nmorgen wrote:My husband gets his ct scan in two weeks. They don’t want to use another contrast, just give him a lot of steroids. I know steroids are not good to take with immunotherapies, so I’m not sure what I should do or say. This is really pissing me off.
Today we finally got the results from his genetic testing and he does have Lynch, so now my boys need to be tested.
Thank you for the update, but I'm sorry to hear the news about the new Lynch Syndrome diagnosis. This makes the situation a bit more difficult for you and your family.
However, there are lots of resources available on the Internet for Lynch Syndrome support. Or perhaps you can find a support group project locally or in
Atlanta on DH's next visit there.
Lynch Syndrome supportAlso, this proclamation from the Governor might be of interest to you:
https://governor.alabama.gov/wp-content ... ss-Day.pdfIf you can think of ways that people here on this Forum might be of help to you and your family, please let us know.
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When you eventually get the results from the May 18th / May 19th scan, you could look at the post below for more details on CT scan interpretation for Stage IV with liver mets:
https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=66462#p514916DH may also want to look at Figure 1 in the post above to get an idea of what the post-Opdivo options will be for dealing with liver mets.
This is very important because if Opdivo immunotherapy does not remove the liver mets completely, then the plan would be to remove them (if possible) by surgery/ablation procedures. But to do this the CT scans would have to be examined in much greater detail so that the liver surgeons/radiologists have the information at hand to determine what procedures will be feasible after Opdivo has run its course.
The examination of liver CT scans in great detail would likely be done according to the
RECIST v.1.1 protocol, which takes more time and would have to be requested explicitly by the oncologist who requisitions the upcoming scans. If RECIST is not requested specifically, then the upcoming CT scan reports will probably be ordinary, generic scan reports.