Just checking in today to let you all know that this week will mark ten years since DX. I have now done my time and have received an "Honourable Discharge" from my oncologist in a document that includes the phrase, "complete remission". So ... this has meant no more visits with the oncologist, no more 3-month check-ups, and no more 6-month check-ups. Only periodic check-ups with my family doctor from time to time.
I would like to take this opportunity to thank all my friends here who supported me during the time when I was active on this Forum. This was a place where I could go whenever there was no other place to go.
Keep healthy, and best wishes for the onward journey!
10++ years and counting ...
-
O Stoma Mia
- Posts: 1721
- Joined: Sat Jun 22, 2013 6:29 am
- Location: On vacation.
10++ years and counting ...
Last edited by O Stoma Mia on Sat Sep 28, 2024 3:15 am, edited 1 time in total.
Re: 10 years and counting ...
OMG, congrats! What a relief it must be. Thank you for all your contributions to this site, by sharing you've help many.
52M DX: RC lower rectum, guessing now 2cm from AV 4/27/2021
T3N0M0 adenocarcinoma with signet ring cell features
Tumor size 30mm
Tumor grade: G3
Baseline CEA 1.0
MSI status: MSS pMMR
Started Folfox 5/12/2021
Switched to FOLFIRINOX from session 2. 8 rounds total.
CT+MRI tumor contained shrunk 80%, no spread to other organs.
CRT started xeloda + 28 days Radiation 9/27-11/04
NED as of 4/06 CT/MRI/sigmoidoscopy
On W&W 04/06/2022
T3N0M0 adenocarcinoma with signet ring cell features
Tumor size 30mm
Tumor grade: G3
Baseline CEA 1.0
MSI status: MSS pMMR
Started Folfox 5/12/2021
Switched to FOLFIRINOX from session 2. 8 rounds total.
CT+MRI tumor contained shrunk 80%, no spread to other organs.
CRT started xeloda + 28 days Radiation 9/27-11/04
NED as of 4/06 CT/MRI/sigmoidoscopy
On W&W 04/06/2022
Re: 10 years and counting ...
Mega cheers and congrats OSM
You have always been a supportive and helpful friend to all us ColonTalkers !!!!
Stay safe, be well and don't be a stranger
In Harmony on the Journey
CRguy
You have always been a supportive and helpful friend to all us ColonTalkers !!!!
Stay safe, be well and don't be a stranger
In Harmony on the Journey
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
Re: 10 years and counting ...
Congratulations, fantastic!
5/19 IIIC sigmoid cancer 2/25 lymph nodes positive
5/19 surgery
7/19 FOLFOX 6 months
9/20 recurrence to single lymph node
10/20 FOLFIRI 5 rounds
1/21 surgery to remove lymph node
4/21 CT NED
8/21 CT NED
11/21 CT NED
2/22 CT NED
5/22 CT NED
8/22 PET NED
11/22 CT NED
3/23 PET lesion on liver
3/23 MRI confirmed lesion
4/23 liver surgery aborted lesion found on diaphragm
5/23 chemo started
7/23 CT shows shrinkage of lesion, consult scheduled with surgeon
5/19 surgery
7/19 FOLFOX 6 months
9/20 recurrence to single lymph node
10/20 FOLFIRI 5 rounds
1/21 surgery to remove lymph node
4/21 CT NED
8/21 CT NED
11/21 CT NED
2/22 CT NED
5/22 CT NED
8/22 PET NED
11/22 CT NED
3/23 PET lesion on liver
3/23 MRI confirmed lesion
4/23 liver surgery aborted lesion found on diaphragm
5/23 chemo started
7/23 CT shows shrinkage of lesion, consult scheduled with surgeon
Re: 10 years and counting ...
Hi OSM
Amazing to hear that and I still sometimes lurk around here, but I thought after seeing this that I had to actually log in and comment. My sincere congratulations on this result and I wanted to thank you for the cool, calm, logical and reassuring presence you have always been on this board. So many time I read your comments and felt calmed down, and I have never actually articulated that so not only do you have my congratulations, but you have my heartfelt appreciation.
May your life continue to flow in the way you want it to.
Cheers and best wishes,
Kiwi
Amazing to hear that and I still sometimes lurk around here, but I thought after seeing this that I had to actually log in and comment. My sincere congratulations on this result and I wanted to thank you for the cool, calm, logical and reassuring presence you have always been on this board. So many time I read your comments and felt calmed down, and I have never actually articulated that so not only do you have my congratulations, but you have my heartfelt appreciation.
