How Often Post Recovery Colonoscopy? Aspirin?

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ab123
Posts: 124
Joined: Tue May 21, 2013 12:25 pm
Location: Boston

How Often Post Recovery Colonoscopy? Aspirin?

Postby ab123 » Fri Oct 21, 2022 7:53 am

Hi,

For those of you who have recovered from stage III, how often are you doing colonoscopies? Years ago I was told by my oncologist to do it every 3 years forever. But I've also heard 5. What's the latest advice people are getting?

Also, I was told back then to take a daily full-strength (325mg) aspirin. Anybody else doing that?

TIA!
Aug 2012: RC DX Stage IIIC, T3N2M0 by MRI - 38M
Fall 2012: Chemorad
Nov 2012: LAR - Path report: 0/13 LNs, tumor reduced to "microscopic foci"
Jan-Apr 2013: 8 rounds FOLFOX
May 2013: Ileostomy takedown, port removal
July 2013 (and since): NED!

margiej
Posts: 108
Joined: Sat Apr 14, 2018 8:46 am

Re: How Often Post Recovery Colonoscopy? Aspirin?

Postby margiej » Fri Oct 21, 2022 12:02 pm

Hi! I'm almost 7 years post op. I had a clean colonoscopy at 1 year and then again 3 years after that and then the doc said come back in 5 years. I take 81 mg of aspirin daily. I'll be interested in knowing what other folks are doing.
Margie
Dx CC 12/2015, age 57 at Dx
Stage IIIb: T3N1b
Adenocarcinoma, sigmoid colon, 2.5 cm - low grade, moderately differentiated
3/6 positive lymph nodes
laparoscopic colectomy 1/20/2016
Capox started 3/4/16 - Six rounds
CT-suspicious lymph 2/22/16
PET scan 2/24/16 clear
CT 6/8/16 clear
Clear Colonoscopy 3/2017 and 1/2020
CT 10/3/17 clear
CT 10/17/18 clear
CT 10/17/19 clear
CEA 12/17 1.7
5/16 3.8
7/16 1.9
3/17 1.3
10/17 1.2
4/18 1.6
11/18 1.2


Rock_Robster
Posts: 722
Joined: Thu Oct 25, 2018 5:27 am
Location: Brisbane, Australia

Re: How Often Post Recovery Colonoscopy? Aspirin?

Postby Rock_Robster » Fri Oct 21, 2022 9:54 pm

My oncologist was a researcher involved in some of the early aspirin/CRC trials - he said the initial results were promising but ultimately they weren’t able to demonstrate a clear benefit for most cases. I believe the evidence for its use is stronger in Lynch Syndrome however. His view now is that low-dose aspirin is very safe provided there are no bleeding risks/issues, but not to expect a materially different outcome from a CRC perspective from aspirin monotherapy. I take around 100-200mg/d as part of a much larger supplement and off-label stack.
40M Australia
2018 RC, 12cm high
G2 EMVI LVI. 4 liver mets
pT3N1aM1a Stage IVa MSS NRAS G13R
CEA: Nov-18: 14 then <2. Jun-22: 5. Sep-22: 10. Nov-22: 19
11/18 FOLFOX
3/19 Liver resection
5/19 Pelvic IMRT
7/19 ULAR
8/19 Liver met
8/19 FOLFOX, FOLFOXIRI, FOLFIRI
12/19 Liver resection
NED 2 yrs
11/21 Liver met, sub-cm lung things
3/22 3 Liver mets & PALNs. Lymphadenectomy
4/22 Liver SBRT
9/22 Small liver spot, PALNs
10/22 PALN SBRT
11/22 Liver mets, possible peri nodules. Xeloda+Avastin

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Jacques
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Joined: Sun Dec 28, 2014 10:38 am
Location: Occitanie

Re: How Often Post Recovery Colonoscopy? Aspirin?

Postby Jacques » Sat Oct 22, 2022 1:48 am

Last year both my cardiologist and my GP insisted that I stop taking daily baby aspirin. They said it was not much use for preventing cardiovascular problems in people my age, and furthermore it was the likely cause of the many unsightly bruises and cuts that would take a long time to heal. Reference

ab123
Posts: 124
Joined: Tue May 21, 2013 12:25 pm
Location: Boston

Re: How Often Post Recovery Colonoscopy? Aspirin?

