8 years NED!

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DarknessEmbraced
Posts: 3731
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

8 years NED!

Postby DarknessEmbraced » Sun Nov 20, 2022 10:59 am

My surgery was on November 20th, 2014. I had stage 2a and didn't need chemo. Surgery cured me. :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

roadrunner
Posts: 312
Joined: Sun Jan 12, 2020 8:46 pm

Re: 8 years NED!

Postby roadrunner » Sun Nov 20, 2022 1:46 pm

Congrats, DE! I know you’ve had a tough road, so I hope you are going to celebrate this anniversary In style.
7/19: RC: Staged IIIA, T2N1M0
approx 4.25 cm, low/mid rectum, mod. well diff.; lung micronodule
8/19-10/19 4 rds.FOLFOX neoadjuvant, 3 w/Oxiplatin (reduced 70-75%)
neoadjuvant chemorad 11/19
4 rounds FOLFOX July-August 2020
ncCR 10/20; biopsies neg
TAE 11/20, tumor cells removed
Chest CT 3/30/21 growth in 2 nodules (3 and 5mm)
VATS 12/8/21 sub-pleural met 7mm.
SBRT nodule 1/22
CT 3/22: Clear
Chest CT 5/19/22 Clear
6/20/22 TAE rectal polyp benign
CT/MRI 9/11 Clear
11/9/22: Rectal exam/scope Clear (2 yrs.)

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beach sunrise
Posts: 726
Joined: Thu Mar 05, 2020 7:14 pm

Re: 8 years NED!

Postby beach sunrise » Sun Nov 20, 2022 10:20 pm

I am so happy to read this.
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

User avatar
CRguy
Posts: 10410
Joined: Sun Feb 10, 2008 6:00 pm

Re: 8 years NED!

Postby CRguy » Mon Nov 21, 2022 11:06 pm

Hey DE
sending MEGA cheers and best wishes your way
AND.... a few HUGGS as well

In Harmony with you on the Journey
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
15 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

I_will_fight
Posts: 104
Joined: Mon Jun 29, 2020 3:38 pm

Re: 8 years NED!

Postby I_will_fight » Tue Nov 22, 2022 1:03 am

DarknessEmbraced wrote:My surgery was on November 20th, 2014. I had stage 2a and didn't need chemo. Surgery cured me. :)


Congratulations, and thanks for the uplifting news!

JC
46 yo male Spain
06/20 - 6cm T3N0M0 CC splenic flex
No liver mets, 3 and 4 mm lung dots (unlikely to be mets)
lymp 0/37
MSH6- other MMR+
KRAS mt G13D
V/LNI absent
PNI present
07/20 - hemicol surg, 13cm clear margins, optimistic surgn.
08/20 - CAPOX regime, 4 cycles.
11/20 - CAPOX completed. CAT scan: lesion in liver, suspect hemoangioma, no changes lung dots.
12/20 - Clean colonoscopy
02/21 - MRI liver lesion is nonspecific, stable.

DarknessEmbraced
Posts: 3731
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 8 years NED!

Postby DarknessEmbraced » Sat Nov 26, 2022 11:59 am

You're welcome I_will_fight! Thanks everyone! I watched the Elton John Farewell Concert at Dodger Station on Disney + on the 20th. The concert was amazing!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Basil
Posts: 275
Joined: Thu Mar 16, 2017 12:33 pm

Re: 8 years NED!

Postby Basil » Tue Nov 29, 2022 5:27 pm

Congrats! I was essentially discharged from MDAnderson today after finishing five-year surveillance, which led me over here for the first time in a long time. Thanks to all the faceless names who helped walk me through everything in 2017!
40 y/o male (now 46), kids 11 & 14.
Dx 3/16/17, rectal cancer s3,t3,n1,m0
PROSPCT trial (FOLFOX in lieu of chemorad)
FOLFOX 4/5/17 - 6/26/17
LAR 7/31/17, temp ileo
pathological complete response
Adjuvant chemo cancelled (IDEA Study)
Ileo reversed 9/25/17
NED
1 year scans - clear
2 year scans - clear
3 year scans - clear
4 year scans - clear
5 year scans - clear (considered cured)

Claudine
Posts: 747
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: 8 years NED!

Postby Claudine » Thu Dec 01, 2022 12:27 pm

That's awesome! Hopefully NED forever :D
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary

Tumors: L4 vertebrae 04/18; left adrenal gland & small lung nodules 03/19;
rectum 02/22 (pT3 pN0 stage 2A); L3 vertebrae 09/22

Surgeries: intestinal resection 05/18 (no cancer - Crohn's); adrenalectomy 02/20;
L3-L4-L5 fusion and corpectomy 05/20; LAR 04/22; ileo reversal 09/22;
L2-L3 fusion and corpectomy 09/22

Treatments: EBRT 04/18; SBRT 02/19; Failed adjuvant Xelox ; Folfiri/Avastin 03/19 - 01/20;
adjuvant chemorad (Xeloda) 06/22; SBRT 11/22

Koreysue
Posts: 254
Joined: Mon Apr 30, 2018 2:36 pm

Re: 8 years NED!

Postby Koreysue » Fri Dec 02, 2022 1:11 am

Yahoo!! Great news!
Keep on keepin on,
ksue
Dx: 6/2017 stage 3 colon cancer
Sigmoid, 2 nodes
CEA at dx: 6.1
Sigmoid Colectomy/folfox (chemo complete January 31, 2018)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/2018 clean
PET scan 8/20/18 NED
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT NED 6/18/2019 / CEA : 3.4
CEA 10/21/19: 3.2
CEA 3/9/20: 3.8
CT NED /CEA 6/17/20: 3.8
CEA 11/4/20 4.6 <——— whyyyy? (will retest in a few weeks)
CT NED 12/1/20 CEA: 3.5
CEA 5/21 4.2
CEA 10/21 3.4
colonoscopy 10/2021 10mm polyp
CEA 4/22 3.7
CEA 7/22 3.8

nmorgen
Posts: 10
Joined: Sat Nov 05, 2022 10:31 am

Re: 8 years NED!

Postby nmorgen » Fri Dec 02, 2022 7:54 pm

Congratulations! I am so happy for you. These NED posts give me so much hope for my DH. Thank you.
DH age 47
DX 10/22 stage 4
2 tumors in sigmoid colon 2 Mets liver
adenocarcinoma
MSI-H
Grade 1 well differentiated
12/22 Yervoy and Opdivo
CEA 6

DarknessEmbraced
Posts: 3731
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 8 years NED!

Postby DarknessEmbraced » Sat Dec 03, 2022 8:22 am

Thank you Koreysue, Claudine, and Basil! Congratulations Basil, that's wonderful! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


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