May your life continue to flow in the way you want it to.
Cheers and best wishes,
Kiwi
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - August 2020
Port Out 26 March 2015
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - August 2020
Port Out 26 March 2015
Re: 10 years and counting ...
GGrreeaaaaattt! Congratulations to you OSM.
Thank you for all your contributions and special support on the forum.
I really do miss your posts.
Best wishes forever.
Thank you for all your contributions and special support on the forum.
I really do miss your posts.
Best wishes forever.
watchful, active researcher and caregiver for stage IVb/c CC. surgeries 4/10 sigmoid etc & 5/11 para-aortic LN cluster; 8 yrs immuno-Chemo for mCRC; now no chemo
most of 2010 Life Extension recommendations and possibilities + more, some (much) higher, peaking ~2011-12, taper chemo to almost nothing mid 2018, IV C-->2021. Now supplements
most of 2010 Life Extension recommendations and possibilities + more, some (much) higher, peaking ~2011-12, taper chemo to almost nothing mid 2018, IV C-->2021. Now supplements
-
DarknessEmbraced
- Posts: 3823
- Joined: Sat Nov 01, 2014 4:54 pm
- Facebook Username: Riann Fletcher
- Location: New Brunswick, Canada
Re: 10 years and counting ...
That's wonderful! Congratulations! 
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
-
Kick'nAssCancer'sAss
- Posts: 248
- Joined: Tue Feb 25, 2014 4:38 pm
Re: 10 years and counting ...
Congrats
It's great to see names that I recognize reach cancerversary milestones.
Hell, it's great to see any names reach cancerversary milestones.
Mike
It's great to see names that I recognize reach cancerversary milestones.
Hell, it's great to see any names reach cancerversary milestones.
Mike
53M Dx RC Halloween 2013
CT & BONE scan
MRI/T3N0M0 1 suspicious LN
5 wks chemo/rad
LAR open TME Feb 26/14
temp bag
0/24 nodes pCR/pathological
Folfox (8) Mar 28-Jul 4 /14
Aug/14 clear CT scan
Aug 27/14 reversal
Feb/15 clear scope
July/15 Feb/16 Feb/17 Feb/18 clear CT scans
Feb/18 clear scope
Sept 19 clear CT scan & DISCHARGED
Mar/23 clear scope
CEA 1.6 @ dx
1.6,1.4,1.7,2.4,2.9, 2.7 2.3 2.5 2.2 2.1 2.5 2.6 2.7
2.7 Sept 19
0-4 normal
https://kickingasscancersass.blogspot.com/
CT & BONE scan
MRI/T3N0M0 1 suspicious LN
5 wks chemo/rad
LAR open TME Feb 26/14
temp bag
0/24 nodes pCR/pathological
Folfox (8) Mar 28-Jul 4 /14
Aug/14 clear CT scan
Aug 27/14 reversal
Feb/15 clear scope
July/15 Feb/16 Feb/17 Feb/18 clear CT scans
Feb/18 clear scope
Sept 19 clear CT scan & DISCHARGED
Mar/23 clear scope
CEA 1.6 @ dx
1.6,1.4,1.7,2.4,2.9, 2.7 2.3 2.5 2.2 2.1 2.5 2.6 2.7
2.7 Sept 19
0-4 normal
https://kickingasscancersass.blogspot.com/
-
testing765
- Posts: 324
- Joined: Tue Aug 19, 2014 9:41 am
Re: 10 years and counting ...
This is great news. You helped me during my journey too.
male-age 44 at diagnosis
8/14-clnscopy
8/14-CT scan,no mets
9/14-left colectomy,CEA 2.2 before surgery
pT2pN2bpM0
3 cm tumor in dscnding colon
7/23 pos LNs
low grade MSI stable
10/14-start folfox
1/15-CT & PET scan and sigmdoscopy- no mets
3/15-finish folfox
9/15- clnscopy- 3 polyps removed
10/15- CT scan, NED
10/16- CT scan, NED, CEA 1.6
10/17- clnscopy- 4 polyps removed, CT scan NED, CEA 1.8
10/14 1.9; 4/15 2.8; 5/15 2.4; 9/15 2.8; 12/15 3.1; 1/16 3.0; 4/16 2.5; 7/16 2.5; 10/16 1.6; 1/17 1.9
8/14-clnscopy
8/14-CT scan,no mets
9/14-left colectomy,CEA 2.2 before surgery
pT2pN2bpM0
3 cm tumor in dscnding colon
7/23 pos LNs
low grade MSI stable
10/14-start folfox
1/15-CT & PET scan and sigmdoscopy- no mets
3/15-finish folfox
9/15- clnscopy- 3 polyps removed
10/15- CT scan, NED
10/16- CT scan, NED, CEA 1.6
10/17- clnscopy- 4 polyps removed, CT scan NED, CEA 1.8
10/14 1.9; 4/15 2.8; 5/15 2.4; 9/15 2.8; 12/15 3.1; 1/16 3.0; 4/16 2.5; 7/16 2.5; 10/16 1.6; 1/17 1.9
Re: 10 years and counting ...
