx: 6.1
Sigmoid Colectomy/folfox (last chemo (1/31/18)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/18 clean
PET scan 8/20/18 NED
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT NED 6/18/19 / CEA : 3.4
CEA 10/21/19: 3.2
CEA 3/9/20: 3.8
CT NED /CEA 6/17/20: 3.8
CEA 11/4/20 4.6 <——— whyyyy? (will retest in a few weeks)
CT NED 12/1/20 CEA: 3.5
CEA 5/21 4.2
CEA 10/21 3.4
colonoscopy 10/21 10mm polyp
CEA 4/22 3.7
CEA 7/22 3.8
CEA 12/22 4
CEA 1/22 3.2 and NED 5yr scan

plastikos
Posts: 352
Joined: Wed Jan 14, 2015 6:09 am

Re: 5 years post stage 4 diagnosis and all clear!

Postby plastikos » Thu Feb 02, 2023 6:33 am

This is great news Dave. Congrats. Be well.
St. IV Colon CA @ 37, male, Kras wild, MSI-high (2014)
11/2014 Right Hemicolectomy + Liver Resection
12/2014 - 6/2015 FOLFOX + Cetuximab
10/2015 - Recurrence liver
Liver resection 10/2015
FOLFIRI 11/2015 - 5/2016
Recurrence liver, nodes 11/2016
Pembrolizumab started 12/2016 -> pseudoprogression(?) -> biliary obstruction -> biliary stenting
Chemo 4x: most mets inactive and smaller on PET-CT
March 2017 - Back on Pembrolizumab again
Sept 2017 - SIRT - > NED
2019 NED

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Atoq
Posts: 412
Joined: Wed Oct 25, 2017 9:31 am

Re: 5 years post stage 4 diagnosis and all clear!

Postby Atoq » Wed Feb 22, 2023 5:08 pm

:D Congratulations! :D Really good news! Had also CT and colonscopy results today after 5 years and NED :D

All the best

Claudia
1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surg. for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 scope
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED
29.11.20 CAT, NED
2023 NED


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