11 year stage IV cancerversary

Please feel free to read, share your thoughts, your stories and connect with others!
Ehut
Posts: 233
Joined: Wed Sep 26, 2012 4:24 pm
Location: Algonquin, IL

11 year stage IV cancerversary

Postby Ehut » Thu Dec 01, 2022 10:29 am

Hi all,

I haven't posted in awhile, mainly because this chapter of my life becomes smaller and smaller in the rear view mirror every year. Anyway, thought I would post that I'm still alive and kicking, DX 11 years ago today (12/1/11), and no trace of cancer anywhere for over 10 years. Wishing similar outcomes to everyone else out there!

Dave
Dx 12/11 rectal stage IV w/ 6 mets to liver, age 35
4 cycles FOLFOX 12/11 to 2/12
short course radiation 2/12
rectal/liver resection 3/12, temp ileostomy
8 cycles FOLFOX/FOLFIRI 4/12 to 8/12
ileostomy reversal 10/12
port out 10/13
1/17: Added daughter to family!
12/19: Added son to family!
NED for 10+ years and counting!

MadMed
Posts: 202
Joined: Sun May 02, 2021 5:52 pm
Location: Massachusetts

Re: 11 year stage IV cancerversary

Postby MadMed » Thu Dec 01, 2022 11:05 am

Thank you Ehut, as you intimately know, any stage 4 success story is enormously encouraging.
52M DX: RC lower rectum, guessing now 2cm from AV 4/27/2021
T3N0M0 adenocarcinoma with signet ring cell features
Tumor size 30mm
Tumor grade: G3
Baseline CEA 1.0
MSI status: MSS pMMR
Started Folfox 5/12/2021
Switched to FOLFIRINOX from session 2. 8 rounds total.
CT+MRI tumor contained shrunk 80%, no spread to other organs.
CRT started xeloda + 28 days Radiation 9/27-11/04
NED as of 4/06 CT/MRI/sigmoidoscopy
On W&W 04/06/2022

Husbandworried
Posts: 21
Joined: Fri Nov 12, 2021 9:54 am

Re: 11 year stage IV cancerversary

Postby Husbandworried » Thu Dec 01, 2022 11:31 am

Thank you for posting, very encouraging!

Claudine
Posts: 757
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: 11 year stage IV cancerversary

Postby Claudine » Thu Dec 01, 2022 12:27 pm

Fantastic! Thank you for sharing the good news!
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary

Tumors: L4 vertebrae 04/18; left adrenal gland & small lung nodules 03/19;
rectum 02/22 (pT3 pN0 stage 2A); L3 vertebrae 09/22

Surgeries: intestinal resection 05/18 (no cancer - Crohn's); adrenalectomy 02/20;
L3-L4-L5 fusion and corpectomy 05/20; LAR 04/22; ileo reversal 09/22;
L2-L3 fusion and corpectomy 09/22

Treatments: EBRT 04/18; SBRT 02/19; Failed adjuvant Xelox ; Folfiri/Avastin 03/19 - 01/20;
adjuvant chemorad (Xeloda) 06/22; SBRT 11/22

User avatar
CRguy
Posts: 10422
Joined: Sun Feb 10, 2008 6:00 pm

Re: 11 year stage IV cancerversary

Postby CRguy » Thu Dec 01, 2022 2:26 pm

Mega congrats !!!!
Keep kickin' BUTT and takin' names

In Harmony
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
15 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Koreysue
Posts: 257
Joined: Mon Apr 30, 2018 2:36 pm

Re: 11 year stage IV cancerversary

Postby Koreysue » Fri Dec 02, 2022 12:59 am

Wow! Congrats! I love to hear it.
Ksue
Dx: 6/2017 stage 3 CC
Sigmoid, 2 nodes
CEA at dx: 6.1
Sigmoid Colectomy/folfox (last chemo (1/31/18)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/18 clean
PET scan 8/20/18 NED
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT NED 6/18/19 / CEA : 3.4
CEA 10/21/19: 3.2
CEA 3/9/20: 3.8
CT NED /CEA 6/17/20: 3.8
CEA 11/4/20 4.6 <——— whyyyy? (will retest in a few weeks)
CT NED 12/1/20 CEA: 3.5
CEA 5/21 4.2
CEA 10/21 3.4
colonoscopy 10/21 10mm polyp
CEA 4/22 3.7
CEA 7/22 3.8
CEA 12/22 4
CEA 1/22 3.2 and NED 5yr scan

nmorgen
Posts: 54
Joined: Sat Nov 05, 2022 10:31 am

Re: 11 year stage IV cancerversary

Postby nmorgen » Fri Dec 02, 2022 7:49 pm

Congratulations! Hearing updates like this really gives me hope. Thank you for coming back to the forum and letting everyone know that you are doing great.
DH age 47
DX 10/22 stage 4
2 tumors in sigmoid colon 2 Mets liver
adenocarcinoma
MSI-H, TMB-H 38, KRAS G13V, ERBB2 neg, BRCA2, POLE
Grade 1 well differentiated
12/1/22 Yervoy and Opdivo CEA 5.4
12/19/22 Yervoy & Opdivo CEA 4.6
01/12/22 Yervoy & Opdivo CEA 3.9

DarknessEmbraced
Posts: 3746
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 11 year stage IV cancerversary

Postby DarknessEmbraced » Sat Dec 03, 2022 9:39 am

Congratulations! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

stevieb
Posts: 410
Joined: Sat Feb 09, 2013 12:26 am

Re: 11 year stage IV cancerversary

Postby stevieb » Mon Jan 02, 2023 10:53 pm

Awesome and continued NED!!

Stephen
Dx age 33
12/19/12 Stage IV liver/lung
1/14-2/28/13 Folfox
3/27/13 rectal/lung rst; temp ileo
7/11/13 liver res/ileo rev
9/30/13 - Folfox
11/13,2/21 NED
3/14 lung recur;6/16-VATS
7/14 5 bi lung mets
10&11/15 laser lung surg
2015 Colondar Model
12/15 5 lung met-folfiri
5/15 NED
11/15 2 lung mets; cryoablation
1/4/17 2 lung mets; cryoablation
NED as of 1/23/17

Suelee20
Posts: 10
Joined: Sat Dec 31, 2022 1:44 pm

Re: 11 year stage IV cancerversary

Postby Suelee20 » Tue Jan 03, 2023 12:54 am

Congratulations!! So glad to hear read posts like this.
Wife of DH (52); DX 9/27/18; CEA 22.9
10/31/18 LAR; Rectosig;6.2x4.5x1.1cm; Inv adenocarc; LowGr; pT4bN2b;tumor inv through muscularis propria into pericolorectal soft tissue;tumor inv peritoneal memb, ext to the serosal surf,inv the pelv sidewall;LN - 8/27;neg margins;WT-KRAS,NRAS,BRAF; MSS
Surg2/21(liv)
Ablat3/19(liv)
AdjChemoRT+Cap8/19(pelv)
Cykniferad1/20(liv)
SBRT12/21(lungs)
Stent6/22(rect)
CAPOX+Bev(4x);Folfiri+Bev(5x);Cap+Cetux(5x);Capiri+Cetux(14x);Oxali+Cetux(7x)
1/23Capiri+cetux totrytoslowprog


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: No registered users and 3 guests