Huge congrats to you!!
I'm just a dude who still can't believe he had a resection and went through chemo (currently 13 years NED). Is this real life?
-
O Stoma Mia
- Posts: 1721
- Joined: Sat Jun 22, 2013 6:29 am
- Location: On vacation.
11++ years and counting ...
BUMP
Just checking in again to let my friends here know that I'm still around -- now it's 11 years since DX! It's hard to believe that so many years have gone by, but it's true...
See y'all again next year, same time, same station.
Take care ...
OSM
Just checking in again to let my friends here know that I'm still around -- now it's 11 years since DX! It's hard to believe that so many years have gone by, but it's true...
See y'all again next year, same time, same station.
Take care ...
OSM
In 2022, O Stoma Mia wrote:Just checking in today to let you all know that this week will mark ten years since DX. I have now done my time and have received an "Honourable Discharge" from my oncologist in a document that includes the phrase, "complete remission". So ... this has meant no more visits with the oncologist, no more 3-month check-ups, and no more 6-month check-ups. Only periodic check-ups with my family doctor from time to time.
I would like to take this opportunity to thank all my friends here who supported me during the time when I was active on this Forum. This was a place where I could go whenever there was no other place to go.
Keep healthy, and best wishes for the onward journey!
Last edited by O Stoma Mia on Fri Sep 27, 2024 3:33 am, edited 1 time in total.
Re: 10 years and counting ...
Thanks for chekkin in OSM
always welcome here !
Cheers and best wishes on the Journey
CRguy
always welcome here !
Cheers and best wishes on the Journey
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
Re: 10 years and counting ...
Congratulations! We’ve been together for a long time. In a bit over a month I’ll reach my 10 year mark too. Thanks for all your support. X
-
Rock_Robster
- Posts: 1038
- Joined: Thu Oct 25, 2018 5:27 am
- Location: Brisbane, Australia
Re: 10 years and counting ...
Mazel!
41M Australia
2018 Dx RC
G2 EMVI LVI, 4 liver mets
pT3N1aM1a Stage IVa MSS NRAS G13R
CEA 14>2>32>16>19>30>140>70
11/18 FOLFOX
3/19 Liver resection
5/19 Pelvic IMRT
7/19 ULAR
8/19 Liver met
8/19 FOLFOX, FOLFOXIRI, FOLFIRI
12/19 Liver resection
NED 2 years
11/21 Liver met, PALN, lung nodules
3/22 PVE, lymphadenectomy, liver SBRT
10/22 PALN SBRT
11/22 Liver mets, peri nodule. Xeloda+Bev
4/23 XELIRI+Bev
9/23 ATRIUM trial
12/23 Modified FOLFIRI+Bev
3/24 VAXINIA (CF33 + hNIS) trial
2018 Dx RC
G2 EMVI LVI, 4 liver mets
pT3N1aM1a Stage IVa MSS NRAS G13R
CEA 14>2>32>16>19>30>140>70
11/18 FOLFOX
3/19 Liver resection
5/19 Pelvic IMRT
7/19 ULAR
8/19 Liver met
8/19 FOLFOX, FOLFOXIRI, FOLFIRI
12/19 Liver resection
NED 2 years
11/21 Liver met, PALN, lung nodules
3/22 PVE, lymphadenectomy, liver SBRT
10/22 PALN SBRT
11/22 Liver mets, peri nodule. Xeloda+Bev
4/23 XELIRI+Bev
9/23 ATRIUM trial
12/23 Modified FOLFIRI+Bev
3/24 VAXINIA (CF33 + hNIS) trial
-
DarknessEmbraced
- Posts: 3823
- Joined: Sat Nov 01, 2014 4:54 pm
- Facebook Username: Riann Fletcher
- Location: New Brunswick, Canada
Re: 10 years and counting ...
Congratulations! That's wonderful!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”
Who is online
Users browsing this forum: Google [Bot] and 4 guests