All over the place

Please feel free to read, share your thoughts, your stories and connect with others!
User avatar
beach sunrise
Posts: 1045
Joined: Thu Mar 05, 2020 7:14 pm

All over the place

Postby beach sunrise » Tue Oct 11, 2022 2:21 pm

Bloodwork is all over the place. Up, down and all around. Appt with ND asap this Thurs, surgeon appt Friday.
Interesting fact, any time I have had same CEA panel done for different drs at same time they are hardly ever close. Last CEA panel, one was 26.1 and the other was 22, same time/same needle.
Signatera is still negative.
I know I am over the line to stage IV, its just fighting now to get a doc to listen.
I hammer this relentlessly for the best shot and seems drs just block wall it with SOC mindset, watch and wait.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test

User avatar
beach sunrise
Posts: 1045
Joined: Thu Mar 05, 2020 7:14 pm

Re: All over the place

Postby beach sunrise » Thu Oct 13, 2022 11:06 am

ND appt done.
Concentrating on getting IL-8 down again
CTL's lowered by half so get them up again
M1 macophages, get them up again
More bloowork panels Monday to recheck other panels such as ca19-9, AFP, fibrinogin, LDH1-5, ect
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test

User avatar
beach sunrise
Posts: 1045
Joined: Thu Mar 05, 2020 7:14 pm

Re: All over the place

Postby beach sunrise » Thu Oct 13, 2022 5:15 pm

Hey pccr, she is on my list (and not to far away) along with Loma Linda and now Dr. bott (MSK). Heard today that Bott is out of the box and not necessarily SOC mind thinking. He is a primary lung cancer surgeon but has been known to do other things.
Yep, full time job on top of my other two full time jobs, ha.
Ya, I have thought we are similar too.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test

User avatar
beach sunrise
Posts: 1045
Joined: Thu Mar 05, 2020 7:14 pm

Re: All over the place

Postby beach sunrise » Wed Oct 19, 2022 9:23 am

CEA is down 4pts in a month. Thank goodness!
Switched some things around, upped some things, changed some things.
Changed the vitamin C to 10g oral (was taking 4g) on the days I don't have IVC 75g
Upped the turmeric. I think its messing with my liver counts
Switched tetrathiomolybdate compound pharm. This one is more potent than the other brand.
IVM every other day
Upped the vitamin E and selenium
Switching PSK brand this week to bring up WBC and other things it helps with
I think that is all I have done so far
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: No registered users and 156 guests