Stage 4 Braf

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saltygirl
Posts: 87
Joined: Sun Feb 07, 2021 4:46 pm
Facebook Username: Salty.girl

Stage 4 Braf

Postby saltygirl » Wed Oct 12, 2022 9:08 pm

I am stage 4 braf with distant lymph nodes. I had 11 folfoxiri treatments, surgery on the primary and distant lymph nodes. Still NED 2 years after surgery. Just had a clean CT scan today. Living the life. Heading to Costa Rica, Europe, Mexico… appreciating every day.

stu
Posts: 1590
Joined: Sat Aug 17, 2013 5:46 pm

Re: Stage 4 Braf

Postby stu » Thu Oct 13, 2022 3:05 am

Delighted to read this !
Good on you .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

saltygirl
Posts: 87
Joined: Sun Feb 07, 2021 4:46 pm
Facebook Username: Salty.girl

Re: Stage 4 Braf

Postby saltygirl » Thu Oct 13, 2022 7:53 am

Thank you. Would like to give hope to others with stage 4 braf.

saltygirl
Posts: 87
Joined: Sun Feb 07, 2021 4:46 pm
Facebook Username: Salty.girl

Re: Stage 4 Braf

Postby saltygirl » Thu Oct 13, 2022 7:57 am

2.5 years ago I was thinking my life is over. Both kids in high school. Now 1st is studying for her Mcat as a junior in college. 2nd is graduating and heading to study aviation to be a pilot. So excited I was able to be here for them. I am back at work, working out daily and traveling. Already made executive platinum since March. Living every day to the fullest.

stu
Posts: 1590
Joined: Sat Aug 17, 2013 5:46 pm

Re: Stage 4 Braf

Postby stu » Fri Oct 14, 2022 2:26 am

Keep pressing forward .
Love reading your post .

My mum took your approach and stayed active in all our lives . Her grand children were in primary school when this all started . One working the rest at uni . They all adore her and she has had a great decade .

Your children sound as though they are doing so well . They will be delighted you are part of this chapter in their lives and here’s to many more .
Keep enjoying the good times .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Rikimaroo
Posts: 433
Joined: Tue Dec 20, 2016 8:48 pm
Location: Florida

Re: Stage 4 Braf

Postby Rikimaroo » Sat Oct 15, 2022 10:09 pm

Keep it going Saltie Girl you’re doing the right thing
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
LAR/Liver Resect 4/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left vesical/pelvic sidewall - 10/7/2019 resect perm bag,
CEA rise Feb/May 3.7, 8.8, 30, Recurrence in Pelvic
CEA 40 right now, but was 57, so folfiri to beat it back down.
Lots of chemo for the past 4 years.


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