Hi everyone,
This is about my partner, who is 43 and was 41 when he was diagnosed. We have a young child together. It’s a very tough situation for us.
As you can see, the cancer was very advanced by the time it was caught. No one has raised any treatment options except chemo and we understand that it’s not curative. We live in Canada and the first-line funded treatment in our province is Folfiri plus Avastin. Second-line funded is Folfox plus Avastin. Beyond that, there are no other funded options for his MSS, KRAS-mutated profile. One third-line option is Lonsurf, for which we do have private coverage.
I’ve been reading Colon Talk since we got the diagnosis but haven’t posted before. I guess I didn’t think that there was much anyone could say. Making it to 5 years would be a minor miracle, but we haven’t felt the wolf at the door until now…for example, I know that brain mets are highly rare, but he’s got the right set of risk factors (rectal primary, KRAS, lung mets). Maybe he won’t live long enough to worry about brain mets, I don’t know.
All that being said, I’d really appreciate it if folks could comment on the following:
1) Do you see any other treatment options that he could consider?
2) The supplement protocols that are discussed here - are they strictly for off-chemo periods? How would that interact with his ongoing blood thinner? What if he’s also taking CBD?
3) I’ve been meaning to ask his oncologist, but does anyone know if having an APC mutation necessarily means that he has a hereditary type of CRC? (His mutation is not the one found in Ashkenazi Jewish people.)
Thank you so much in advance.