Rock_Robster wrote:Hello, I have a bit of experience with this. Distant lymph nodes are hard, and indeed a lot of surgeons will baulk at them.
I had a liver resection with peri-aortic lymph node removal (lymphadenectomy). To be fair, the surgeon only thought it was one lymph node (celiac), but when they got in they found much more than expected so abandoned the liver resection and did the nodes instead (took 11 peri-aortic nodes, 5 tested positive). We followed up with SBRT radiation on the liver mets which seems to have done the job.
They were pretty clear that with the lymphatic involvement surgery was unlikely to be curative, but I wrote quite a long email to the surgeon explaining my understanding of risks and potential benefits (including citing research) which seemed to give him confidence that I was informed and to give it a shot. He is also a bit of a hot-shot, former transplant surgeon and head of a hepatobiliary practice - so you definitely need the right surgeon on the case. Fortunately he had the skills once he got in the to adapt to the task - basically ‘skinning’ the celiac artery and aorta (in his words).
I had a fairly quick lymphatic recurrence unfortunately which was causing pain, which we treated with a short course of SBRT radiation (5 day). Again this had a good effect almost immediately.
In short, I would recommend lots of opinions from the best liver surgeons you can access, and also a consultation with a radiation oncologist as an alternative.
I also agree with RP - if operable now I’d be reluctant to do much more than 4-6 cycles of oxaliplatin before liver surgery. That stuff is rough,
Best of luck.
rnb828 wrote:Do you have any recommendations as to what additional testing/data needs to be obtained?
Should we consult with an Integrative Medicine specialist on this?
In your experience, have your oncologists supported this approach?nd experience in this area.
nmorgen wrote:Hi beachsunrise,
Do you have a list of the supplements and dosages that you use?
beach sunrise wrote:Rp, I need to get back on chronomodulated. I tired it but it for a month but was beginning HFS I think? Weird foot sensations and hands began with some skin peeling. Never experienced that before so ya it freaked me out.
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