Post Surgery

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Lstroika
Posts: 1
Joined: Wed Dec 14, 2022 9:54 am
Facebook Username: Elizabeth Melahn Stroika

Post Surgery

Postby Lstroika » Wed Dec 14, 2022 10:40 am

Hi All!

I was just recently diagnosed with colon cancer this past October after my very first colonoscopy. Eight days ago I had part of my colon removed and to my delight....have been informed that all the cancer was taken ♥️. Even though I recognize this incredible blessing, my emotions are all over the place. There are so many "What if's swirling around in my head.

Anyway, I am just to happy to have found a support group like this one. Colon cancer is far too big to deal with alone.

Very best,
Liz ♥️

roadrunner
Posts: 347
Joined: Sun Jan 12, 2020 8:46 pm

Re: Post Surgery

Postby roadrunner » Wed Dec 14, 2022 10:12 pm

Liz: Welcome to the forum. If you’ve got “what ifs” around CRC (colorectal cancer), this is a great resource. There are even some nice people, too! It sounds like your story has started off well, considering. As you can see from my signature below, my cancer was very different from yours, so I’m not sure whether I will have too many answers for you (rectal and colon cancer are classed as one disease, but the symptoms, prospects, and treatments are often quite dissimilar). That said, I will help if I can. And others here know much more than I do about your particular situation from their personal experience and focus. There are lots of great posters, and you will nearly always get helpful information and perspective if you have questions.

I will venture this much: First, if you want to get the most out of the forum, add a signature. You can look at others’ to know what to include, and if you mess around with the interface you’ll figure out how to do it. Second, from what little I know about colon cancer, you will want to know and understand the pathology and staging of your tumor (you should have a report of that from your team); the number and pathological status of any lymph nodes removed in your surgery; and the results of any scans (usually CT, MRI, or PET/CT) that were done to rule out distant metastasis.

Other than that, I’d say if you have questions, please ask! And good luck!
7/19: RC: Staged IIIA, T2N1M0
approx 4.25 cm, low/mid rectum, mod. well diff.; lung micronodule
8/19-10/19 4 rds.FOLFOX neoadjuvant, 3 w/Oxiplatin (reduced 70-75%)
neoadjuvant chemorad 11/19
4 rounds FOLFOX July-August 2020
ncCR 10/20; biopsies neg
TAE 11/20, tumor cells removed
Chest CT 3/30/21 growth in 2 nodules (3 and 5mm)
VATS 12/8/21 sub-pleural met 7mm.
SBRT nodule 1/22
CT 3/22: Clear
Chest CT 5/19/22 Clear
6/20/22 TAE rectal polyp benign
CT/MRI 9/11 Clear
11/9/22: Rectal exam/scope Clear (2 yrs.)

User avatar
Jacques
Posts: 646
Joined: Sun Dec 28, 2014 10:38 am
Location: Occitanie

Re: Post Surgery

Postby Jacques » Thu Dec 15, 2022 1:47 am

Liz -

Welcome to our forum!

If you are interested in obtaining informational support here, I think it would be a good idea to collect copies of all of your medical reports done so far. These reports contain the information that defines your diagnosis and staging, and they will form the basis for your treatment planning.

At this point in time, these are the main documents that you will need:


DarknessEmbraced
Posts: 3743
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Post Surgery

Postby DarknessEmbraced » Sat Dec 17, 2022 8:57 am

Congratulations on being NED! :) I was stage 2a in 2014 and was also cured by surgery. I am still cancer free but always worry it will come back. It's natural to worry.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

nmorgen
Posts: 54
Joined: Sat Nov 05, 2022 10:31 am

Re: Post Surgery

Postby nmorgen » Mon Dec 19, 2022 8:55 pm

Congratulations!
DH age 47
DX 10/22 stage 4
2 tumors in sigmoid colon 2 Mets liver
adenocarcinoma
MSI-H, TMB-H 38, KRAS G13V, ERBB2 neg, BRCA2, POLE
Grade 1 well differentiated
12/1/22 Yervoy and Opdivo CEA 5.4
12/19/22 Yervoy & Opdivo CEA 4.6
01/12/22 Yervoy & Opdivo CEA 3.9


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