prayingforccr wrote:Are you doing any maintenance protocol until you can get those mets zapped/removed?
prayingforccr wrote:Not doing any “alternative” supplements/treatments?
Rock_Robster wrote:I’ve been really holding off on SoC systemic therapy as I know once that’s done it’s done,
...a RAS+ I don’t have a lot of lines available,
so I’ve mainly been doing locoregional treatments (particularly surgery and ablations). Fortunately my disease biology seems to be fairly indolent so far without systemic therapy.
The rad onc is also offering SABR on the liver lesion if it has progressed.
One issue I do have is that I don’t qualify for most trials yet having not progressed on oxaliplatin or irinotecan, so if the maintenance protocol can’t maintain stable then I’ll likely add the Iri in so I can at least start to get some trial drugs when it stops working!
off-label meds are basically aspirin, celebrex, metformin, melatonin, 2-DG, LDN, doxycycline (cycle) and dichloroacetate (cycle)...
Main supplements are vit D, curcumin, EGCG/resveratrol, PSK, silymarin, niacinamide, quercetin, andrographis,
and a few other things added not so routinely (ALA, zinc, Berberine, beta glucan, bromelain, cinnamon, liquorice root, creatine).
I plan to do some IVC/D before next treatment
likely a full-body hyperthermia session post-radiation.
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