nmorgen wrote:Thank you for the advice. We have never tried cbd products and will definitely avoid them. I’m sorry you had progression of your cancer. Hopefully it didn’t actually ramp up your cancer. I’ve seen your other post and hope your til treatment works.
GMTX wrote:Hi nmorgen,
I can offer my insight and personal experience as I completed an Immunotherapy, phase 2, clinical trial, using chemo drug Regorafenib (120mg daily for 21 days and off 7), with immuno drug Nivolumab (Opdivo) infusion every 28 days, did Not meet FDA approval. However, I was blessed with a complete response (remission). Side-affects, though challenging (mouth and throat lesions, joint pain and fatigue, to name a few), were tolerable, taking this regimen 1 month and at times, 1 week or 1 day at a time. I can elaborate if it will help you manage side-affects. This trial continued to allow me to treat my late stage colon cancer as a chronic disease.
As far as supplements or adjunct efforts… yes, I believe diet, rest and positive attitude are critical success factors to managing stage 4 colon cancer. If you feel comfortable sharing your side-affects, I am pleased to share my experience managing those affects, if I experienced them.
Hang in there, with a positive attitude. Now entering my 11th year, my colon cancer initially metastasized in the liver, spread to several lymph nodes, stomach lining, lungs, diaphragm and clavicle area.
Take care and best - GM
nmorgen wrote:My husband had his 2nd infusion on the 19th. He drove a lot for the next two days. I’m sure that has added to his exhaustion, but I have been really surprised by how exhausted he is. He has barely gotten out of bed for the last two days. He is even eating in bed. Is this normal? I’m hoping he bounces back with a little energy. He is also fluctuating between being hot and cold with a lot of sweating as well.
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