Just saying hello!

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cindyz
Posts: 465
Joined: Mon Jun 29, 2009 9:17 pm

Just saying hello!

Postby cindyz » Mon Nov 07, 2022 2:18 pm

Wow...I am sitting here with so many feelings. Back in 2009, my husband Stephen was diagnosed with Stage IV colon cancer, mets to the liver. I was very active on this board, and gained so much help and insight over the 11 months he lived. I'd stay up countless hours as he slept, trying to find some sort of avenue that might work, something his doctors hadn't thought of, something we were missing.
Twelve years later, I'm finally writing a book about Stephen. It will be my first. I printed out every single conversation I had here (the stack is about 6 inches thick), and started looking back at folks who were my constant support, and wondering if they were still posting, still helping, still sharing. You ARE! The first person I searched was cptmac because I was reading something back then that was posted...then I saw CRGuy on here and I'm just...amazed and happy and SO overwhelmed. I'm sure there's more but I literally just signed on for the first time in 10 years about 5 minutes ago.
Back then, because of Stephen's journey, I thought to myself "can anyone with Stage IV REALLY live for such a long time??" I read accounts of people I didn't know on the internet doing this, but not anyone I "knew" like I felt I did through this forum...it DOES happen. It DOES.

You all- every single one of you- make so much of a difference, I don't know if you'll ever know how much.
Wife to Stephen, dx 5/13/09; 45 yo
Stage IV w/numerous mets to liver, 2 to LNs
Colon resection 5/25/09
Folfox/Avastin, Folfiri/Avastin, Folfiri/Erbitux-progressed
Sir Spheres 2/2/2010
Admitted to hospital 4/23/2010
Passed away 5/09/2010

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CRguy
Posts: 10409
Joined: Sun Feb 10, 2008 6:00 pm

Re: Just saying hello!

Postby CRguy » Mon Nov 07, 2022 3:18 pm

Welllllllll speaking of that bad boy !
HERE I IS

Seriously cindyz that is a wonderful message you posted and people here truly do make a difference.

Mega Cheers and Harmony to you sista'
Thank you for dropping in and keep us up to date on the book.

don't be no stranger now ... you :shock: :mrgreen: hear ?

CRguy on the Journey
Caregiver x 4
Stage IV A rectal cancer/lung met
15 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

aoxomoxoa
Posts: 1
Joined: Wed Nov 09, 2022 10:44 am

Re: Just saying hello!

Postby aoxomoxoa » Wed Nov 09, 2022 11:00 am

Hi Cindy, I am sorry to hear of your husband's passing. I was touched by your message and I hope you are able to share the book once you have it written. I haven't been on the cancer journey for very long but I am hoping for a long life despite the Stage IV diagnosis. I have 2 and 5 year old darling girls and a wife who I love dearly so I have a lot to fight for.
Dx May '22 Stage IV Liver mets
FOLFOX June - August '22
Surgery Sept '22 Liver Resection/Ablation + HAI pump
FOLFOX + FUDR November 2022 -

DarknessEmbraced
Posts: 3727
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Just saying hello!

Postby DarknessEmbraced » Sat Nov 12, 2022 12:01 pm

I'm sorry for the loss of your husband. *hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

michelle c
Posts: 1927
Joined: Wed Dec 02, 2009 3:58 am

Re: Just saying hello!

Postby michelle c » Tue Nov 15, 2022 8:39 pm

Hellooooo Cindy!

I remember you! I do! You and your beloved Stephen. I’m not sure if I replied to any of your posts, but I would have if I could have shared my experiences and provided support to you. I do remember reading your posts and how devoted you were to Stephen. I only check in a little here and there nowadays, mainly to offer support to those like me all those years ago because I was so grateful for everyone who helped me then. Nice to hear from you. Thank you for checking in and please keep us updated with your book xxx
May 25 2009 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
Jun 3 2009 LAR - Stage III 3/10 lymph nodes
Jul 6 - Dec 10 2009 - 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 2012 port removed & hernia repair

User avatar
cindyz
Posts: 465
Joined: Mon Jun 29, 2009 9:17 pm

Re: Just saying hello!

Postby cindyz » Wed Nov 16, 2022 7:32 pm

My heart, my mind, and my soul will never leave here in so many ways. Going through these things we go through (as patients and caregivers) is an unparalleled crazy ride with so many twists, turns, questions, fears...the love here is astounding.
Wife to Stephen, dx 5/13/09; 45 yo
Stage IV w/numerous mets to liver, 2 to LNs
Colon resection 5/25/09
Folfox/Avastin, Folfiri/Avastin, Folfiri/Erbitux-progressed
Sir Spheres 2/2/2010
Admitted to hospital 4/23/2010
Passed away 5/09/2010

Koreysue
Posts: 254
Joined: Mon Apr 30, 2018 2:36 pm

Re: Just saying hello!

Postby Koreysue » Fri Dec 02, 2022 1:03 am

What a wonderful message. Thanks.
Sorry for your loss.
Ksue
Dx: 6/2017 stage 3 colon cancer
Sigmoid, 2 nodes
CEA at dx: 6.1
Sigmoid Colectomy/folfox (chemo complete January 31, 2018)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/2018 clean
PET scan 8/20/18 NED
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT NED 6/18/2019 / CEA : 3.4
CEA 10/21/19: 3.2
CEA 3/9/20: 3.8
CT NED /CEA 6/17/20: 3.8
CEA 11/4/20 4.6 <——— whyyyy? (will retest in a few weeks)
CT NED 12/1/20 CEA: 3.5
CEA 5/21 4.2
CEA 10/21 3.4
colonoscopy 10/2021 10mm polyp
CEA 4/22 3.7
CEA 7/22 3.8


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