Postby ab123 » Mon Oct 24, 2022 9:36 am

Regarding aspirin, my oncologist recommended it to prevent cancer recurrence specifically, nothing to do with the heart. Here's a related article describing how aspirin was found to reduce cancer diagnosis and colon polyp formation in particular:

https://www.cancer.gov/about-cancer/cau ... ancer-risk

Still there's been some confounding research on this. Linked in that article is a more recent one suggesting diagnosis of advanced cancer in people older than 70 might be increased by aspirin.

I'm curious what advice others have received from GI oncologists in particular related to aspirin use for reduction of cancer recurrence risk.
Aug 2012: RC DX Stage IIIC, T3N2M0 by MRI - 38M
Fall 2012: Chemorad
Nov 2012: LAR - Path report: 0/13 LNs, tumor reduced to "microscopic foci"
Jan-Apr 2013: 8 rounds FOLFOX
May 2013: Ileostomy takedown, port removal
July 2013 (and since): NED!

utahgal7
Posts: 97
Joined: Fri Sep 11, 2020 12:04 pm

Re: How Often Post Recovery Colonoscopy? Aspirin?

Postby utahgal7 » Mon Oct 24, 2022 10:09 am

ab123,

My oncologist said to take aspirin. I experimented with different dosages of aspirin from 81mg to 1500 mg daily (split dose throughout the day). Even at high dose (1500 mg/daily), I still had progression of lung nodules and my CEA went higher (not by much, but it still rose). I did not know prior to taking aspirin, that some people do not respond to aspirin at any dose. I guess that I am one of those non-responders because aspirin didn't do anything for me and it took its toll on my kidneys. Like Rob, I took other supplements that DID seem to have an effect on CEA and CT scans.


Paige
02/20 Rectal Cancer dx - 4 cm mass; located 9 cm from AV
03/20 CEA 2.7; 0.9; 1.4; 0.9; 0.9; 1.2; 1.0; 0.8; 1.1; 1.0; 1.1; 1.7
04/20 ST Radiation; 04/20 LAR surgery w/ileostomy
04/20 ypT3N1bM0; MSS;
05/20 CAPEOX; 08/20 Ileostomy reversal
09/20 CT scan; suspicious areas in liver; 10/20 MRI liver; dx hemangioma
12/20 CT scan; lung nodules (watch and wait);
07/22 - 08/22 CT scan; (1) lung nodule (right lower lobe 9mm X 7mm) numerous micro nodules left lung
11/22 lung nodule biopsy positive for RC met

Blakeacw
Posts: 15
Joined: Thu Nov 05, 2020 12:24 pm
Location: Atlanta

Re: How Often Post Recovery Colonoscopy? Aspirin?

Postby Blakeacw » Mon Oct 24, 2022 1:37 pm

I had a colonoscopy a little a year after my resection and about six months after I finished my chemo ( folfox)

They found a few minor polyps - snipped them , biopsied ( all good ) - and told me to come back in two years.

Don't love the prep - but would rather have the piece of mind.

I have seen the same conflicting data on the aspirin - also thought it helped with possible stroke
Colonoscopy 8/2020 - cancer diag. 9cm mass
Colectomy 8/2020 - successful -margins cleared
2 /16 lymph nodes -m1 tumor deposit
Pt3 n1b

Port installed 9/20
Folfox - 10/12 rounds complete

CEA
8.6.20 - 8.7 Prior Surgery
9.4.20 - 3.0 Post Surgery
4.14.21 - 2.7
6.16.21 - 3.0
9.29.21 - 2.3
12.13.21 - 2.1
3.17.22 - 2.0
CT Scan 3/18/21 - NED
Signatera 3/16/21 & 6/16 & 9/16 12/13/21 & 3/17/22 & 6/17/22 - ALL 0.0
CT Scan 3/11/22 - NED

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horizon
Posts: 1658
Joined: Tue Apr 12, 2011 10:10 pm

Re: How Often Post Recovery Colonoscopy? Aspirin?

Postby horizon » Sun Oct 30, 2022 5:40 pm

Every colonoscopy my gastro writes a report saying 'see you in 5 years!'. And then the other part of my care team says "how about no" and schedules me for 3.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 11 years NED). Is this real life?


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